It seems your doctors are on the "cutting edge" in treating you.

http://www.villagevoice.com/news/073...r,77846,2.html

Warm hugs...and many prayers for improvement.

(((((BJ)))))

cutting edge is good...

try to NOT cut the cheese while they are cutting the edge...or they might cut
something off by accident...LOL

don't "cut" yourself short. Sew yourself together in your own time...

thinking of you

I know this may be cutting edge but I'm just no so sure about it. I'm so frustrated about my memory loss right now. And I read it might never come back. I didn't have a good memory before and it's scary not remembering how to get from here to there.

One day at a time dear girl....you've been to hell and back. Be patient with yourself.

BJ...My daughter had ECT and her memory has improved as time has gone one.

In the meantime - try some creative ways to remind yourself of the things you need to know....post-it notes might do the trick!

((((hugs))) Be patient with yourself!

ECT is not fun but in some cases it's the only hope. I'm not too confident I'll ever get my memory back because with or without the VNS I still might need maintenance ECTs. If anyone ever asks me if they should have them my answer would be an outright no. Your head hurts so bad and then you have to try and listen to people talking to you. You can't focus because all your thinking of is your head. So in the meantime I have to stock up on post it notes.

How is it going today BJ....are you getting a little used to it? Just wanted you to know that I'm thinking about you. It's a beautiful Fall day here in Indiana.

Alffe

I'm trying so so hard. I was turned up on Friday and I'm having a lot of strange feelings in my neck like a bee is stinging me and I've been coughing my head off. I called my pdoc about this and she hasn't gotten back yet. I'm a little down today because I'm just feeling like I've gone through all this for nothing. My memory is so bad and it's wearing me out trying to remember things. I'm just so weary in mind and body.

Weekends are so hard because everyone is out enjoying life and I'm afraid to go out in the "real" world. I've been in a safe place and it's scary going out there now.

I've been trying to keep my mind busy and been working outside in my yard which really needed me. And believe it or not, my Rose of Sharon still has about 60 buds on it yet. I planted zoysia grass over 2 years ago and I have the best grass in the neighborhood, so thick and lush and it's drought resistant.

So I'm trying to work outside and hopefully I'll crash and sleep tonight. My pdoc knows I'm having a hard time sleeping but will only give me a few pills at a time. It's a beautiful fall day here too and I'm trying to take advantage of it.

I can only imagin how difficult it must be to get used to all your new "gadgets" for lack of a better word. I'm thinking that in time you won't be so aware of it all, although it'd be difficult to ignore a bee sting!

All kidding aside I continue to keep you in my thoughts and prayers..that all you have gone thru and are continuing to go thru will bring really good results.
Of course, not this soon but hopefully you'll see progress in the near future.

My Rose of Sharon still has a few blossoms on it too...so lovely to be out in the yard today so enjoy yourself...sometimes the "real world" is over rated.

I feel like I just need to keep talking to get thru this night. My pdoc warned me about parameter changes and how it can effect you. I just wish she'd call back soon. I know the "real" world is not all it's cracked up to be, but I do have to eventually get out there and live it again. But I'm afraid. I'm afraid of the stigma attached to me being "there". I just feel like Slim Shady right now. I can't believe it's only 6:30 and it's dark almost already. I've lost most of the summer.