Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 09-16-2007, 08:49 PM #1
kelly6449ed
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Default need help to understanding this please help

Hello I am Kelly 43 year old,

I posted a long time ago about a car crash I had back in Nov of 05
and hurt my neck and back, now I have my new MRI report, and need help understanding it, and what I am in for, please help

and the pain is to much for me, and I am having black outs/head hurts all the time, and go into muscle spasms and my walking is so bad, I am in a W/C now,,,the Drs are still telling me no surgery, not sure why,
when it 1st happen, I had only disc herniation of C4C5C6C7 and no DDD and no Artitis now I do have DDD and Aritits and my weakness in my arms are worse, I can not lift them at all someone has to help me all the time now,

why cant I find help for me? is it to late for me? is that why no one will do surgery? or I may have brain damage and that is why no one will do surgery?
I did everything I was told to do, and got worse, and getting worse,
also could my the wipelash couse all of this?
plesae help me understand this, I am falling apart, I am 43 and was in fair to good health till now,
also they can not do any nerve block shots, due to there are to much swelling and to meany that are inflamed, pain Dr told me he can not block my hole back, also I have lost control of bowls and have truble going to the bathroom,have to think really hard to get my blader to start, and yes the Dr's know this, but still can not get know one to help me,
yes I have numbing /burning/pain/pian/can not find my arms in the mornings/
foot drops, TMJ/ the list gose on and on,
also so no one still has not done a CT only MRIs and like I said before, they just keep getting worse,


brachial neuritis or radiculitis NOS (723.4)
cervical Displacement 722.0
thoracic disc degen 722.51
thoracic spondylosis 721.2
lumbosacral neuritis nos 724.4
pain in limb 729.5
abnormality of gait 781.2
visual disturbances nec 368.8
idiopath autonomic neuropathy 337.0
cervicalgia 723.1
pain in thoracic spine 724.1


consult to neurology 9019
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Old 09-18-2007, 10:44 AM #2
kelly6449ed
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Default please help

I been looking for someone to help me, and any info, is there anyone on here that knows what I am asking about with my new MRI tests?
did I ask the wrond things?

please anyone with any info on this tell me what it means?
the pain is something I do not understand,

thank you ,
Kelly
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Old 09-18-2007, 01:16 PM #3
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Hi, Kelly, I read your first post yesterday, and I'm not sure how to respond, meaning: I'm also a spinal patient and not a doctor. I don't know why doctors you've seen are not helping you with your pain.

What type of doctor(s) do you see and have you seen?

The question I'd pose to the doctor(s)? The same as you've asked here: Is there something that can be done to help reduce your pain? I'd also ask the doc: Can you be referred to someone else for a second opinion?

About why no surgery? I've no idea. Possibly, it is related to risks and the potential for complications. That, too, is something a doctor should be able to answer.

Why you have arthritis? Injury or trauma can lead to it (among some) but so can time and age.
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Old 09-18-2007, 01:53 PM #4
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Thank you

I have been seen by a lot of dif Dr's some are just #$%$^%^ and some have been kind, and understanding but lost on what to do, I just got back from the Clevland Clinci, and they are the ones that gave me the best answers on what is going on, that is what I posted, on here, now I am getting ready to go see my Pain Shink, and talk with him about everything, he is stun also that no one will help me, I am just happy to hear its not in my head, the pain is real, and I know something happen to my brain, also, I can not let my family in, I hide, my feelings, due to I know something is wrong,
my mom ask me why I never smile no more, she is right I lost my smile,
and that was the last time I seen her, they only live 10 mins from me,
that was back in may, I think, dad yells, can not handle that, I miss me, also
and do not know how to get back, to being me, I know it sound crazy but its true, it takes everything just to get out of bed, and then I just sit, fear of falling, witch I do all the time, fear of not being able to open the door just in case of fire, ,can not pull big doors open, to weak, the list gose on and on,
and I only want to eat ICE CRAME!
thank you ,
will keep looking for help

kelly
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Old 10-08-2007, 12:27 PM #5
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Default just got of the hospital and think i found the right answes

I was in a car crash back in Nov of 05,

sense then I been have a great deal of things in my body, that I could not even to begin to explain, and now I think it is to last to fix me due to some blank blank Dr's that kept saying there was nothing wrong with me,

when I was in the hospital one Dr there talk with me about Polyneuropathy
my symptoms are a wide wang of thing going on in my body
I have no use or feeling now in my right hand, (hope I can get it back)
it just feels like burning pain all the time and can not use it its shiny looking and will not open,

can not move my neck it is been in a lock state for almost 2 years now
with pain, running down my arm(right most) some nights I can not find them
or the pain is so bad it wakes me from the pain, wake up myself from crying
feel as someone is cutting them off, and can not move them,

I have drop foot now (right one) toes are curlying up so when I walk,(with a walker) I drag the foot get rug burn, and that foot is swelling all the time)
some pain from that, but not to bad,

I can not stand up at all no more, its like i am in a bent poster all the time
that is very pain full, and that is when my legs go out on my,, and have spaus all over, from my feet to my teeth, and over heat or got so cold
my feet look black, I do use a W/C most of the time now falling down to much with my walker,

I have black outs all the time, and can not tell if I have to use the bath room
I could not get my pee go go,or could tell if I empty my bladder and I can not have a BM at all with out help,

when I was in the Hospital and I have had Hypothyroidism and its been 100% ok up till my car crash, and never had to go up on my meds but now there was this one dr did some test and found, that my free T3 and free T4 are with in normal limits but my TSH are going up and up,
from 9.18 and 2 days later 12.98 they up my dose of
I went from being on a dose of my med of 0.5 to within 2 mouth of the crash
to .75 now its was just up again to 100mg, and this is the cause of not being able to have a BM and some of the other things going on but not all witch I know, now, I was told also just now after almost 2 years and from Dr to Dr saying there was not a thing worng with me to I have a TBI and my pituitary Gland maybe be damage, had a MRI last Sunday, hope to find out what that will show,
I was also at the Cleveland Clinic and there report was this, and what is wring with me, see below

consult to physical therapy 9032
brachial neuritis or radiculitis NOS (723.4)
cervical disc Displacement 722.0
thoracic disc degen 722.51
thoracic spondylosis 721.2
lumbosacral neuritis nos 724.4
pain in limb 729.5
abnormality of gait 781.2
visual disturbances nec 368.8
idiopath autonomic neuropathy 337.0
cervicalgia 723.1
pain in thoracic spine 724.1

but this was before going in the hospital last week, or was in 2 weeks now
but there was a nice Dr that really did linson to me and talk with me about this, Polyneuropathy due to trauma, and that my autonomic neuropathy due to my spinal cold injury and all of my spine is invalided, neuropathy; neuropathy, sensory lose and my brain and so on and everything I been feeling is REAL! the pain from this, is way above the #10 at times to where I can not take it, and no meds are going to help, well when it came time for me to leave the hospital
my Dr wanted to talk with my 23 year old girl who has been taking are of me alone and going to College well his words to here where just this

he said to her your mom is a ticking time bomb if she dose not get help and soon she is going to die or will never walk or have the use of her arms and hands again and he said that it still maybe to late for my limbs,
OMG!!
what are is this I new thing I have and why in god would no one linson to me
please anyone with any info on what this is, and what can I do to get batter
please help,
also, now I am getting home nursing and OT and PT and a bath nurse,
and I may get a pain pump put in, I just have to say to all the Dr's that said there was not a thing wrong with me, NICE WORK DR! who did linson to me, and its going to be there TAX MONEY TAKING CARE OF ME FOR LIFE
for one I plan on fighting what ever this is to live as long, and have the home nursing and OT and PT and what ever else I can get, for a very long time

any one else with this please tell me about what this is, and what am I in for?
thank you
kelly
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Old 10-12-2007, 09:24 PM #6
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I am going to echo Bobby and recommend that you get a second opinion.

What some people do not understand about spinal issues...especially DDD - (I have that in a diagnosis too) is it cannot be healed. A key term in the diagnosis is degenerative....

What you can do is learn about it, evaluate your life, your condition, your pain and start taking the steps to acceptance.

What I would do if I were you is to first talk to the doctor who is treating me. I would explain my symptoms, my pain, my life, my hardships, and his diagnosis and ask why he isn't considering surgery.
(if surgery is what you want)

Take care of yourself.

Kim
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