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09-05-2015, 05:49 PM | #1 | |||
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Senior Member
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Hi Dancinglady,
Again, welcome to NeuroTalk. I think any member having experienced severe and chronic pain can empathize with your concerns. The cross-section of people with neuropathies and/or neuropathic pain, as seen here on NT, is a very small segment of the estimated totals. "The American Chronic Pain Association estimates that more than 15 million people in the U.S. and Europe have some degree of neuropathic pain. More than two out of every 100 persons are estimated to have peripheral neuropathy; the incidence rises to eight in every 100 people for people aged 55 or older. (1) " http://www.neuromodulation.com/fact_...ral_neuropathy Thus, you may not be getting a completely clear picture of neuropathy for the majority. I know of many people with various degrees of neuropathy. Some have minor discomfort. Some are fortunate enough to figure out a cause and eliminate the cause. Some have cases which seem to simply go away. For many, the experience changes over time. Some have had years when they could not wear shoes due to the severity of pain; yet, find out they can wear shoes without a problem several months or a year later, etc. With any ultra-challenging and severely painful life changes (whether physical or psychological pain), we are often challenged to make a decision to live for today, each and every day. Sometimes, we choose to live life hour-by-hour. I have gotten through the past 30+ years using this method of committing to getting through the hour, or committing to getting through the day. When I am stronger, I can commit to getting through the week. My experience with pain and complications is maybe more challenging than some and definitely less challenging than others' experiences. Yet, each person's own level of pain is significant and is the challenge given to each one of us. I definitely do not want to diminish your pain and your fear about your future. Your pain, your fear, your sense of overwhelm is all real. I am very concerned about you. We cannot know our own future based upon the accounts of others. In thinking about out futures, it's helpful (and not impractical) to leave room for healing, for discoveries, for changes which affect each of us in a helpful, healing way. Many challenging physical conditions are brought about by multiple co-occurring factors. Since they are often multifactorial, there is a chance of discovering and changing some, if not all, of the contributing factors. When I am deeply depressed by my own challenges and related pain, I find it difficult to read about the pain of others. I cannot frequent forums or places where others speak of the depth of their pain. When I am less depressed, less anxious about my own path, I can more easily tolerate openly listening to, and tolerating, the pain expressed by others. Your current feelings are "normal" for what you are experiencing. We are each multi-layered individuals. We do best when we attend to ourselves on all levels -- physical, emotional, spiritual. I often need to pay attention to physical challenges, psychological challenges and/or mood and to spiritual challenges. As I attend to each aspect of my Being, I find greater harmony within, on all levels, in every aspect. It is then that Joy and Hope again override any sense of challenges (or pain/fear). It's important to have support, as well. Sometimes, things just feel too overwhelming and we need to hear an encouraging word from someone else, someone important to us. Do you have support? Dancinglady, I am very sorry for your pain; yet, I am glad you are here with us and are sharing your concerns openly. I have found it critical for me to learn self-compassion. I hope you also come to a place of self-compassion, realizing your worth and your important role here in this lifetime, despite any challenges presenting to you. I hope we can support you now in your finding a way for you to continue on your life path. Please keep on sharing with us. We are all here to learn from one another, to support one another, to love one another. Offering Love and Prayers, DejaVu |
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"Thanks for this!" says: | Alffe (09-06-2015), barbo (09-06-2015), bluesfan (09-05-2015), dancinglady (09-09-2015), EnglishDave (09-06-2015), Enna70 (09-06-2015), eva5667faliure (09-06-2015), ger715 (09-12-2015), Hopeless (09-05-2015), Littlepaw (09-06-2015), Mark56 (09-05-2015), mrsD (09-06-2015), Wren (09-05-2015) |
09-05-2015, 11:15 PM | #2 | ||
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Senior Member
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There were some comments that REALLY struck me as profound. The entire post was wonderful but I would like to highlight a few comments that I wish I had been able to convey.
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"Thanks for this!" says: | Alffe (09-06-2015), barbo (09-06-2015), bluesfan (09-07-2015), dancinglady (09-09-2015), DejaVu (09-06-2015), EnglishDave (09-06-2015), Enna70 (09-06-2015), eva5667faliure (09-06-2015), ger715 (09-12-2015), Littlepaw (09-06-2015), Mark56 (09-06-2015), mrsD (09-06-2015), Wren (09-06-2015) |
09-06-2015, 01:16 AM | #3 | |||
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Grand Magnate
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"Thanks for this!" says: | Alffe (09-06-2015), barbo (09-06-2015), dancinglady (09-09-2015), DejaVu (09-06-2015), EnglishDave (09-06-2015), Enna70 (09-06-2015), eva5667faliure (09-06-2015), Littlepaw (09-06-2015), Wren (09-06-2015) |
09-06-2015, 11:08 AM | #4 | |||
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Grand Magnate
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your tender expressive sweetness in your sharing your l words are heard your mindfulness a comfort you just ever so eloquently spoke of mutual experiences as only time wisdom and personal beliefs as things such as making it to the bathroom in time as my feet and hands are in such pain and then the multi factorial problems that follow to then have to raise ones head try to bend as my back is not fixable oh so two orthopedic surgeons say then i have the hope such as the pioneering doctor Kevin Tracey of neurology in NYC his non narcotic approach to healing i have a child who is an epileptic who has a VNS it to reboot the brain that a different subject back to saying thank you for sharing in addition to my existing physical pains i no longer can use a soft collar something i wear all the time after surgery number two something is going on this i know for certain Wednesday i see the pain guy i lost so much respect for ask him to have a picture taken to see whats going on we shall see bed ridden this body is in a sad frightened way knowing my body my hands must be flat when falling asleep my body contorted in the most unusual way in the end my forehead tilted ever just so on the least elevation just enough to breath again with no collar it is change again frightening as it it is here i come for the unconditional support something i do not even get from my immediate family especially when fallen into dark place once unimaginable thoughts i cannot lie daunting though my path my cross my pain my surrendering to my Father when i can do no more thank you so much for sharing love me
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someone who cares eva |
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"Thanks for this!" says: | Alffe (09-06-2015), barbo (09-06-2015), bluesfan (09-07-2015), dancinglady (09-09-2015), DejaVu (09-06-2015), EnglishDave (09-06-2015), ger715 (09-12-2015), Littlepaw (09-06-2015), Mark56 (09-06-2015), Wren (09-06-2015) |
09-06-2015, 12:38 PM | #5 | |||
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Senior Member
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Words cannot convey the huge amount of admiration and Love I hold for you. I do understand you walk an immensely challenging path. You are incredibly beautiful, in every way, and this is true even within your most challenging moments. When you write about feeling frustrated, overwhelmed, and dark moments, I feel your pain and at the same time, I see your beauty --the warm, bright light, the huge spark of Divinity which emanates from you. The ability to know when and how to surrender is important to finding any level of healing, as well as critical to creating moments of Peace. I read and re-read, further pondering your posts, as you are a gift unto all of us. I have much to learn from you and from all you share. We are all One in the Spirit. We gather together to share our pain, our fears, our anxieties, our Joys, our Hopes, our Triumphs... and so much more. We gather together to support one another within the unity of this compassionate community. Many of us are truly "family" to one another, often a stronger and healthier family (in many ways) than the families we were born into. Every member plays a very important role for the whole community. Such a Blessing! DejaVu |
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"Thanks for this!" says: | Alffe (09-06-2015), barbo (09-06-2015), bluesfan (09-07-2015), dancinglady (09-09-2015), EnglishDave (09-06-2015), eva5667faliure (09-06-2015), ger715 (09-12-2015), Littlepaw (09-06-2015), Mark56 (09-06-2015), Wren (09-06-2015) |
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