Originally Posted by Beeman (Post 1176851)

You are not alone. I am a retired p.a. I have found personally there is only one thing worse to live with. Foe me it was very severe Tinnitus i.e. Ringing in the ears so bad that I could feel the hair cells in my ear vibrate for 5&1/2 yrs. But this Neuropathy is not nearly as bad. Hang in there a little longer. I cured my own Tinnitus while being told all along (you just have to learn to live with it) Being a p.a. & working in the Medical field. Don't give up just yet. But I must admit there are a lot of times I think of it to. Just be strong if you can.

Originally Posted by Cheryl1818 (Post 1179013)

Hi Dancinglady,
I was given a diagnosis of trigeminal neuralgia three years ago and I was so upset that I went to the store, bought beer and cigarettes and stayed home all afternoon by myself drinking and smoking and googling. The googling made me even more upset, especially when I learned that I had something with the nickname "suicide disease."

Because of this condition, I have pain every day, being able to work has become a huge struggle for me, I can't listen to music or read books (two things I used to LOVE), my marriage is falling apart, I've spent thousands of dollars on medical care and my brain doesn't work as well as it used to because of the medications I take.

BUT...Most of the doctors I've seen these past three years have seemed genuinely concerned and have done many things to help me get better. Even though I still have pain every day, it is at a more manageable level than it was. And I have people in my life who care and try to understand. Sometimes I write their names on a scrap of paper and carry it around in my pocket all day when I feel like I need a reason to stick around.

I hope you have people to lean on and concerned doctors to help you. There are things they can do to make you feel better. Sometimes it takes a frustrating long time, but I feel that you will find something that works for you.

And whenever you need to vent or a shoulder to cry on, come to this forum. This is the most wonderful, supportive group of people on Earth.



Wishing the best for you--Cheryl

Originally Posted by tied (Post 1199862)

Sometimes the biggest burden I carry from my own pain is my own reaction of feeling so sad about things I had to give up. It is very scary to have things going wrong and to not have answers too. Keep learning and with knowledge you can make it. Also keep up with other interests so you don't have to dwell on it. Keep living because even with hardship life is a wonderful gift.:grouphug: