advertisement
Reply
 
Thread Tools Display Modes
Old 05-30-2013, 04:22 PM #21
sandra74 sandra74 is offline
New Member
 
Join Date: May 2013
Posts: 1
10 yr Member
sandra74 sandra74 is offline
New Member
 
Join Date: May 2013
Posts: 1
10 yr Member
Default Tarlov cyst surgery

Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
How are you doing post op? I am new to this site and a new patient of Dr. F.
Considering surgery but very nervous about the recovery.
sandra74 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-02-2013, 11:11 PM #22
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Default

Sandra,
If you are "considering surgery", perhaps you do not need it? I can speak only for myself, but once I made the connection with Dr. Feigenbaum, my primary concern was "when can we proceed with the procedure?". When it is determined that surgery is the most appropriate course of action, then it is your responsibility to prepare yourself for the procedure. By that I mean you must watch your diet, arrange for post-op assistance for your in-home care, and address a range of issues that your surgeon will discuss with you once you have been selected. This procedure is not comparable to going to the dentist.....it can literally restore your life, but you play a major role in the outcome.
David
Bridges is offline   Reply With QuoteReply With Quote
Old 08-29-2013, 01:43 PM #23
Joda Joda is offline
Newly Joined
 
Join Date: Aug 2013
Posts: 1
10 yr Member
Joda Joda is offline
Newly Joined
 
Join Date: Aug 2013
Posts: 1
10 yr Member
Default

How are you doing with your surgery?
Joda is offline   Reply With QuoteReply With Quote
Old 09-09-2013, 11:05 AM #24
starfish2000 starfish2000 is offline
Newly Joined
 
Join Date: Sep 2013
Posts: 2
10 yr Member
starfish2000 starfish2000 is offline
Newly Joined
 
Join Date: Sep 2013
Posts: 2
10 yr Member
Default

How come people who say they've had the surgery never come back on with their experiences and final outcomes? I've seen this on other sites too. Come on, people, give the rest of us some hope (or at least the truth).
starfish2000 is offline   Reply With QuoteReply With Quote
Old 09-10-2013, 12:15 AM #25
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Default

Glad to reply, Starfish! Today I left home at 6:00 AM, drove nearly 60 miles to have my truck repaired, went to breakfast at a fine diner, did some shopping, drove home, fixed lunch, then went to work on my construction job. I own and operate a large hay and grain farm, in addition to my construction business. I have spent several weeks this year rafting rivers here in the northwest, in addition to travelling throughout the northeast of the US. While I never again will be able to construct cable suspension bridges and timber framed bridges throughout the northwest, I have a good life, considering what I had been diagnosed with. The surgery performed by Dr. Feigenbaum and his assistant Debbie West restored my life. The only obstacle I encountered on this journey was erected by the Sate of Oregon workers compensation system, aka: SAIF. They did everything they could to prevent me from obtaining the necessary medical care.
Please know that there is hope for those diagnosed with symptomatic Tarlov cysts. PM me if you need more information.
David
Bridges is offline   Reply With QuoteReply With Quote
Old 09-21-2013, 06:40 PM #26
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
Default

Quote:
Originally Posted by starfish2000 View Post
How come people who say they've had the surgery never come back on with their experiences and final outcomes? I've seen this on other sites too. Come on, people, give the rest of us some hope (or at least the truth).
Hi, I was not on Talk for while. I did have a surgery October 2012. I am back to work since January 2013, working full time job. Will have MRI in October and visit with Dr. F., 1 year after surgery. I'm doing really good, just about everything like before surgery. There is some pain, when I sit too long, I will get up and walk, that helps. Also standing too long, is like I have to get moving. I am lucky, because I have a job where I can sit and walk, so there is no problem. I have to be careful lifting, and also twisting. Going down stairs still gives me problems. But I can sleep on my back (it was problem before surgery). Truth. Yes, there are times, when my back hurts and I will use ice pack. But not as often. I hope this helps you.
bobiJ is offline   Reply With QuoteReply With Quote
Old 09-28-2013, 03:20 PM #27
Nonna Nonna is offline
Junior Member
 
Join Date: Sep 2013
Posts: 9
10 yr Member
Nonna Nonna is offline
Junior Member
 
Join Date: Sep 2013
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by bobiJ View Post
Rob, will have surgery next week with Dr. F. in Dallas. I hope it will go well and I will be without pain. bobiJ
I just met with Dr F. and am going to schedule surgery. How are you doing?
I am very nervous about having the surgery.
Nonna is offline   Reply With QuoteReply With Quote
Old 09-28-2013, 03:27 PM #28
Nonna Nonna is offline
Junior Member
 
Join Date: Sep 2013
Posts: 9
10 yr Member
Nonna Nonna is offline
Junior Member
 
Join Date: Sep 2013
Posts: 9
10 yr Member
Default tarlov cysts surgery

I would like to email you to talk about how you are doing but I am new to the site and cant find your email. . I just had a consult with Dr. F and I have one large and 2 smaller cysts. The surgery scares me but my discomfort is very difficult. I would love to communicate with you about your experience.
Nonna is offline   Reply With QuoteReply With Quote
Old 09-29-2013, 08:11 AM #29
GypsyBluRose's Avatar
GypsyBluRose GypsyBluRose is offline
New Member
 
Join Date: Jan 2013
Posts: 1
10 yr Member
GypsyBluRose GypsyBluRose is offline
New Member
GypsyBluRose's Avatar
 
Join Date: Jan 2013
Posts: 1
10 yr Member
Default

Quote:
Originally Posted by Nonna View Post
I would like to email you to talk about how you are doing but I am new to the site and cant find your email. . I just had a consult with Dr. F and I have one large and 2 smaller cysts. The surgery scares me but my discomfort is very difficult. I would love to communicate with you about your experience.
Hi there. I had surgery with dr f in June. If anyone has questions, feel free to asks

Gypsy
GypsyBluRose is offline   Reply With QuoteReply With Quote
Old 10-06-2013, 07:43 PM #30
ccmcguire ccmcguire is offline
Junior Member
 
Join Date: Oct 2013
Location: California
Posts: 16
10 yr Member
ccmcguire ccmcguire is offline
Junior Member
 
Join Date: Oct 2013
Location: California
Posts: 16
10 yr Member
Lightbulb David, how are you doing now?

Quote:
Originally Posted by Bridges View Post
Glad to reply, Starfish! Today I left home at 6:00 AM, drove nearly 60 miles to have my truck repaired, went to breakfast at a fine diner, did some shopping, drove home, fixed lunch, then went to work on my construction job. I own and operate a large hay and grain farm, in addition to my construction business. I have spent several weeks this year rafting rivers here in the northwest, in addition to travelling throughout the northeast of the US. While I never again will be able to construct cable suspension bridges and timber framed bridges throughout the northwest, I have a good life, considering what I had been diagnosed with. The surgery performed by Dr. Feigenbaum and his assistant Debbie West restored my life. The only obstacle I encountered on this journey was erected by the Sate of Oregon workers compensation system, aka: SAIF. They did everything they could to prevent me from obtaining the necessary medical care.
Please know that there is hope for those diagnosed with symptomatic Tarlov cysts. PM me if you need more information.
David
David, how are you doing now? I'm 62 with an 8 mm cyst to right of s2. I was injured falling from a cutting horse in 2009. I've heard so many horror stories about people being in worse pain and reoccurring cysts following surgery, I've been afraid to go through with the surgery. However the cyst is getting worse now and I'm starting to have numbness in legs and feet. Any feedback would be much appreciated.
ccmcguire is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I too have a Tarlov Cyst AcheyBreakyNecky Tarlov Cyst 13 11-10-2013 12:37 PM
tarlov cyst hmetrisha1973 New Member Introductions 6 01-08-2012 10:57 AM
tarlov cyst SUE, ENGLAND New Member Introductions 2 10-22-2010 12:56 AM
Tarlov Cyst Back spasms & cost of surgery concernedwife New Member Introductions 12 02-06-2009 03:16 PM
Arachnoiditis Related to Surgery on Tarlov cyst GJZH Tarlov Cyst 1 12-02-2008 12:06 AM


All times are GMT -5. The time now is 07:35 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.