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Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems. |
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11-06-2006, 09:34 PM | #1 | ||
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after a long battle i was finally given the bitter sweet diagnosis of Syringomyelia....the only option is surgery...i'll take all of the information i can get at this point...the best surgeons, the procedure, the after math, etc.etc.etc.etc.
thanks! |
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11-06-2006, 10:07 PM | #2 | |||
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I do not have much to offer, but to say I am so sorry that you have this problem....I will keep you in my prayers.
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4/06 - Lumbar Fusion - L1, L2, L3, L4, L5, S1 Anterior with cages and Posterior with rods and screws. 8/17/05 - Cervical Fusion - C4-5, 5-6, 6-7 - Anterior and Posterior Fusion with plate in front and rods and screws in the rear - Corpectomy at C-4 and C-5 and microdisectomy at C6-7. 1/4/05 - Lumbar Laminectomy -L3, L4, L5, S1, S2 Obliteration of Tarlov Cyst at S2. Failed surgery! |
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11-07-2006, 01:10 PM | #3 | |||
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Hi Northend, I also have syringo, I was diagnosed about 3 years ago. There are others here also and there is a syringo spot here although not much traffic there. I am not sure if I can share a web site and if it is a no no mods please let me know. It is www.asap.org There is tons of info there plus a support board also. Hope to see you there...SUe
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. Everyone is born, but not everyone is born the same. Some will grow to be butchers, or bakers, or candlestick makers. Some will only be really good at making Jell-O salad. One way or another, though, every human being is unique, for better or for worse. - Narrator (From the movie Matilda) |
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11-07-2006, 10:42 PM | #4 | ||
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Hi Northend,
I can't help you but also wanted to say how sorry I am that you have gotten this diagnosis. I hope things will work out for you. Sending lot's of hugs! ((((((((((((((((((((((((((((((((((((Northend)))))) ))))))))))))))))))))))))))) Linda |
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03-19-2009, 11:10 AM | #5 | ||
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hi had a mri and they think its syringomyelia ( got some of the symtoms ) anyway i looked up vitimin b12 deficiency and syringomyelia and their is a link and people have got better without surgery -i aint a doctor by the way - the usual b12 blood test is flawed do a urinary mma before b12 treatment . i have just started b12 -the health food ones are no good you need methylcoblamin . |
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03-24-2009, 07:49 PM | #6 | ||
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Hey I also have syringomyelia, I know kinda how it feels it sucks. Did the say what kind of surgery. I know the one my doctor was talking about is they would insert a tube into the cyst and it would drain into my lung..it's risky though because it deals with the spinal cord..Thankfully my cyst isin't growing so no surgery yet.If it starts growing then I'll have to have it.
Also I don't know if it's just me or I've noticed stress causes me alot of pain and more symptoms.. talk to your doctor see what kinda surgery they're looking into and if the cyst is growing good luck and don't leave it to long if you think it's a new symptom go to a doctor..Because the cyst can get to big where surgery's not even a option. I don't know if this helps at all |
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02-03-2010, 11:40 AM | #7 | ||
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The best Doctors are at the Chiari Institute on Long Island, Ny. and in Chicago ,Il. Dr. Frim is in Chicago and the Dr.'s at The Chiari Institute are the best in the country. Personally wouldn't send people any where else. Elf Queen |
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02-04-2010, 11:19 PM | #8 | ||
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