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Old 07-31-2008, 10:57 AM #1
colleen colleen is offline
Junior Member
 
Join Date: Jun 2008
Posts: 25
15 yr Member
colleen colleen is offline
Junior Member
 
Join Date: Jun 2008
Posts: 25
15 yr Member
Default Told I need ACDF C5-6 ... new to this diagnosis

Hello. I have vascular/neurological Thoracic Outlet Syndrom and now it appears I also need a discectomy and my symptoms can be compared to a multiple-crush type issue where I have symptoms from both the bad disk and TOS affecting the same areas.

I have read and read about TOS but the disk thing is a new variable I am clueless about. If I hadn't TOLD my orthopedic that my vascular surgeon wants a cervical mri, I'd still be clueless. At my first visit with the neurosurgeon for my TOS, he blew off my disk issue and said "everyone has bad disks". I had my second visit today and asked him to re-consider my MRI/disk and now that he actually LOOKED at my MRI, he has changed his recommendation from treat TOS first to treat Disk first.

At my C5-6, the MRI results reads:
  • moderate degenerative changes at c5-6 with loss of disk height and degenerative spurring
  • Moderate sized broad-based central and right sided disk protrusion and spurring.
  • Spurring is extending into the right neural foramen causing moderate right foraminal compromise.
  • Mild impression noted on the thecal sack but no definite cord compression seen
Other cervical disks:
  • mild anterior bulging and bone spurring on c4-5 and 6-7

Is this something that they would immediatly recommend surgery as the only/best treatment option? This surgeon didn't really talk nonsurgical treatment since I've had this pain for a year and it has been progressively increasing during that time. My neck pain is pretty severe. I look like the pictures in the surgery brochure the dr gave me where I walk around/sit holding my neck. I work on a computer all day and by the time I get off work it hurts to hold my head up and bumps in the road hurt. Hurts to hold a phone to my ear... basically to move my neck in any manner. I've been on flexeril & NSAIDs for my TOS for about 2 months now. My muscle tension in neck/shoulders is a little less now, but the bones in my neck seem to hurt more.

I asked about epidural steroid injections and he said those are not without their own risks and pretty much dismissed that and recommended the ACDF.

Is this normal for this type of disk problem? Is finding a good surgeon (i assume neurosurgeon??) to do this difficult? I'd say that finding a TOS doctor is like a trip to hell, but atm I think I'd rather take a trip through hell than deal with TOS doctors anymore.
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