How are you doing Rob? I am scheduled for surgery on Dec 18 th 2013. Am nervous about recovery and outcome. Would love to hear from you.

Dear Amy:

I am a 63 year-old woman and I live in Canada. For a year now, I have been suffering with lower lumbar/sacral pain. Finally, I was able to have an MRI done on September 1st/2012 and it was discovered that I have multiple Tarlov cysts in the lumbar/sacral area. I have been researching neurosurgeons who are experienced with Tarlov cyst disease. Dr. Feigenbaum was the doctor in the US that stood out among all the rest as the best. I see that you have had surgery for your cysts, Amy, with Dr. Feigenbaum. It would really mean a lot to me if you could share your personal experience with Tarlov cyst disease and how the surgery helped you. At this point, I am in horrible pain all the time. I'm still waiting to see a neurosurgeon in our area, but the problem is none of the doctors here are experienced with Tarlov cysts.

With gratitude,
Cathy Harding

Cathy,
I suggest you connect with the Tarlov Cyst Disease Foundation to receive information on on treatment available to you. A presedent has been established which may be of benefit to you. David

i'm ethan from malaysia. i have a 33 year old girlfriend who just recently diagnosed with Tarlov Cysts. she has 2 of them at the S1 and S4 part of her back bone with the size of 0.8 and 1.3 respectively.

she also suffer from autoimmune disease and pain on some part of her joints and body. she always tired and not in the mood sometimes and abit of libido. yes i expected the doctor didnt have any solution for this medical issue.

please help me to help her recover. i really in need of your advice so much.
i love her very much and its killing me to see her like that. she a lovely young lady. she is a brilliant baker & sugar artist.

please help me, i really need your advice.

please email me and thank you for lending me your ears.

I too had five cyst in my sacral area. I had surgery with Feigenbaum in April. It is a long road. I can answer any questions you may have. I would like to discuss how things are going for you.

i am scheduled for surgery dec 18 with dr f. How are you doing?

Hi,
I wanna know how are you right know about your cyst?
Did you feel any better?

I have them from C3-T2 and now waiting for insurance to ok another MRI for sacral area.
But is there a difference between them when you change location of the spine? Also, my pain management doctor, an anesthesiologist DO ?, wants to aspirate them ...is this who should be doing it or should I be getting a referral to someone else?

How are you doing post op? I am new to this site and a new patient of Dr. F.
Considering surgery but very nervous about the recovery.

Sandra,
If you are "considering surgery", perhaps you do not need it? I can speak only for myself, but once I made the connection with Dr. Feigenbaum, my primary concern was "when can we proceed with the procedure?". When it is determined that surgery is the most appropriate course of action, then it is your responsibility to prepare yourself for the procedure. By that I mean you must watch your diet, arrange for post-op assistance for your in-home care, and address a range of issues that your surgeon will discuss with you once you have been selected. This procedure is not comparable to going to the dentist.....it can literally restore your life, but you play a major role in the outcome.
David