Question on TC Surgery recovery
 

I had TC surgery to treat the cysts by Dr. Feigenbaum in 2013. I continue to have high levels of pain due to the nerve treated not healing but instead becoming more and more inflamed. Are there others having similiar experiances?

Recovering from TC surgery ith Dr. Feigenbaum in Aug 2013
 

I have been recovering from this surgery for 2 + years. Dr. Feigenbaum his staff have been exceptional. Unfortunately the nerve root most impacted by the surgery is inflammed (no guarentees) I realize it will be a long term recovery for me, but am in much better shape than before the surgery. The good news, is that Pain Mgmt techniques with a prescribed TENS unit and a compounded cream (that contains nerve pain killers, etc) are very effective. Because of the nerve damage caused by the cysts (3 of them) I am dealing with pain at the surgery site, and down my right let and into foot and toes. I feel blessed because I have a good med insurance and have found relief from the pain. I still must be very careful and not bend much or walk very far (1 mile max).

Hi Bobi J.. I am new to this neurotalk forum. I was wondering if you are still participating, as your last post was in 2012. My MRI is showing 8 cysts.. and I am scheduled for surgery with Dr. Feigenbaum on December 20. I had some questions for you if you wouldn't mind...? thanks

Hi JP,

Did you have your surgery? Were you pleased with the results?

Thank you.

Hi- I just found out that I have both Ta sacral Tarlov Cyst and a 1.7mm Kidney cyst. I also wondeedr the relation. I have a neurosurgeon appointment and internist next month. I will try to keep you updated as I find out. Unfortunately, besides the burning and excruciating pain in my lumbar/sacram and having urinary/fecal issues and incontinence; I also have cervical spine ddd and a disc replacement from trauma that has to be removed and fused. Tons of other complications (slip and fall with tbi) but I should be able to separate out the tarlov/kidney from the rest for us both. Will let you know what they tell me. Unfortunately, since we are all rare in this Tarlov thing, it sounds like it will be a battle to get them to believe that the Tarlov is the issue in the lumbar. Strange, especially since it has been noted that this can progress into bone degeneration and other serious long term affects. Many positive vibes and thoughts for us all. Keep standing your ground and taking good care of you!:hug:

First, I want to put out prayers to all who are suffering from symptomatic tarlov cysts. I was recently diagnosed with large sacral tarlov cysts which the neurosurgeon told me were not the cause of my many symptoms. After many other tests to rule other things out, I felt I needed a second opinion on these cysts, as I had never heard of them before. I will be seeing a second neurosurgeon in May. My most difficult symptom is sacrum/rectal burning pain/pressure all the time. I cannot sit at all without major discomfort. I have various other symptoms too that many of you mention. I have recently started taking CBD soft gels to try to alleviate the pain, but so far I'm not getting relief. What are some you taking for pain management ? Thanks.

I have used a TENS unit and have found my best pain relief from the OSKA pulse which is a PEMF pulsed electromagnetic field device. Its not a cure all but it helps with my TC pain. I don't think they have researched any PEMF devices in how they help with Tarlov cysts. It would be nice to see some research. Im just a gal who saw a show on my local news channel about the OSKA and ordered it right away. I love it.