Hello, all. I was just recently diagnosed with my second spinal leak in 7 years. With the first leak, I was in the hospital for an entire month, because doctors couldn't figure out what it was. I couldn't raise my head without throwing up. When they finally figured it out, they administered a high dose of steroids intravenously. That did the trick for almost 8 years up until a week ago. My head started hurting at work, which I didn't think much about. Halfway through my day, it became extremely difficult to sit/stand. I went home early and laid down, which immediately relieved the headache. A few days later, it still wasn't getting any better, so I decided to go to the ER. The neurologist strongly felt that it was a migraine, but after having a leak before, I knew better. I practically had to bed for an MRI, which no surprise, showed a leak. I had two blood patches done and was discharged a few hours later. I still have a headache and my neck is stiff, but not as bad as it was. I believe I may have a connective tissue disorder called Marfan Syndrome and that's why I've had two spontaneous spinal leaks. Does anyone know of any supplements that strengthen connective tissue?

Hi Mduvall, to NT.

I guess first I might ask this question on the Vitamins, Nutrients, Herbs and Supplements forum, and spend some time searching the NT archives. You could also Google: supplement connective tissue Look for credible medical sites rather than those selling supplements, e.g. http://www.umm.edu/altmed/articles/c...sue-002440.htm

We've been taking a Gluosamine/Chondroitin/MSM supplement (which is one that's supposedly good for connective tissue) for years because of a lot of hype (including some from our doctors) but recently I came across this, which is giving me reason to delve a bit deeper (and maybe save some $ on something that may be doing nothing).
http://www.quackwatch.org/01Quackery...ucosamine.html

I guess whatever you try, it shouldn't hurt to run it by your own doc/s first.

Doc

It's great to have you!
Lots of great support to be had here! And just in case you weren't aware, there is a forum here specific to CSF Leaks - might find some helpful stuff there.
Here's the shortcut link to get there:
http://neurotalk.psychcentral.com/fo...aysprune=&f=78

Caring!
Rae