Go Back   NeuroTalk Support Groups > > >

Tarlov Cyst Surgery

Reply
 
Thread Tools Display Modes
Old 11-27-2015, 03:35 PM   #91
Carolyn StPierre
New Member
 
Join Date: Nov 2015
Location: Texas
Posts: 2
Default Question on TC Surgery recovery

I had TC surgery to treat the cysts by Dr. Feigenbaum in 2013. I continue to have high levels of pain due to the nerve treated not healing but instead becoming more and more inflamed. Are there others having similiar experiances?
Carolyn StPierre is offline   Reply With Quote
Old 11-27-2015, 03:48 PM   #92
Carolyn StPierre
New Member
 
Join Date: Nov 2015
Location: Texas
Posts: 2
Default Recovering from TC surgery ith Dr. Feigenbaum in Aug 2013

I have been recovering from this surgery for 2 + years. Dr. Feigenbaum his staff have been exceptional. Unfortunately the nerve root most impacted by the surgery is inflammed (no guarentees) I realize it will be a long term recovery for me, but am in much better shape than before the surgery. The good news, is that Pain Mgmt techniques with a prescribed TENS unit and a compounded cream (that contains nerve pain killers, etc) are very effective. Because of the nerve damage caused by the cysts (3 of them) I am dealing with pain at the surgery site, and down my right let and into foot and toes. I feel blessed because I have a good med insurance and have found relief from the pain. I still must be very careful and not bend much or walk very far (1 mile max).
Carolyn StPierre is offline   Reply With Quote
Old 12-05-2016, 07:14 PM   #93
jpdalton378
Junior Member
 
Join Date: Dec 2016
Location: Arizona
Posts: 8
Default

Hi Bobi J.. I am new to this neurotalk forum. I was wondering if you are still participating, as your last post was in 2012. My MRI is showing 8 cysts.. and I am scheduled for surgery with Dr. Feigenbaum on December 20. I had some questions for you if you wouldn't mind...? thanks
jpdalton378 is offline   Reply With Quote
Old 02-17-2019, 03:06 AM   #94
suephx
Newly Joined
 
Join Date: Feb 2019
Posts: 3
Default

Quote:
Originally Posted by jpdalton378 View Post
Hi Bobi J.. I am new to this neurotalk forum. I was wondering if you are still participating, as your last post was in 2012. My MRI is showing 8 cysts.. and I am scheduled for surgery with Dr. Feigenbaum on December 20. I had some questions for you if you wouldn't mind...? thanks
Hi JP,

Did you have your surgery? Were you pleased with the results?

Thank you.
suephx is offline   Reply With Quote
Old 03-21-2019, 01:49 PM   #95
bubblewrapped
Newly Joined
 
Join Date: Mar 2019
Posts: 1
Default

Quote:
Originally Posted by Silver View Post
I also have Tarlov cysts, but others named and not named inside my spinial cord. Two days agao they found cycts in my kidneys also, not named just kidney cycts. Any idea why people get these or have multiples of different cycts and in different places? After reading they can come back and cause more to develope I decided not to do surgery, plus I have alot of other issues - tumors - any advise
Hi- I just found out that I have both Ta sacral Tarlov Cyst and a 1.7mm Kidney cyst. I also wondeedr the relation. I have a neurosurgeon appointment and internist next month. I will try to keep you updated as I find out. Unfortunately, besides the burning and excruciating pain in my lumbar/sacram and having urinary/fecal issues and incontinence; I also have cervical spine ddd and a disc replacement from trauma that has to be removed and fused. Tons of other complications (slip and fall with tbi) but I should be able to separate out the tarlov/kidney from the rest for us both. Will let you know what they tell me. Unfortunately, since we are all rare in this Tarlov thing, it sounds like it will be a battle to get them to believe that the Tarlov is the issue in the lumbar. Strange, especially since it has been noted that this can progress into bone degeneration and other serious long term affects. Many positive vibes and thoughts for us all. Keep standing your ground and taking good care of you!
bubblewrapped is offline   Reply With Quote
Old 03-29-2019, 07:12 PM   #96
StePirPenFan
Newly Joined
 
Join Date: Mar 2019
Location: Pennsylvania
Posts: 1
Default

First, I want to put out prayers to all who are suffering from symptomatic tarlov cysts. I was recently diagnosed with large sacral tarlov cysts which the neurosurgeon told me were not the cause of my many symptoms. After many other tests to rule other things out, I felt I needed a second opinion on these cysts, as I had never heard of them before. I will be seeing a second neurosurgeon in May. My most difficult symptom is sacrum/rectal burning pain/pressure all the time. I cannot sit at all without major discomfort. I have various other symptoms too that many of you mention. I have recently started taking CBD soft gels to try to alleviate the pain, but so far I'm not getting relief. What are some you taking for pain management ? Thanks.
StePirPenFan is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I too have a Tarlov Cyst AcheyBreakyNecky Tarlov Cyst 13 11-10-2013 11:37 AM
tarlov cyst hmetrisha1973 New Member Introductions 6 01-08-2012 09:57 AM
tarlov cyst SUE, ENGLAND New Member Introductions 2 10-22-2010 12:56 AM
Tarlov Cyst Back spasms & cost of surgery concernedwife New Member Introductions 12 02-06-2009 02:16 PM
Arachnoiditis Related to Surgery on Tarlov cyst GJZH Tarlov Cyst 1 12-01-2008 11:06 PM


All times are GMT -5. The time now is 11:49 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy