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Tarlov Cyst Surgery

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Old 08-26-2014, 07:45 PM #61
midnight atom midnight atom is offline
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Default New to the forum
Hi everyone...new to the group.

44 year old male, with 3 cysts at 1.4 cm, and one at 1.6 cm. My surgery is this coming Tuesday with Dr. Fiegenbaum. I've been dealing with low back and buttock sciatic pain for years. As a recovering pain med addict, with several major health conditions not related to the cysts, I am limited in what I can use for my pain. Currently on Fentanyl 50mcg patch with a Pain & Addiction Specialist. I am so hopeful that this surgery will give me some relief.

I'd also be interested in finding information on what to expect post surgery. If this doesn't work, my next step is a neural stimulator.
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"Thanks for this!" says:
Lara (08-26-2014)

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Old 08-26-2014, 08:00 PM #62
Lara Lara is offline
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Hello midnightatom,

I'm sorry I can't help you with your questions but I just wanted to welcome you to the NeuroTalk Support Groups.

The other members of this forum will hopefully see your message soon and help you out.

take care.
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Kitt (08-27-2014)
Old 08-27-2014, 09:17 AM #63
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Welcome midnight atom.
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Kitt

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"It is what it is."
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Old 08-30-2014, 12:25 AM #64
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My Advice:
Don't expect a miracle. Follow the advice of Dr. Feigenbaum. You owe a great deal to Dr. Feigenbaum and his team, and to others who have been down this path. Limit your activities, take the time to "heal yourself", and do all you can to assist your body in repairing yourself.
I just put in another 10 hour day at work, building a home for a client here in Oregon. In 2006 I was told to "accept my disability", but I would not. I worked hard to find a "cure", and a solution, and Dr. Feigenbaum restored my life. You also have the opportunity to become "whole". Work at it, prepare yourself for surgery, and behave yourself for the next few months. You too could reap the rewards, as I have.
"Bridges"
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Old 10-25-2014, 07:20 PM #65
StacyFischetto StacyFischetto is offline
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Default Trouble with Tarlovs
Hi Eveyone

I have 3 largeTarlovs in sacrum. have kept a log of the gauntlet of dr.s. I have already spoken w/ Dr. f and am waiting for insurance to make thenext move. I am happy to shareware/ anyone in the same situation. *edit*
Thnaks
Last edited by Jomar; 10-25-2014 at 08:30 PM. Reason: privacy
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Old 11-14-2014, 06:58 PM #66
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Default Scared!
Hello everyone. I have suffered with sacral, hip, foot pain for years. I was told it was sciatica or one leg is shorter then the other. A Tarlov cyst was found in my sacral area when I had a cat scan because they thought I was having a gall bladder attack. It is reported that it is 2cm and expanding the sacrum. It says this is a large cyst. I also have many digestive issues, urinary frequency with some leakage. I had an appointment with a nerosurgeon and they reschedualled me for a time I can make. I waited two months for the appointment. The guy has pretty bad reviews anyway so I am going to try to go with someone else..I know someone who has had surgery with Dr. F and this Dr helped her get in touch with him. What can I do in the mean time to help things. Because if my digestive issues I can't handle pain medal. I am overweight and try to walk daily. Is a 2cm cyst large? I am wondering. Too what are the chances of having another cyst in my cervical/thorastic area? I have pain there two. Thanks!
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Old 11-14-2014, 07:54 PM #67
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Hello marcyk,

I just wanted to send you a 'Welcome' to the NeuroTalk Support Groups.
Hopefully someone familiar with your symptoms will see your post and send reply.

take care there.
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Old 01-24-2015, 02:50 PM #68
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Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
**. I am suffering from Tarlov cysts and would like to know few things. Please could you help me.
Last edited by Chemar; 01-24-2015 at 03:20 PM. Reason: ** admin edit to protect personal privacy
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Old 01-30-2015, 10:44 AM #69
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Quote:
Originally Posted by Bridges View Post
Glad to reply, Starfish! Today I left home at 6:00 AM, drove nearly 60 miles to have my truck repaired, went to breakfast at a fine diner, did some shopping, drove home, fixed lunch, then went to work on my construction job. I own and operate a large hay and grain farm, in addition to my construction business. I have spent several weeks this year rafting rivers here in the northwest, in addition to travelling throughout the northeast of the US. While I never again will be able to construct cable suspension bridges and timber framed bridges throughout the northwest, I have a good life, considering what I had been diagnosed with. The surgery performed by Dr. Feigenbaum and his assistant Debbie West restored my life. The only obstacle I encountered on this journey was erected by the Sate of Oregon workers compensation system, aka: SAIF. They did everything they could to prevent me from obtaining the necessary medical care.
Please know that there is hope for those diagnosed with symptomatic Tarlov cysts. PM me if you need more information.
David
Hello, I am going to have surgery with DR Feigenbaum. I have 3 cysts. I heard good result about his surgery and bad noes too. some got more pain, some had leak and the cyst refilled with in a year and two. Some developed new pain. Has anybody had surgery with Dr. Feigenbaum 3 or 2 years ago to tell us about the outcome. Thank you.
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Old 02-01-2015, 12:33 PM #70
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My surgery with Dr. Feigenbaum was on November 30, 2010. I can say, without being dramatic, that he gave me back my life. While there are no guarantees with any surgery, I determined that the risks involved were far outweighed by the possible benefits. Please prepare yourself for this procedure. That means doing all you can to cleanse your body of any toxins, (alcohol, tobacco, "junk food") and put in place the support system for when you return home. Follow his suggestions on limiting physical activity, and give you body an opportunity to heal.
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