My surgery went well yesterday but my results from the SCS aren't what I expected. I was under the assumption that I would get a warm tingling sensation over the area I was feeling pain. My feet & legs are tingling but nothing in my hip. Since this is only day 2, maybe things will get better. Now I am very sceptical about getting the permanent one. My neighbor said the permanent one took care of her hip & leg pain. I don't know if the risk of another surgery is worth it. I am so disheartened, I don't know what to do.

((Jan)) Have you asked the doctors about this? Maybe give it a little more time. I would guess that swelling from the surgery might hinder some of the progress? Those first couple of days after a surgery are, a lot of times, not usually representative of the final outcome.

Be sure and ask your docs about it, and please do rest. Take pain meds, whatever helps you rest. Watch a good movie for me.

oh . I would say you should feel that tingling in all the areas it was or is supose to be reaching right off the bat. the stiches and around that area will be sore. but that coverage of the stim should reach all the area . this is your trail so you need to tell doc. BUT DO NOT BE DISCOURAGED!!! I dont know what type of stimulator you are trying some have paramiters that the can be adjusted . Mine is medtronics they have a few diffrent kinds of stimulators
with diffrent features that allow you to do diffrent things. I have a remote I can adjust the high low and the on and off and some of the frequence.
My leads are not secured to anything .I got my battery under left arm by bra line. (dont wear bras that much kinda small so w.t.heck)
The wires go from battery across my back to neck then leads back of head and my lower right side of jaw . when i had my trail it worked right away . how many leads do you have? Oh gees i am getting kinda "butting in" and maybe i should private message.
I would write all /everthing down. You probly are but just incase..and let the doc know what you feel about it ...how it is and isnt doing the job . they have things that can be done durring your trail peroid so you need to dump all your thoughts the goods and bads to the doc. a journal is good ya just hand it to them or call them... or both ..yeah both
dont be discouraged so soon .It is a trail and things can be tryed to fix it now , it is why they call it trail period.. try it ...make some tweeks here and there ... cus it is harder to do that once the stimulator and workings are implanted. Get good rest, get healthy foods, take vitamin , keep healthy . and dont be discouraged be strong. I have paryers for you Jan
and soft light hugs . May God be holding you in healing hands giving you strength, persistance, and controll over your pain by seeing this surgey is sucessfuly. God Bless!
PEACE
BMW

I am just crazy about you BMW!

BMW - I don't know how to use the icons but if I did I would be sending you a BIG hug. Thank you so very much for explaining some of the issues with the trial implant. It's day 3 and I'm feeling better. I even walked (using my walker) which I haven't been able to do since January. I can't even begin to explain the good feeling I had to even stand up - but walk - WOW!! And you have given me so much encouragement!

Mine SCS is made by medtronics too. The programmer I don't think spent as much time with me as I now think he should have. I don't know what some of the stuff or how exactly to use the hand held gizmo. I'm just trying out everything. How much stimulation is enough? I'm going on only as much is comfortable in my legs which is where most of it is. I can't really feel any tingling in my hip area but it must be doing something if I can walk.

Thanks again for taking the time to explain things to me and help me not to just let go.

Doody - Yes I have several things to ask the doctors before going for the permanent implant. I am trying to take it easy and remember to take baby steps first.

And yes, I will watch a good movie for you - maybe two.

Did I see right? Did someone mention brain implants? I have brain implants.....no, not implanted brains. Can you believe I passed the psych test? I mentioned suicide there and nearly didn't make it out. She said what is a bird? I said in England it was a girl, some places it was an obscene gesture and finally I let her off the hook. I tried to test her memory by saying three random words. When she asked what they were I said it was the three words she asked me to remember 6 months earlier. She said Oh? I let her off the hook and told her I made them up. Vic

Hi Vic - I've had that neuropsych test three times and I sorta' bet I'll have it again. Four and a half hour of intense testing and then talking to the psych ........ whew. And she asks about suicide almost first thing. I wonder why.
My 'they' are people cutting out pieces of my brain very carefully and they want to know how it all works and where it all works.

Is that what 'they' did to you?

There is no way, no way at all, you can pass or fail your brain test.

Anyhow - I'm glad to see you here again. I hope you're OK and you'll be back soon. Be well.

Sad to day Alffe, but I am the only living survivor of my family. I did attend a Survivors Support group but felt out of place because I was the only one there who had lost a sibling. I did not feel my grief was validated due to everyone else had lost a child. The group moderator is a very kind person and still keeps me updated via email and sends me any info she might find helpful with my issues. What few friends I have find suicide a touchy subject they would rather not discuss. It's almost like they feel like they will "catch something" like a disease. I was hoping this forum might be more helpful.

I wish I had some words of comfort to you but I don't. Just to tell you that I'm in the same boat. I have absolutely no one left in my family and June 12th is the anniversary of my brother's suicide. It's been so heavy on my mind and then is Father's Day. I just feel like I can't cope this week.

I too went to grief counseling and had the same experience. Everyone had lost a son or daughter and I just sat in the corner. I tried to go again but never got out of the car.

Losing a sibling is so hard, especially when we don't know why. I'm here if you need me