advertisement
Reply
 
Thread Tools Display Modes
Old 01-10-2014, 08:59 AM #1
warmaswool warmaswool is offline
New Member
 
Join Date: Jan 2014
Location: Maine
Posts: 1
10 yr Member
warmaswool warmaswool is offline
New Member
 
Join Date: Jan 2014
Location: Maine
Posts: 1
10 yr Member
Default

Hello! Wondering what are the criteria for being a candidate for this surgery? I'm pretty miserable and depressed with the parethesias, but don't have what I would call "pain". Thank you!
warmaswool is offline   Reply With QuoteReply With Quote
Old 03-12-2014, 08:08 PM #2
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
Default Ylrhylrh

Quote:
Originally Posted by warmaswool View Post
Hello! Wondering what are the criteria for being a candidate for this surgery? I'm pretty miserable and depressed with the parethesias, but don't have what I would call "pain". Thank you!
Hi, I am new too. I am miserable and depressed too. I was wondering if you would share your symptoms so we can compare? I don't really have pain either except in my groin. I just have weird neurological creepy stuff in my legs. I just had an MRI and a tarlov cyst was found at S1. I have had pelvic/groin pain for the last year. I had multiple studies...Abdominal CT, colonoscopy, sonograms, etc. .... Nothing showed up. The pain got so bad that I went to the ER in April and was told I had diverticulitis. That happened 3 times over last summer. They told me that I needed a colon resection. I had a colon resection in August and guess what...still had the groin/abdominal pain. I just had the MRI that showed the cyst. I think I had my sigmoid colon removed unnecessarily... Then I started having the parenthesis in my legs. That is why I had the MRI. Have you had groin/abdominal pain?
ylrhylrh is offline   Reply With QuoteReply With Quote
Old 03-13-2014, 06:46 PM #3
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
Default

Quote:
Originally Posted by ylrhylrh View Post
Hi, I am new too. I am miserable and depressed too. I was wondering if you would share your symptoms so we can compare? I don't really have pain either except in my groin. I just have weird neurological creepy stuff in my legs. I just had an MRI and a tarlov cyst was found at S1. I have had pelvic/groin pain for the last year. I had multiple studies...Abdominal CT, colonoscopy, sonograms, etc. .... Nothing showed up. The pain got so bad that I went to the ER in April and was told I had diverticulitis. That happened 3 times over last summer. They told me that I needed a colon resection. I had a colon resection in August and guess what...still had the groin/abdominal pain. I just had the MRI that showed the cyst. I think I had my sigmoid colon removed unnecessarily... Then I started having the parenthesis in my legs. That is why I had the MRI. Have you had groin/abdominal pain?
Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
bobiJ is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ylrhylrh (04-24-2014)
Old 03-31-2014, 10:13 AM #4
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by bobiJ View Post
Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
Thank you so much for replying. I am new here and don't know how to maneuver around the site. Would you mind talking to me about your experience? If not, could you tell me how to email or call you? Thank you!!
ylrhylrh is offline   Reply With QuoteReply With Quote
Old 04-12-2014, 05:12 PM #5
JeanKNC's Avatar
JeanKNC JeanKNC is offline
Junior Member
 
Join Date: Sep 2011
Location: NC
Posts: 17
10 yr Member
JeanKNC JeanKNC is offline
Junior Member
JeanKNC's Avatar
 
Join Date: Sep 2011
Location: NC
Posts: 17
10 yr Member
Default

Quote:
Originally Posted by ylrhylrh View Post
Thank you so much for replying. I am new here and don't know how to maneuver around the site. Would you mind talking to me about your experience? If not, could you tell me how to email or call you? Thank you!!
I have many neuro 'creepy' leg effects. I swear it effects my vision at times
Too.

Jean in Florida
JeanKNC is offline   Reply With QuoteReply With Quote
Old 04-24-2014, 10:15 PM #6
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by bobiJ View Post
Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
Do you know the location and the size of the symptomatic ones? So good you don't have the pain any more . Did you have other symptoms besides the groin and abdominal pain? My cyst is on S2 and is 1.3 cm. thanks
ylrhylrh is offline   Reply With QuoteReply With Quote
Old 04-25-2014, 06:08 PM #7
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
Default

Quote:
Originally Posted by ylrhylrh View Post
Do you know the location and the size of the symptomatic ones? So good you don't have the pain any more . Did you have other symptoms besides the groin and abdominal pain? My cyst is on S2 and is 1.3 cm. thanks
From my first MRI, on S3, about 11mm, this was 2011. I had surgery on 5 cysts, S3 L+R, S4 L+R, and S2 R. I was treated for bulging disk for all that time before . I had pain in my lower back, that was reason to see Dr. When they said is disk causing the pain, I got all these treatments they could give me.no help. I had surgery for TC pretty quick after I found out it got bigger.
bobiJ is offline   Reply With QuoteReply With Quote
Old 04-12-2014, 05:09 PM #8
JeanKNC's Avatar
JeanKNC JeanKNC is offline
Junior Member
 
Join Date: Sep 2011
Location: NC
Posts: 17
10 yr Member
JeanKNC JeanKNC is offline
Junior Member
JeanKNC's Avatar
 
Join Date: Sep 2011
Location: NC
Posts: 17
10 yr Member
Default

Quote:
Originally Posted by ylrhylrh View Post
Hi, I am new too. I am miserable and depressed too. I was wondering if you would share your symptoms so we can compare? I don't really have pain either except in my groin. I just have weird neurological creepy stuff in my legs. I just had an MRI and a tarlov cyst was found at S1. I have had pelvic/groin pain for the last year. I had multiple studies...Abdominal CT, colonoscopy, sonograms, etc. .... Nothing showed up. The pain got so bad that I went to the ER in April and was told I had diverticulitis. That happened 3 times over last summer. They told me that I needed a colon resection. I had a colon resection in August and guess what...still had the groin/abdominal pain. I just had the MRI that showed the cyst. I think I had my sigmoid colon removed unnecessarily... Then I started having the parenthesis in my legs. That is why I had the MRI. Have you had groin/abdominal pain?
Jean here. Diagnosed 3 yrs ago. Low pain (sciatica - ugh). Taking Gabapentin
Only. I use Flexeril sometimes. Leg numbness n heavy legs comes n goes. Of late, I have burning and wobbly sort of. A big worry. Now having nu bladder n bowel symptoms. Sooooo time to act. Want my life back. My daughter is living in Alexandria. Was thinking of seeing Dr Henderson. eval me. Having nu MRI on 15th. I am in a yahoo group for 3 yrs. Met many who are thriving post op.
Email me. Let's talk. jean
JeanKNC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ylrhylrh (04-24-2014)
Old 04-24-2014, 05:33 AM #9
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
ylrhylrh ylrhylrh is offline
Junior Member
 
Join Date: Mar 2014
Location: Alexandria, Virginia
Posts: 9
10 yr Member
Default

Quote:
Originally Posted by JeanKNC View Post
Jean here. Diagnosed 3 yrs ago. Low pain (sciatica - ugh). Taking Gabapentin
Only. I use Flexeril sometimes. Leg numbness n heavy legs comes n goes. Of late, I have burning and wobbly sort of. A big worry. Now having nu bladder n bowel symptoms. Sooooo time to act. Want my life back. My daughter is living in Alexandria. Was thinking of seeing Dr Henderson. eval me. Having nu MRI on 15th. I am in a yahoo group for 3 yrs. Met many who are thriving post op.
Email me. Let's talk. jean
Hi Jean, I would love to talk to you. can you tell me how to e-mail you? Thanks
ylrhylrh is offline   Reply With QuoteReply With Quote
Old 01-27-2014, 01:00 AM #10
amy93stang amy93stang is offline
Junior Member
 
Join Date: Apr 2012
Posts: 10
10 yr Member
amy93stang amy93stang is offline
Junior Member
 
Join Date: Apr 2012
Posts: 10
10 yr Member
Default Tarlov Surgery

I'm sorry for anyone has left me message.

I have had 2 surgeries with Dr. Feigenbaum for my Tarlov Cysts.


I'm not on computer a lot because of my

condition. If will help with information that I can.

I can sit longer and my sacral pain is less. I have sharp shooting leg

pains that I didn't have before. My over all my pain level from last year

is down.
amy93stang is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I too have a Tarlov Cyst AcheyBreakyNecky Tarlov Cyst 13 11-10-2013 12:37 PM
tarlov cyst hmetrisha1973 New Member Introductions 6 01-08-2012 10:57 AM
tarlov cyst SUE, ENGLAND New Member Introductions 2 10-22-2010 12:56 AM
Tarlov Cyst Back spasms & cost of surgery concernedwife New Member Introductions 12 02-06-2009 03:16 PM
Arachnoiditis Related to Surgery on Tarlov cyst GJZH Tarlov Cyst 1 12-02-2008 12:06 AM


All times are GMT -5. The time now is 11:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.