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Old 01-20-2012, 01:17 PM #1
vigipatrick vigipatrick is offline
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Originally Posted by Dr. Smith View Post
I don't know the answer to the last question, but I don't think it would be a good idea to conceal anything. The neuro will most likely take some kind of medical history. Be honest, open, candid... all that. If you have any questions/concerns, bring them up. Bring along any supporting documentation (what you looked up), records, questions.

It sounds like you may have been through this before, but there may be something of value by googling: neurologist first visit

Best wishes & good luck!

Doc
Well, I do appreciate your candid reply because it was exactly what was needed. I will do exactly as instructed and take into consideration the documentation as to what I will take as far as research. I believe we as patients sometimes need to wake these doctors up because they do become complacent and without a teaching facility inclusive, they forget certain issues remain pertinent and are not to remain in just textbook ideology.
Sincerely, Vigi
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Old 01-20-2012, 04:24 PM #2
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Originally Posted by vigipatrick View Post
I believe we as patients sometimes need to wake these doctors up because they do become complacent and without a teaching facility inclusive, they forget certain issues remain pertinent and are not to remain in just textbook ideology.
Well, it's not exactly like doctors just get their sheepskin and never have to hit the books again. Most states require doctors to complete a certain number of hours of continuing/supplemental education each year in order to maintain their credentials/licenses; how much can vary depending on the state and specialty.
http://en.wikipedia.org/wiki/Continu...ical_education

For more info./examples, Google: doctors continuing education

I think of my doctor/patient relationships as team efforts; we listen to and learn from each other. The thing is that, in addition to learning medicine, doctors also learn (and practice) a particular way of thinking, and it's enormously helpful if/when patients learn how their doctors think so that we're not constantly butting heads or at odds, and so we can help them help us more effectively.

HINT: There is a book entitled How Doctors Think (which I think is a good book, but it tends to predominate searches). To get around that, Google: how doctors think -groopman
The book was written by a Dr. Groopman; placing a minus(-) sign in front of his name tells Google to ignore pages that contain that word/name, which should eliminate most of the pages pertaining to that book.

I've also found it helpful to just have a conversation with a doctor to find out what kinds of documentation/evidence they prefer. Most are more open-minded than we think (or than they used to be) once we know their preferences/rules/way of thinking/doing things.

Doc
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Oh, the pain... THE PAIN...

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All opinions expressed are my own. For medical advice/opinion, consult your doctor.
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Old 01-23-2012, 11:44 PM #3
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Doc,
I do so appreciate your kind comments. I am a bit nervous, my appt is tomorrow and I have written out a letter to remind me of my symptoms and past experiences considering this has been a period of over three years. I guess my disappointment lies in the fact that this has been misdiagnosed for so long.
You are awesome to be so considerate and understanding. Compassion falls short in society now-a-days so I really do appreciate it when it's given.
Sincerely, Vigi
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Old 01-27-2012, 08:48 AM #4
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Default Hi Doc question

I need to post a question on the front page, to start a new thread. I have forgotten how to do this. Can you refresh my memory? ginnie
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Old 01-20-2012, 12:11 PM #5
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Default Welcome to all

Hello to all the new people who have found Neuro Talk. I think I counted four new souls here, and I wanted to say hello to each of you. I hope that there are solutions to the spinal leaks. I have indeed heard of this condition before. Most of what I read said that in time, this can heal. I certainly hope all of you can find a resolution for this medical issue. There will be others along to talk to you and encourage you to keep seeking stability in the leak. You all will be in my thoughts and prayers.
There is a search bar at the top of the page that has "search" on it. Type in the name of the condition, and you will find more people and information to look at. Again a warm hello to all of you. I hope there is less pain for all of you. ginnie
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Old 04-04-2012, 08:14 AM #6
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I am a 62 yr old white male with a spinal fluid leak in the right L3 region (underneath on the ventral surface of the dura and underneath the nerve root). This CSF leak resulted during spinal surgery 10-09-06 conducted in Amarillo, TX. There have been three unsuccessful attempts to repair the leak. I have typical CSF leak symptoms, headaches, exaggerated hearing, nausea, loss of energy and weight loss (normally 150, now about 135). I have undergone 60 hyperbaric treatments at Duke Medical Center (negative results for healing the tear). I am stable but would very much appreciate any help getting this repaired soon. Medical history (highlights) includes, substantial thorax radiation (13,000 rads over 8 weeks in 1972) for treatment for testicular cancer (teritoma carcinoma rt testicle, removed), radical lymph node dissection (1972), gastric bypass (1974), 7 previous surgeries for flatback syndrome, spine implants, implant failures, lumbar spinal stenosis with radiculopathy. I know,......I'm lucky to be alive. Bottom line is that I am looking for a clinic/hospital/surgeon with successful experience in repairing CSF leaks. ANY help is appreciated, on or off line (gareth847@aol.com) Thanks
I also had a leak after a tethered cord release surgery but fortunately it was found months after the surgery and repaired. However, I never had headaches which was amazing to my Dr since I am a migrain sufferer. I wish you all the luck in the world!
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Old 11-16-2012, 01:18 AM #7
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Hi Gareth, My husband had a spinal leak back in 1987. A neurosurgeon, Dr. John Raggio from Lake Charles, La is the dr who went in and fixed it. My husband did not have anymore problems with it after that. I believe he is still in practice there. He is a very good dr (he is prob the best or one of the best in that area) but does not have a good bedside manner (kind of gruffy) and also, if you are a smoker, he will not touch you. Good luck on finding a good dr. and God Bless
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Old 11-16-2012, 01:27 AM #8
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Sorry, didn't realize the date of your post lol. I am sure by now you have gotten that fixed!
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