I have an extreme headache that has been constant since mid January. Ten years ago I was diagnosed with Tarlov cysts. I had a neuro consult at the Mayo clinic in Phoenix today. I was told that the headache is caused by low pressure related to the cerebral spinal fluid and the Tarlov cysts. I have no other symptoms typical of TC's, but this headache is a killer... I wake up with it at @ pain level 3, by 10 am it's climbing and it gets to at least an 8 or 9 by noon with no change until I go to sleep at night. My doctor is looking for a consult with a neuro surgeon. Has anyone had a similar experience?

I too had extreme headaches with my cysts. I will post back and let you know how they were taken care of. Tired
Feel free to fill me in on what you have done to this point to better help you.

I also have terrible headaches. This is all new to me because I just found out I have tarlov cyst. They showed on a MRI in 2009 but the doctor never mentioned or sent me to see someone who knew.