Hi David.
Was wondering if I could reach out to you about your recovery now that some time has passed since your surgery with Dr. F. New to the site. Still learning it. I would appreciate any one else's input as well.

Thanks.
Lola

Sorry for the delay in responding to requests: Due to "technical issues", as in my computer crashing, I am somewhat behind.
Anybody wishing to contact me please send a "Private Message" through this forum. I can also be reached through the Tarlov Cyst Disease Foundation site. (I hope our moderator will allow this..?)

Trust me, there is hope, and for many a cure.
David

Private message me at this forum. I am available by phone, text, or e-mail.
"Bridges"

Have you had surgery? How are you doing in your recovery if you have had the surgery?

I have not had surgery as of yet. I am researching if patients longer than 2 years after surgery how they are feeling today.
Kathryn1

I would like to email you to talk about how you are doing but I am new to the site and cant find your email. . I just had a consult with Dr. F and I have one large and 2 smaller cysts. The surgery scares me but my discomfort is very difficult. I would love to communicate with you about your experience.

Hi there. I had surgery with dr f in June. If anyone has questions, feel free to asks

Gypsy

How are you now? I have surgery on Nov. 6th and a little nervous.

How are you doing now? I hope the surgery was successful!
Kathryn1

I want to warn people to make sure they have adequate insurance coverage. You have to call the insurance company, get the name of the agent and the reference number for the call. Document the date and time and subject of the call. Do this to find out if the hospital, anesthesiologist, doctor and procedure are covered. Do each separately. the procedures is called "treatment of sacral meningeal or tarlov cyst" if it is a "sacral" cyst. The procedure code for this one is 64999. In addition, Dr. Feigenbaum or who ever the provider is needs to make certain they get a "letter of authorization" that the insurance will pay for it. Be sure you do this separtately for "in network" questions and all other questions separately. Be sure to document. I was recently stuck with a bill from a hospital where both the insurance company and the provider informed me incorrectly and I could not prove I called. Don't let this happen to you!

Also Laura at Dr. Feigenbaum's office says they have difficulty getting insurance companies to pay and they may want you to do some of this leg work for them in advance or they will ask you to pay "up front" and you will just have to hope you get reimbursed. This could delay surgery but it could save you thousands of dollars.