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04-09-2016, 07:55 AM | #251 | ||
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Member
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Hi guys...
Now I'm freaking out again. I feel like my life is collapsing again. The blood and urine tests came back normal. I'm panicking as I'm typing this. I just don't understand. My therapist ****ing says my symptoms are too strong to be physical, but all the blood tests come back normal. NOTHING shows. Someone help. I still have this depersonalization feeling but NOTHING is showing I've had all sorts of tests done and now the copper shows normal... Am I going crazy? Is this god telling me my life is over? I'm crying so hard and I just don't know what to do. Help.... please... |
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04-09-2016, 10:37 AM | #252 | |||
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Senior Member
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Quote:
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04-10-2016, 12:56 PM | #253 | ||
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Member
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Thanks barbo for the reply, I just don't know what to do anymore. I feel like I'm back at square one. My pediatrician is sending me to another neurologist for a second opinion. If he or she finds nothing then I guarantee my suicidal thoughts would be stronger again. I feel like I should just be dead... |
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04-10-2016, 01:06 PM | #254 | |||
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Senior Member
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Hi Sam,
I know it is so frustrating when you want answers and none are forthcoming. That is sadly the case sometimes. If the new neurologist doesn't find anything please take it as a positive thing. I would not feel happy for you if they found something that couldn't be treated for example. You haven't been on the lexapro very long. Positive changes in neurotransmitter levels take a number of weeks to occur. Ask your doctor how many weeks you need to take this med to see improvement. It could be 4-6 weeks is expected. After that if it isn't working you may need to increase the dose or try something else. Hang in there Sam!
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Littlepaw Shine Your Bright Light |
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04-10-2016, 11:51 PM | #255 | |||
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Wisest Elder Ever
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hi sam
I am sorry this is so hard for you right now. IT HAS TO BE FRUSTRATING when you are seeing so many doctors and still feel you don't know what is going on for sure. yes you will have to give the antidepressants time to work. Do you have anything for anxiety? (((((HUGS))))) bizi
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. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
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04-11-2016, 07:04 AM | #256 | |||
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Grand Magnate
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It doesn't matter how old or young we are
I understand what You are going through WE always need somebody who is listening And Sam Look how many of Us are listening I for one have gone through exactly what You are going through right now Please do Not give up Sam I am not one to say or write anything that hasn't happened to me And let me tell you It has been a Hell of a ride with doctors in my life You are feeling what you are I know Because my doctors aren't listening to me But like you I did Not give up Nobody was going to tell me what I was Feeling or not No doctor was going to push another pill my way Without doing intensive homework I may be much older than you I am fifty five I remember things at the age of two So I am told Way to much to explain why I mention I point I am trying to make I knew at an early age what was the truth And it hurt nobody believed me Not even my own Mother If I read correctly Your hardcore support is your family Am I right or wrong This I ask you Because if you do have somebody who is LISTENING And beleive in You You have nothing to worry about Yes someone has to get to the bottom of things Look I just not to long ago being tested how my coagulation is doing Because what going on with the veins in my hands and feet None of my doctors heard of anything like my PICTURES HAVE TO SHOW AND THE WORD OF MY YOUNGEST who lives with me and Because of this extensive bloodwork "I" Not my doctors And because I want to know what my tests revealed "I" came across a mutation I have I was born with it It is called the "MTHFR DNA MUTATION POSITIVE FOR ONE OF THE TWO (VARIENTS) TESTED ALONG WITH A HIGH LEVEL HOMOGENOUS " YOU READ RIGHT well the next thing you know Not that this is what I suggest You do But after being with my phycotheripist for seven plus years to help me with my deepening depression And putting me on this that and the other and the other and the other for some odd reason my body REJECTES so many medicines It took forever for my body to find the right pain pill To JUST MASK MY PAIN As nothing turned out as expected I have no control over that But to live with the doctors I put my life into THEIR HANDS and to be failed over and over again Was enough I am not a stupid person Enough was enough I was even lied to by a few of my doctors In the end I have come to learn so many negative things about him when I began to learn about my mutation to the extent I am still not done learning It seems like in my case The missing folate DID ADDRESS my DEPRESSION that became very serious What made it worse for me was the drug you are on I am by "no means" suggesting you not try the antidepressant But look what happened to me Because of my mutation Any I mean Any antidepressants I was on I was not getting any benefits form them WHY BECAUSE of this mutation It has been suggested Anybody who is on antidepressants And have TRIED slew of them In the time with him Ironically I stopped all antidepressants before finding out that this mutation hinders the effectiveness to zero And recommended to stay on the antidepressant And to start taking the missing FOLATE I WAS DEPLEATED OF and know more than fifty Hear that More than FIFTY PERCENT OF THE POPULATION HAS IT it could have saved me of many things that has gone array with this body because of this Missing link Turns out only one of my four children has gotten tested I am estranged from them But did manage to get the information to them And like I was saying one has tested positive already She suffered many things that the missing folate will do along with other nutrients Another very important one B12 B2 B6 magnesium TMG fish oil I think you get the picture So upon doind EXTENTIVE HOMEWORK "I" decided to take charge And begun the introduction of my missing LINK and guess what I began to feel better I was afraid Me As some who have really gotten to know me Was AFRAID to post that I began to FEEL BETTER IN JUST THREE DAYS I WAS AFRAID I WOULD BE LOOKED UPON AS A NUT A HYPOCHONDRIAC IT BE PSYCHOSOMATIC YOU UNDERSTAND THIS MUCH I KNOW FOR SURE In reguards to this horrible depression I was in for three years I started with the Lexepro And continued to get worse And here while I lived in this deep dark abyss I continued therapy with my shrink I had much time vested in him I did not want to start all over again And said to myself Once he goes that's it I'm done with the umpteen shrinks I have seen throughout my lifetime In the very end I fired him He thought I did not know what I was talking about He did not go to bat for me with the insurance company Well it did not sit well with him It was bothering him He tried to call me twice After getting home On the third call I picked up You know Sam When You express EXACTLY what it is you are feeling Or how it is Your brain is feeling and effecting other areas in your life JUST LIKE MINE my point here I HEAR YOU I beleive in what you explain It too was difficult for me to express to my shrink It is so deep (talking about my depression) that It too also manifested in a PHYSICAL WAY I DO NOT HAVE THAT VISIT FROM DOOM FIRST THING I STIR IN THE MORNING AND have been trying to fight it off with no luck And then there was the root cause of "IT" I was in disbelief But because I share my experience strength of which You have a lot of and Hope Hope I may help someone else understand they are NOT ALONE We are listening This you must See We care very much about You and the years ahead of you You cannot see it But you are a strong Brave person Who deserves to have someone in his life who believes in what only you know you are going through ONLY YOU KNOW WHAT HAS CHANGED AFTER THE FALL remembering it emanated from then Am I correct in that There are so many of us who suffer in so many different ways Turns out my eldest who has occipital lobe epilepsy Cause idiopathic I don't think so So I just by curiosity And most importantly BECAUSE AFTER HER PARTIAL REMOVAL OF HER OCCIPITAL LOBE as this mutation causes "neural tube defects" And I found a connection Infact highly possible You need you support group May it be mom But I urge you Please do not give up I hear you I beleive you I am so proud of you You too matter Love Me Sam just wanted to add I cannot stop thinking how badly it feels as a young man Who knows His body like no other But Your creator You remind me so much of me And brought back some hard core memories Please Sam Please Don't give up the FIGHT you ARE strong in Spirit That counts for something Make no mistake We are all carried by our Creator One time or another in our lifetime With much care Me
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someone who cares eva Last edited by eva5667faliure; 04-11-2016 at 10:47 AM. |
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04-12-2016, 10:29 AM | #257 | |||
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Elder
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When we're looking for answers, every negative test result can feel like a defeat. However in the case of Wilson's Disease, the negative result is a blessing. Despite treatment, it still has the potential to lead to liver failure and can have toxic effects on the central nervous system.
Even though it's been a long time since your concussion, it is still conceivable that you have PCS and it's contributing to your symptoms. I'm glad that you are getting a second opinion from a neurologist. I know that your therapist is convinced that your symptoms are so severe that there must be a medical cause contributing to them. It's possible that she's right and there's a missing piece that hasn't surfaced or been identified that's prevented your diagnosis up to this point, but it's also possible that she's wrong. She's a therapist, not a doctor, and she may be doing you a disservice by reinforcing this idea. You did have milder anxiety and symptoms of depression prior to your concussion and mental health issues can get worse over time. In the past you made peace with the possibility that all your symptoms may be psychological and I know you are on board with treatment based on that idea. I can understand your frustration. You're not seeing any results from therapy or the lexapro yet, and a medical diagnosis can sometimes mean a quick fix which is much more desirable than waiting for a response from therapy and the right dose of psych meds. You haven't been on the lexapro for long, and you haven't mentioned an increase. It's good news that you've noticed a slight difference in your anxiety because it shows you are having some response to the med. The lexapro may just need more time and an increase(s) to cause a significant difference. Increases will be made slowly with safety in mind. Your prescriber probably recommended you schedule your next appointment giving your current dose of lexapro a chance to work in mind, but you can always contact him earlier. If you don't already have an appointment scheduled, make one. Things will get better with time, Sam. I know it must be hard waiting for answers and improvement. Please try to hang in there. Kay |
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"Thanks for this!" says: | Alffe (04-12-2016), bizi (04-12-2016), eva5667faliure (04-13-2016), PurpleFoot721 (04-12-2016), SamG11 (04-12-2016), Wren (04-12-2016) |
04-13-2016, 05:05 PM | #258 | |||
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Wisest Elder Ever
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__________________
. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
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04-18-2016, 10:34 AM | #259 | ||
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Member
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Hi guys..
Not feeling too well as I write this. For some reason my symptoms seem worse the past couple of days. Plus, I now have a mild headache for some reason. Anyway, on Friday I will be heading to another neurologist. I talked to her on the phone and she said that my symptoms definitely sound like they could be physical and that I must get an EEG test. She doesn't get why NO other doctor has made me get it in the past. She said that a EEG test measures your brain waves and her past patients that had post concussion syndrome their brain waves appear to be abnormal. So I'm pretty happy about this. If something shows on the EEG that proves I'm suffering then I would cry tears of joy. However, if she finds NOTHING at all then I'm doomed. No idea what I would do next. If you guys have any idea on what I could be suffering with, please let me know. I am desperately looking for an answer and I NEED to feel better. I'm so sick of feeling this way and am loosing hope. The light at the end of the tunnel is closing and now I just think of life as pointless.. |
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04-18-2016, 05:17 PM | #260 | |||
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Grand Magnate
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Something as simple as that Would defiantly show an abnormality But you have to hang in And not give up You have an option And you have what it takes Not to give up Love Me
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someone who cares eva |
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