I am looking to go see same doctor -Please tell me how your surgery experience went.

How do you get physicians/providers to admit that the pain could be from the tarlov cyst? I think that has been the most frustrating for me.

When your MRI shows Tarlov cysts, and any kind of treatment does not work. I had my MRI done first time in 2010, back pain, lower abdominal and groin pain, left leg (not below my knee), could not lay on my back without pain so bad, like something is tearing inside. I went two different Dr. I had epidural inj., steroid inj. so many different inj., physical therapy(that made it worse), finally second Dr. suggested to see Dr. F. in Dallas. That was 2 years later. I had surgery 18 months ago with 5 cysts in my sacrum, and doing very well. Wishing you best.

Hi everyone...new to the group.

44 year old male, with 3 cysts at 1.4 cm, and one at 1.6 cm. My surgery is this coming Tuesday with Dr. Fiegenbaum. I've been dealing with low back and buttock sciatic pain for years. As a recovering pain med addict, with several major health conditions not related to the cysts, I am limited in what I can use for my pain. Currently on Fentanyl 50mcg patch with a Pain & Addiction Specialist. I am so hopeful that this surgery will give me some relief.

I'd also be interested in finding information on what to expect post surgery. If this doesn't work, my next step is a neural stimulator.

Hello midnightatom,

I'm sorry I can't help you with your questions but I just wanted to welcome you to the NeuroTalk Support Groups.

The other members of this forum will hopefully see your message soon and help you out.

take care.

Welcome midnight atom.

My Advice:
Don't expect a miracle. Follow the advice of Dr. Feigenbaum. You owe a great deal to Dr. Feigenbaum and his team, and to others who have been down this path. Limit your activities, take the time to "heal yourself", and do all you can to assist your body in repairing yourself.
I just put in another 10 hour day at work, building a home for a client here in Oregon. In 2006 I was told to "accept my disability", but I would not. I worked hard to find a "cure", and a solution, and Dr. Feigenbaum restored my life. You also have the opportunity to become "whole". Work at it, prepare yourself for surgery, and behave yourself for the next few months. You too could reap the rewards, as I have.
"Bridges"

Bridges, may I call you and talk about the surgery. Please could you email me your phone number? Thank you.

Hi Eveyone

I have 3 largeTarlovs in sacrum. have kept a log of the gauntlet of dr.s. I have already spoken w/ Dr. f and am waiting for insurance to make thenext move. I am happy to shareware/ anyone in the same situation. *edit*
Thnaks

Hello everyone. I have suffered with sacral, hip, foot pain for years. I was told it was sciatica or one leg is shorter then the other. A Tarlov cyst was found in my sacral area when I had a cat scan because they thought I was having a gall bladder attack. It is reported that it is 2cm and expanding the sacrum. It says this is a large cyst. I also have many digestive issues, urinary frequency with some leakage. I had an appointment with a nerosurgeon and they reschedualled me for a time I can make. I waited two months for the appointment. The guy has pretty bad reviews anyway so I am going to try to go with someone else..I know someone who has had surgery with Dr. F and this Dr helped her get in touch with him. What can I do in the mean time to help things. Because if my digestive issues I can't handle pain medal. I am overweight and try to walk daily. Is a 2cm cyst large? I am wondering. Too what are the chances of having another cyst in my cervical/thorastic area? I have pain there two. Thanks!