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Old 11-14-2006, 04:54 PM #11
marijo marijo is offline
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marijo marijo is offline
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Join Date: Sep 2006
Location: UK
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Default I'm doing quite well

Thanks for your thoughts. Today I stayed in bed until mid-day, which for me is unheard of. I stayed up for the afternoon, and went to the babygroup with my grandchild, where myself, my daughter in law, and my best friend would have won all the christmas raffle prizes, (probably because we had bought most of the tickets, how embarrassing, ) after two, I gave the rest back for re-drawing, and still kept winning. I came away with a meal for two at a local restaurant, and a gorgeous teddy, and some bath bombs. Later a friend came around, and I had to ask him to go in the end because I was really so tired. I am needing the b'room evry half hour from about 2.pm to about 11.pm. I am ok at night, and then I wake up in awful pain and it all starts again. the thing is, the pain does not seem wholly related to my op. Just before I went into hospital, and before I knew I needed an op, (it all happened very quickly), I was trying to come off topamasx, because my neurologist was being very sniffy about it, and so was my GP. So I thought, sod it, I'll just come off it. Well I can tell you that certainly there are side effects that I have not got at the moment. But that could be down to the fact that I am leading a very quite life now. Up until recently, my neuropathy would really kick in when I had done too much, or gotten slightly overheated, (as I cant swaet very much) or become agitated for any reason. Now I have a very calm life for the present. I have only had two or three neuropathy attacks, and I have reduce the topamax right down to 200mgs a day. However, The radicular pain down left leg is suddenly almost unbearable. It wakes me up every morning, and sometimes during the night, and causes me distress during the day. Also I am up to maximum safe dose of tramadol daily, and its addictive. Well whats the damn good of that. (sorry for swearing.) where is all of this taking me. Anyway, I have my follow up two weeks before Christmas. Of course its the day after husband goes back to Denmark. I'm not driving, so will have to catch the train over. Just hope bowels have settled by then. I will have to try and get a humerous slant on all of this somehow.
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Old 11-14-2006, 06:12 PM #12
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Doody Doody is offline
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I'm very humbled by your problems ((Marijo)) and everyone else who posted here. And very embarrassed to complain about my petty problems compared to your's!

Take good care of yourself.
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