Originally Posted by amy93stang (Post 869347)

I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.

Originally Posted by ylrhylrh (Post 1056612)

Hi, I am new too. I am miserable and depressed too. I was wondering if you would share your symptoms so we can compare? I don't really have pain either except in my groin. I just have weird neurological creepy stuff in my legs. I just had an MRI and a tarlov cyst was found at S1. I have had pelvic/groin pain for the last year. I had multiple studies...Abdominal CT, colonoscopy, sonograms, etc. .... Nothing showed up. The pain got so bad that I went to the ER in April and was told I had diverticulitis. That happened 3 times over last summer. They told me that I needed a colon resection. I had a colon resection in August and guess what...still had the groin/abdominal pain. I just had the MRI that showed the cyst. I think I had my sigmoid colon removed unnecessarily... Then I started having the parenthesis in my legs. That is why I had the MRI. Have you had groin/abdominal pain?

Originally Posted by ylrhylrh (Post 1060473)

Thank you so much for replying. I am new here and don't know how to maneuver around the site. Would you mind talking to me about your experience? If not, could you tell me how to email or call you? Thank you!!

Originally Posted by dlgeur (Post 1064420)

How do you get physicians/providers to admit that the pain could be from the tarlov cyst? I think that has been the most frustrating for me.

Originally Posted by JeanKNC (Post 1063082)

Jean here. Diagnosed 3 yrs ago. Low pain (sciatica - ugh). Taking Gabapentin
Only. I use Flexeril sometimes. Leg numbness n heavy legs comes n goes. Of late, I have burning and wobbly sort of. A big worry. Now having nu bladder n bowel symptoms. Sooooo time to act. Want my life back. My daughter is living in Alexandria. Was thinking of seeing Dr Henderson. eval me. Having nu MRI on 15th. I am in a yahoo group for 3 yrs. Met many who are thriving post op.
Email me. Let's talk. jean

Originally Posted by bobiJ (Post 1056783)

Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.

Originally Posted by ylrhylrh (Post 1065699)

Do you know the location and the size of the symptomatic ones? So good you don't have the pain any more :). Did you have other symptoms besides the groin and abdominal pain? My cyst is on S2 and is 1.3 cm. thanks

Originally Posted by bobiJ (Post 1065842)

From my first MRI, on S3, about 11mm, this was 2011. I had surgery on 5 cysts, S3 L+R, S4 L+R, and S2 R. I was treated for bulging disk for all that time before . I had pain in my lower back, that was reason to see Dr. When they said is disk causing the pain, I got all these treatments they could give me.no help. I had surgery for TC pretty quick after I found out it got bigger.