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Tarlov Cyst Surgery

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Old 09-25-2019, 04:27 PM #1
yipke yipke is offline
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Originally Posted by StePirPenFan View Post
First, I want to put out prayers to all who are suffering from symptomatic tarlov cysts. I was recently diagnosed with large sacral tarlov cysts which the neurosurgeon told me were not the cause of my many symptoms. After many other tests to rule other things out, I felt I needed a second opinion on these cysts, as I had never heard of them before. I will be seeing a second neurosurgeon in May. My most difficult symptom is sacrum/rectal burning pain/pressure all the time. I cannot sit at all without major discomfort. I have various other symptoms too that many of you mention. I have recently started taking CBD soft gels to try to alleviate the pain, but so far I'm not getting relief. What are some you taking for pain management ? Thanks.
I have used a TENS unit and have found my best pain relief from the OSKA pulse which is a PEMF pulsed electromagnetic field device. Its not a cure all but it helps with my TC pain. I don't think they have researched any PEMF devices in how they help with Tarlov cysts. It would be nice to see some research. Im just a gal who saw a show on my local news channel about the OSKA and ordered it right away. I love it.
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Old 09-15-2012, 05:36 PM #2
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Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
Hi Amy,

My sister has been diagnosed with a tarlov cyst, which is causing her debilitating pain and I'm wondering how your surgery went and if all is well with you post operation. I had read that draining/aspirating these cysts is often ineffective in that they fill up again shortly thereafter, so I'm wondering if yours have stayed drained.

Thanks for posting and inviting others to reach out to you.

Regards,
Lisa
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Old 09-15-2012, 07:48 PM #3
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Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
I have 2 Tarlov cysts, and waiting to be scheduled for surgery with Dr. Feigenbaum in Dallas. Long wait, about one month and did not get scheduled yet. Did surgery helped you? and how long was recovery time.
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Old 10-08-2012, 07:55 AM #4
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Just got news I have these cyst i am so angery not sure what to do i want to go back to being myself active could some one tell me how does the surgery work I have read mixed things bad or goodi did it work
Thank you
Rob
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Old 10-14-2012, 06:22 AM #5
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Originally Posted by Rob64 View Post
Just got news I have these cyst i am so angery not sure what to do i want to go back to being myself active could some one tell me how does the surgery work I have read mixed things bad or goodi did it work
Thank you
Rob
Rob, will have surgery next week with Dr. F. in Dallas. I hope it will go well and I will be without pain. bobiJ
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Old 11-05-2012, 12:37 PM #6
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I had surgery 2 weeks ago, and I am doing pretty good. I went in with 2 TC and had actually 5.Recovery will take long time. Wishing all who has this problem good luck.
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Old 01-06-2013, 11:42 AM #7
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3 months after surgery. Pain is there, sometimes more then before surgery. I hope it will go away.
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Old 08-29-2013, 01:43 PM #8
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How are you doing with your surgery?
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Old 09-09-2013, 11:05 AM #9
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How come people who say they've had the surgery never come back on with their experiences and final outcomes? I've seen this on other sites too. Come on, people, give the rest of us some hope (or at least the truth).
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Old 09-28-2013, 03:20 PM #10
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Originally Posted by bobiJ View Post
Rob, will have surgery next week with Dr. F. in Dallas. I hope it will go well and I will be without pain. bobiJ
I just met with Dr F. and am going to schedule surgery. How are you doing?
I am very nervous about having the surgery.
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