Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 02-08-2010, 11:13 PM #1
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Laugh So glad to see SCS talk!

I'm very thrilled that a new forum has just been created specifically for SCS and Pain Pumps. !
It's at the very top of this forum in the "Stickies", or, on the Forum main menu it is listed under "Medications".

Please go there to share your updated experiences/advice/opinions/questions ! Alot of new members are coming to the board looking for this info.

Also, there is a poll. I really want to cast my vote but I don't have my SCS in YET !!

see you there!!
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Old 03-03-2010, 02:08 PM #2
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Hello Jonnyrocket,
I'm considering getting the SCS inplant. I have not tried the trial part yet of the SCS. I'm very concerned with my scare tissue as well. My first surgery left me with a lot of scare tissue. Its wrapped around my nerve. My doctor tells me that there is nothing they can do about it. If they were to clean the scare tissue it would come back twice as bad. I dont really want to go threw all that if my scare tissue is so bad. I have a lot of lower back pain as well as nerve pain. What do you think?
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Old 02-11-2007, 11:39 PM #3
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Harry, I'm very sorry for your experience, but talk and demand answers from your doctor; it's your right.
I am new to this site and I'm glad I came to it. Your bad experience is good for me in the sense that I have been scheduled for an SCS implant as "last resource" for terrible, uncontrolable "permanent neuropathic" pain as a result of post- laminectomy syndrome. I have been doing some research on the 3 different systems and Bionics seems to be the best. Nonetheless, I am not still convinced that a device that has to be implanted in your deep tissue will not cause situations like yours (rejection to a foreign body). The location of your stim may be playing a part on your disconfort. I have good lines of communication with my pain specialist and he knows that I will do, am doing, research for anything that is going in my body. I had a very bad experience with my laminectomy on the hands of the director and top national ortho surgeon (80 chapters and 15 books on spinal surgery and more than 140 articles,; I walked to the OR and came out with my left side(from the waist down) paralized and a very weak right side, with constant and permanent neurological pain. My personal and professional life was completely changed. I believe that my pain doctor may have an answer and probable solution for you. Good luck and please feel better, but demand answers.
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Old 03-03-2007, 09:03 AM #4
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Default Amazing success for me...anyone else?

I had the med-tronic spinal cord implant procedures done at the beginning of November 2006. My original injury was a result of an accident where I fractured my L5 and suffered three herniated discs at L3-L4, L4-L5 and L5-S1. After 7 surgeries I was still in a great deal of pain, taking 80-100 mg of oxycontin a day. After the surgery I described to my wife that the sensation was similar to being able to turn off the worst headache with a TV. remote. I hated being on drugs all the time because I felt that I was living in a fog. It has been 4 months now and the only problem that I have is pain where the wires come out of muscles in my back and snake around under the skin to the battery, which is located just under my left rib cage. At times it feels like someone is stabbing me in the back with a pencil. However, this is nothing compared to the pain I use to deal with. I am happy to announce that I only take Tylenol for my aches and pains. The fog has been lifted. My neurosurgeon told me that it will take time for the body to adjust to the foreign objects and to give it time. He also indicated that, for him, there appears to be a correlation between using this implant on patients who suffered trauma compared to people suffering pain as a result of degenerative disc disease. It makes sense to me because if your back parts have progressively gotten worse, who is to say that the implant would make it stop? What’s people’s opinion on this? rcs_kingston@yahoo.ca
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Old 02-29-2008, 07:28 AM #5
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Default The Help of a Spinal Stimulator

My name is Sherry. I had a spinal stimulator implant 12/12/2007. I love it it has given me 90 percent of my freedom back. After being in pain since 1989.
I had back surgery in 1989 one disc deteriated had one disc taken out, a fusion that didn't take. I have disc problems, deformity of the spinal cord, & spinal nerve root damage, fibromyglia, sleep apnea, TMJ, Reflex Sympathic Destrophy in my right foot, also got RSD in my left knee after having a knee replacement February 7, 2007. I feel for anyone who has to deal with pain. I would tell someone with pain how good I feel now.
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Old 06-16-2008, 08:22 AM #6
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Default Eon Mini

I have the new ANS system (Eon Mini). The battery in my back is the smallest on the market (about 1/2 dollar).
I have some soreness where the battery is, but the trial was more painful to me.
Good Luck.
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Old 01-30-2010, 04:39 PM #7
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I had a medtronics stim placed in April09. I had to have the generator moved in Oct.09 and it is still giving me pain around that area and is protruding out. If I can not find a more comfortable place for it I think I will have to have it removed.
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Old 10-08-2010, 11:55 AM #8
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[QUOTE=Harry;51313]I had an Advanced Bionics spinal cord stimulator implanted two weeks ago. The system helps the nerve pain but I am experiencing severe pain around the implant pocket. Has anyone had similar experiences? Please comment.
Thank you.[/back, Hi im roxie im having same pain im 5 weeks post surgery, they said it was normal,how is your recovery, it was more pain full then i thought it would be. my stiulater still is not hitting my pain, they told me it may take several adjustments, how was it for u.
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Old 10-08-2010, 12:01 PM #9
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Hello Roxie, and welcome to NeuroTalk!

We have a specific forum for spinal devices SCS and pain pumps.

This is the link to it.
http://neurotalk.psychcentral.com/forum118.html

You might want to go there and read and post questions and get some needed support.
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