Originally Posted by doxiemama

Hi Tom,

I hope you get a diagnosis soon. I guess I was lucky, it only took 5 months for me to get a diagnosis and I got on MS meds right away. I had a spinal tap too, but again, I was lucky, it didn't hurt either. Neurontin never helped. The only side effect I've had with the Lyrica was in my mouth. I felt like the skin in the inside of my mouth was getting stuck in between my teeth. I always wanted to floss. According to my dental hygienist, it was from the Lyrica, and told me to chew sugarless gum. Orbit Mist (my son found it for me) is wonderful and is especially for dry mouth. My neurologist prescribed the Lyrica, Cymbalta (which is also an anti-depressant) and Elavil (which is also an anti-depressant). My Pain Specialist agreed with my neurologist on my course of treatment. The oxycontin does help a little. But it is a opiate and makes me feel spacy, so I don't like to take it. Nucynta is also an opiate. My comment on the diagnosis of secondary multiple sclerosis is that it really doesn't change my treatment and since I am steadily getting worse and multiple sclerosis is a degenerative disease, having them say it is secondary ms doesn't really make a difference. By the way, a cane and a walker helps the fatigue and the pain. Doesn't make it go away, but every little bit helps. That's why they were invented.

I just lost my second wind, so I'm going to relax and hopefully finish the book I've been reading before I forget what the book is about.

Good night.

Doxie