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-   -   Just had surgery (https://www.neurotalk.org/tarlov-cyst/168065-surgery.html)

yaffa 07-24-2014 02:07 PM

yaffa
 
[QUOTE=3tarlov;869310]Hi. I have symtomatic tarlov cyst disease. I am awaiting my surgery. Is it ok for you to mention who was the surgeon. Please let me know of your progress. My pain and limitations are anoying me!

New hear, I am 6 weeks post op and feel good. Just this last week am able to sit for longer times and 5 days no pain meds.
I would like to hear from others. I have had pain for 17 yrs. and knoe one knew what was wrong. Pain got so bad since this past Oct. and other symptoms. Four MRI'S later. So far an easy recovery, a little boring.[/QUOTE[QUOTE=3tarlov;869310]

Hi. I have symtomatic tarlov cyst disease. I am awaiting my surgery. Is it ok for you to mention who was the surgeon. Please let me know of your progress. My pain and limitations are anoying me! Thank you. Yaffa

J for Timy 11-13-2014 04:16 AM

operation coming
 
Quote:

Originally Posted by 3tarlov (Post 869310)
Hi

New hear, I am 6 weeks post op and feel good. Just this last week am able to sit for longer times and 5 days no pain meds.
I would like to hear from others. I have had pain for 17 yrs. and knoe one knew what was wrong. Pain got so bad since this past Oct. and other symptoms. Four MRI'S later. So far an easy recovery, a little boring.

My daughter 50 was just told she has a Tarlov Cyst and they want to remove it.
She has been in pain for 5 years and no one could find what was wrong. We have exhausted all other avenues that could cause this pain. We are ready for her surgery but worried about the results. The Dr here was trained by the Dr in L.A. who specialized in this surgery but he has not done a lot of them. He says 80% are successful and 1/2 of those are 100% and the other 1/2 have remaining pain but not as bad and it is controlled by pain management. The other 20%= it either didn't help at all or they were worse off afterwards than before. Any comments?
J for Timy.

J for Timy 11-13-2014 04:23 AM

Quote:

Originally Posted by 3tarlov (Post 869310)
Hi

New hear, I am 6 weeks post op and feel good. Just this last week am able to sit for longer times and 5 days no pain meds.
I would like to hear from others. I have had pain for 17 yrs. and knoe one knew what was wrong. Pain got so bad since this past Oct. and other symptoms. Four MRI'S later. So far an easy recovery, a little boring.

How long was recovery and what could you do when you first came home?
J for Timy

Bridges 11-18-2014 09:47 AM

You say the doctors are going to "remove" the cyst. How is that done? And, where is the surgery being performed, and what level of expertise does the surgeon have?


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