I try to rest on the weekends but every time I go to rest my dad sees me and yells at me to get up and do something. He thinks I'm normal and fine. He gets mad when he sees me in my room or on the computer and not out "doing stuff".


What he doesn't realize is that I'm NOT better and NOT fine. And I don't have any friends to do stuff with. When I tell him I'm not fine and I don't feel good he gets even more angry. He does not understand why.

Could you talk to your school counselor? grandparents? siblings? It's great that you share here but you need some support in "real" life. :grouphug:

Sam,

Lack of proper communication with your dad, and anger on his part, is a real problem. I know how that can be, and more and can offer no real solution but to try to talk and compromise - not by going out but by not isolating yourself too much.

There is always benefit in writing down exactly how you are feeling, your struggles and what support you need (important) and giving copies to every family member.

Dave.

Hey Sam,

How are you doing? I was just thinking about you and am sending hugs. It's Friday!!! Do you have a three day weekend?

My son is looking very forward to the extra day off. It's nice to catch a bit of a break. I hope it is a restorative weekend.
:hug:

Hi littlepaw ! :)




I'm ok. Same as always. My mom cant get a hold of the doctors office to take a couple thyroid tests... they just don't pick up or are too busy, Very frustrating.


However, I've been going to a Acu-Presserist this whole jouney, and she knows everything. My concussion, what I think I have, etc. Basically shes a acupuncturist without the needles. Shes extremely intelligent. Yesterday, her and another doctor basically naturally tested me for all different things, (not blood, tests are based on energy and frequencies)


They both found out that I have low adrenals and low thyroid. However, It's not that easy, there not allowed to prescribe medication to treat it because I need "standard" tests to show what we found, but what they can do is give me natural mineral supplements to help thyroid function.



Hard to explain. Basically, I'm taking mineral supplements twice a day and seeing if that helps. They really believe it will.

Hang in there, Sam. You've got to MacGyver your way out of this. Keep looking for treatments for your injury and ways to solve the social situation and connect with other people. Don't let the down days keep you down.

Hi Sam,

Good to hear from you. I find that encouraging about the accupressurist. Not everyone likes acupuncture but I am a big fan, having had an excellent practitioner for a long time. Adrenal weakness is something we pretty consistently seem to be adjusting for me. The good news, the acupuncture does seem to address and balance that problem. Thyroid adjustment often requires a more western approach but maybe this new treatment will be of help.

I hope your Mom gets through to the doctor's office soon. And people think it's challenging herding cats....:rolleyes:

Keep at it Macgyver...
And have a good rest of the weekend.
:hug:

Hi guys,



Today is the 1 year anniversary since this horror all started.



This is disgusting and a trauma on its own for me. Exactly 1 year later and I still feel horrible. I feel like this has been the worst year and wasted year of my life.

Calling my main doctor today to let him know that I truely truely believe I have a thyroid and adrenal issue and I want more tests done. And that I'm NOT crazy.


Canceled the "special" thyroid test because those people can't get back to me.

I am sorry Sam that this has been a miserable year for you.
((((HUGS))))
bizi

Hi Sam,

I've been thinking of you and I'm so sorry you are still having a tough time.

I've been pretty MIA here due to my own issues so I'm sorry I have not answered you sooner.

There have been some wonderful suggestions for you written here that I hope help you.

I keep you in my thoughts and prayers every night .

You are a very special and brave young man and I commend you for coming here to try to get some answers, support and helping suggestions for you.

In my opinion, and I'm sorry I haven't read all of your posts, maybe you, your parents ,doctor and school counselor can have a meeting all together on your behalf?

I believe that your school counselor and doctor would help you by helping your parents understand what you have been dealing with physically and emotionally , and why you are feeling the way you do .

:hug:

Sam,

Sorry this has been such a difficult year. Anniversaries of traumatic events can take their toll mentally and emotionally. Try to look on this new year as one of fresh starts, one where you think you may have found a possible cause for at least some of your issues. Work on this with your Primary Doctor.

Try to keep up with improving by yourself, strengthening your Core, by following the good advice your friends here have given. Above all else, try to think positive.

Dave.

Hi Sam,
I've been away for awhile, having a down time of my own, but I've been thinking about you and hoping that your situation is getting better. Just being a teenager is tough enough sometimes even without everything you are dealing with. Just don't lose hope, OK? You are strong and you can do this.

I'm glad to hear that you have been able to talk to your accu-pressurist. Having someone to talk to helps.

Thinking of you and wishing you the best--Cheryl

Hi again everyone,



Thanks for your support and suggestions again, I truely appreciate it.


Anyway, I have another update to share for this "journey".



My mom called my primary doctor and caught him up to speed with everything. She told him how I and other doctors still believe it's a physical issue with my thyroid.


He wants me to do this diet thing where I have a lot of water, protein, fruits and vegetables and stay away from bad stuff etc, for one week, and see how I feel.
And at the end of the week, if I still don't feel better he will send me to a thyroid specialist for them to evaluate me further.



Very happy about seeing someone who specializes in thyroid, however I'm not so supportive of this diet. I've been eating pretty well ever since this all started, I don't remember the last time I've had a can of soda or fast food...


So I don't believe that just one week will "ignite my thyroid" as he said.



Also, been sorta down in the dumps lately. Been thinking about how my birthday is 5 days away and I felt this horrible feeling on my last birthday... And nothing has changed in that time. Just depressing.



I've also been starting to notice my increase in anxiety. I have so much anxiety for little things.



sorry for the long post. Just have a lot to say

Hey Sam,

Eating healthy is never a bad thing, I have lost a ton of weight and got my blood sugar under control after falling and busting ribs about 4 months ago, just by eating right.

It is a positive that your GP has agreed to refer you to a Specialist after this week's diet trial. Try to let that alter your mindset so you can look forward to, and enjoy, your birthday. That IS a special event at your age, I hope you can pull round to celebrate it properly. Leave your worries aside for just one day.

Dave.

Sam
 

Happy early birthday! Hang in there Sam - I know things will get better for you.

Hi everyone,



Don't know if anyone checks this thread anymore, but just wanted to give you all an update on whats going on.



So, I STILL haven't gotten treatment for my thyroid. However, my appointment is in 2 weeks.


Basically, my pedatircian is a jerk and only took 2 out of the 6 thyroid tests your suppose to take for hypothyroidism, and he just does not believe I have a thyroid issue.




I'm going to a new place in 2 weeks who apparently is one of the best places to go to if you have a undiagnosed or misdiagnosed thyroid issue.





I cant wait to go here. I will get the CORRECT thyroid tests and treatment. (Pray to god my thyroid will show up on the tests). Trying my hardest to live with this awful depersonalization until then.

Think about you often, Sam.

Shame about the first Dr, but positive news regarding this new Dr and tests in a fortnight.

Hang in there until then. Keep us informed.

Dave.

I hope you get some answers soon.

How are you feeling otherwise? Are you feeling less sad?

Hi Sam, We're still checking in!

Glad to hear you're hanging in there and making some progress in the doctor department. Good luck at your appointment.

:hug:

Thank you all for still thinking about me :) truely means a lot knowing I have somewhere to talk to people that care and support me.


Still sad about This all. Cried tonight because I am just so sick of this depersonalization feeling. And My anxiety has definetly gotten worse. I get very anxious and worried over little little things.



School is also still very difficult. Very hard to focus when you don't actually feel like your there. I also am noticing other symtomps which I believe are coming from my thyroid.... Headaches, trouble concentrating, overall "brain fog" all on top of the dreamy/depersonalization feeling.

Glad to hear your update, Sam.

I'm sorting out a hypothyroid diagnosis, too, and like you I don't much like my doctors. Kinda depressed about it.

I guess this "brain fog" thing is the thyroid. But my docs don't take me very seriously. Hope you make out great with your new docs. Let us know. :)

Hugs, Sam!
 

Hi Sam,

I haven't been around here as much due to some demands in my life.
I've done some quick reading to see how you are doing, as I can.

You are on my mind daily, as well as in my prayers.
Just checking in to catch up on your thread.
My apologies, I have read more often than writing lately.

I hope you get things sorted out soon, as well.

How was your birthday?

Anything different about the school year this year?

What do you do in your spare time?

Ready for the holidays?

Just as Lara had inquired, I too, am wondering if you are having any relief from sadness?

I hope everything will come together and your needs will be met, soon.

In the meantime, do your best to find pleasure, joy, happiness in each moment and keep the faith. I have found this approach very helpful to coping with life's frustrations. I know it's easier said than done. I am hopeful you will find answers.

:hug:
DejaVu

Hey DejaVu!



Birthday was OK. Once again, would be wonderful if I was feeling better but other than that it was good.


Now for my school and spare time... I was just going to post a new message about this. I struggle with friends. I have countless friends in school, and everyone seems to love me, but Outside of school I have no one. I always see my "friends" on social media hanging out with each other and I never get asked to come. Every time I ask a couple of these "friends" I feel comfortable with to hangout they never answer or say they can't.


This has been going on since this all started, I don't know why.


It's really depressing, but i just keep thinking as soon as I feel better and my deepersonalizaion is gone everything will get better.


Now 1 more week away. Appointments on Tuesday next week.



Ughh I don't know. Life just keeps moving and I feel like I'm stuck in the mud.

Onward and Upward!
 

Hi Sam!

I am glad your birthday went well. :D

Have you ever told your friends you feel left out and wonder if your perception is an accurate one? Others may or may not realize we feel isolated or left out, so it can be helpful to approach this by asking about their own perceptions. This may open the door to some helpful interactions and feedback.

We had a friend of our family experience a severe stroke at a young age. He is in his 30's. He has been in a rehab center for 9 months. We have been in touch some. (He is 500 miles away from us.) However, one evening, he had called and was very gentle in letting us know he feels very isolated, he is surrounded by elderly people within the rehab setting. He says everyone else goes to bed at 7 pm, they don't listen to music, etc. He shared quite a bit about what life is like for him right now. He told us how much it means to him to hear from people closer to his age. (I am older than my 30's, yet I'd felt like I was given a gift, better understanding his perspective. This helped me to understand his needs.) It was all in his approach. I would have listened if he had called in an angry state, however, he had spoken calmly from his heart, explaining what this is like for him -- and everyone has benefitted from his approach. :D

When some people are experiencing depersonalization, it can be helpful to have more interactions, as the interactions are often more grounding than not.

Have you heard of "grounding exercises or techniques?"

There are many types of grounding techniques/exercises.
An internet search will show so very many.

We are all walking along beside you, Sam, cheering you onward and upward!

You have been exceptionally patient. You are so very mature in many ways.

I remain very hopeful you will find answers and relief.

:hug:
DejaVu

Hi everyone!



So I went to the appointment Tuesday, and it went OK. The reason I dont say good is because I was hoping to leave the appointment feeling better or KNOWING im going to feel better, (I'll explain lol).



Anyway, I went to the appointment and this place is for healing illnesses where you cant seem to get a diagnoses/treatment for at a regular doctors office, or you have some mysterious illness that you just cant seem to figure out. It's a completely natural, alternative sort of medicine.




The lady I had an appointment with was very nice. I explained to her EVERYTHING. All my knowledge and what I believe I have, my story, etc. She definitely thinks that there's a problem with my endocrine system! However, she THINKS. I took more extensive thyroid tests, and they also tested me for some other things.


I'm praying that something shows on these results. However, if it doesent she said that she believes my adrenals could be fatigued, causing my hole endocrine system to be out of wack . She also explained how the concussion most definitely could have made the hypothalamus and pituitary gland work less properly, causing all my problems.




It's going to take a couple weeks for these results. ugh, every single day I have the thought of "what if nothing shows? What if they cant find anything?" . I don't know, I just really really hope I feel better. I CANNOT deal with this dream like state anymore. I just cant...

That sounds like a decent start. It will be interesting to see what these further thyroid tests show. I have heard of adrenal fatigue. That should be interesting, too.

Happy Thanksgiving, pal. Let's see if we can make it to Christmas, shall we? :)

Sounds like positive steps forward to me, Sam. I have to wait about a fortnight for results of a CT Scan on my liver and abdomen - bad liver Bloods - so we can wait and get stressed out together:D

Dave.

(((((( Sam ))))))
 

Hi Sam! :D

I am checking in briefly.
I have sent you a response on PM.
I will try to respond further as soon as I can do so.

We are all here for you! :D
I know the forum has been a little slower lately.
Lots going on for people. ;) Myself included.

YOU, Sam, are very important to all of us!

If you ever need immediate assistance/advice/feedback, and feel this forum is too slow for your needs at any given time, one of the sites/contacts I recommend for young people is:

http://www.boystown.org/hotline

Maybe take a look and see what you think?
They have a hotline, a chat, etc.
You might find something like this helpful, in addition to this NeuroTalk forum?

Sam, KNOW we all LOVE you and CARE SO VERY MUCH about you! :grouphug:

Keep on reaching out!

I will be checking in again as soon as I can do so!

Much Hope, Love and Admiration for you, Sam!

:grouphug:
DejaVu

Hi Sam,

Just checking in. How are you doing? How was your holiday break? Did you get any news?

Your adrenal statement made me wonder, forgive me if you have mentioned this already, if you have tried any alternative therapies? I ask because although western medicine is good for many things, there are some things that respond well to other types of treatment. I have gone to an acupuncturist for a long time and addressing endocrine and adrenal issues is one of the things that we tend to work on. Perhaps the wellness center has someone who does this if you are interested and your parents don't think acupuncture is totally wacky. ;)

I hope you are doing alright. We are thinking of you and carrying you in our hearts.
:hug:

Hi Sam,

I agree with Littlepaw about looking into Acupuncture, but I would suggest finding an Eastern Practitioner for preference. Acupuncture has been shown to have physical effect on the body and can be beneficial for stress relief.

I take it that, as with me, your test results are due back soon. It has been a loooong wait! Hopefully, we will both have good news by this time next week.

Hang in there,

Dave.

Dear Sam
I a fifty four year young woman
A mother of four grown children
I just introduced a family that did
have troubling times
It affected my son to the core
I was called "big bird"
Because I was one of two girls that were the tallest
of all our classmates
It was so difficult coming into a country
Starting school and not have anybody understand me
or what I was saying
this started in kindergarten
Im so glad I could be in a situation with my kids and help them
to empower themselves
And I am TRUELY so sorry it is happening to you

But I want to ask you a very important question
And I understand your a kid that SHOULD BE HAVING
FUN WITH HIS CLASSMATES

do you really want to hang with that crowed of people who
rather not deal with a young man having some struggles
Stigmas a poopy thing
You find those who have compassion
You find those
who are interested in the real you
And not forget you are still a human being
Who is trying to find his places I this cruel world
of NEGITIVE people
You know how to remove
that kind of stuff in your life
And don't look back

YOU are a polite extremely articulate
thaughtful young man
Who has the world ahead of yourself
once your doctors figure out
What's up

You stay strong
And keep sharing
Love
Me

Hi guys!


Thanks again SO MUCh for being here for me. Cannot stress enough how much it means to me :D!


No results yet , most likely getting them back tomorrow.

Today I took some more lab tests! This time, for my adrenals. Like I mentioned before these symtomps are most likely from something being wrong with my endocrine system. Thyroid labs on there way, and today I took 2 tests.



1, which is an ACTH test.

2, which is a Cortisol test.



Both are for measuring the amount of cortisol and to see whats going on with my adrenals.



And for those who have mentioned, I've been going to a Acu-Pressurist ever since this all started. Basically acupuncture without the needles. It's called the "Brain integration therapy" .




Cannot wait to get all these labs back, have a great feeling that somethings going to show on them!

Hi Sam,

The way you are coming across in your words and phrasing 'sounds' far more positive:) I do hope you get answers from these tests, but just the prospect (combined with the acupressure?) seems to be doing wonders for your mindset. Don't get me wrong, I know the underlying problems are still there and need addressing and resolving, but you seem better able to cope with this level of help.

Well done!

Dave.

I was told that adrenals and thyroid go hand in hand usually. so if your adrenals are depressed then your thyroid will show symptoms as well.
How good is your diet?
are you eating clean?
This is so important in helping adrenal fatigue. There are supplements to take to help rebuild yourself up.
rooting for you.
bizi

Most have been there too.
 

Chronic pain isn't considered as nearly (or properly treated) as seriously as it should be IMHO.
Most everyone that has suffered severely for a very long period of time has had the same thoughts cross their mind, tried and failed, or felt that moment of truth and stopped.
There have been times when I myself have came down to the wire, the two main reasons that the job wasn't completed may sound silly to some.
I have four grown children and six grandchildren, I Pray that they never have to understand life with CP.
Personally them remembering that I chose to end my life over something that they don't understand would break their heart.
A good friend of mine was hit head on by a drunk driver and left quadriplegic, for thirteen years he slowly deteriorated until he passed.
Things can get very tough at times, yet somewhere out there someone is in far worse condition than I am and most likely you are.
For far too many years I have fought severe pain, I may never actually "win", but I will not surrender either.
Hang in there, when you reach the end of your rope, tie a knot and hang on tight.
When it seems like the world would be a better place without you..... ask yourself the question, do my family and friends, the people that love me feel the same way ?.
Deep down we all know the answer.
Maybe I am a little different, a smile, hug, or "I love you" makes what life I do have left worth any pain that I could ever suffer.

so beautifully said
thank you

Yes! If your adrenals are off, so is your thyroid. If your thyroid is off, so can your adrenals. If anything is not working correctly in the endocrine system, it normally throws something else off.



I have been taking supplements that are suppose to "reboot" your HPA Axis (Hypothalmic pituitary adrenal axis) ! Been taking them for about 4 days now, if I see any results they would be after a few weeks.

http://www.curezone.org/forums/fm.asp?i=1865493

^ A link to what I'm taking :)



And I have also been more positive as others have mentioned, I really feel I'm getting close to finding the answer, just a matter of time. (At least I hope!)


My diet is pretty good, I've cut out fast food and sodas and all that stuff because they make me feel worse.

Sam, who did you hang out with before you suffered your traumatic head injury? Those people are still your friends. Also, Sam, I have a question.
Have you tried prayer? My nephew who was sent to prison when he was only about 19 learned how to pray in prison. There are many kinds of prayer, some are slow, gentle forms of prayer like contemplating your healing process while in the presence of God. Other forms of prayer are reading a little of the Bible and then asking God to open up the verse for you. Of course, you may always pray to ask God to help you get through the day, and heal properly from your injury.

Prayer will help you feel like you have someone to turn to.

I hanged out with multiple "clicks"/groups of kids prior to the injury. I always bounced around trying to find true friends.

Now, those kids dont really want to hang with me. They are sorta nice to me in school, but only when I'm the last one to turn to. If they see any one of there other friends, they will immediately turn there backs, ignore me, and start talking to them. So Obviously, there not real friends, and I'm treated like dirt.




When I ask them to hang out they either never respond to there texts or make up some fake excuse.



I've tried everything, and right now, I'm focused on getting healed. I honestly gave up, and if these people dont like me for me I wont even bother with them. And every time I think of it, it only makes me more depressed and angry.



I've been praying to god every once in a while. It helps a little when I'm feeling down

Sam,

Your focus is where it should be right now. Fake friends are mere chaff in the wind, true friendships will appear and develop in time - and you have plenty of that. Maybe when your peers have an outlook as mature as yours?

Certainly never let other's unthinking actions affect your Mood.

Dave.