Hello marcyk,

I just wanted to send you a 'Welcome' to the NeuroTalk Support Groups.
Hopefully someone familiar with your symptoms will see your post and send reply.

take care there.

**. I am suffering from Tarlov cysts and would like to know few things. Please could you help me.

I am from india Today i have been diagnosed with tarlove cyst in sacral spinal canal with 12*8 mm size on right side
can i go for a surgery? what will be the expences for surgery?

Hi Folks-

Just had surgery with Dr. Feigenbaum in Dallas yesterday for small but multiple Tarlov cysts. (He also sees patients in Cypress.) Am now resting at the hospital. He found 8 cysts and definitely confirmed nerve compression. At least 5 were seen on imaging, but some turned out to be two cysts instead of one. He did laminectomy to treat the cysts and placed a dorsal polymer plate. Surgery took about 2.5 hours plus post op recovery. On waking the numbness I had in both feet is now gone!

Only have had some nausea, and normal surgical pain that is being decently controlled. Right now they have me restricted on movement to prevent spinal fluid leaks and they have started to progressively elevate my head today. So far so good.

The nursing care at Pine Creek Medical Center is excellent, better than what I've had at most places. The patient to nurse ratio is very low. My nurse has three patients under her care at the moment. The staff here also speak unprompted and highly of Dr. Feigenbaum's care and work to help people to receive appropriate care for Tarlov cysts and the like, many who have been misdiagnosed and undergone some difficult treatments. (One patient suffered an unnecessary vulvectomy BEFORE being helped by Dr. Feigenbaum.)

How some neurologists think that Tarlov cysts are all asymptomatic is absolutely beyond me.

For me, seeing Dr. Feigenbaum and having the surgery Is moving me in the right direction.

If anyone has questions on what I'm undergoing, please feel free to post or PM me.

Hi Tomatogirl,
I hope you continue to recover from the surgery. Can you send us a few words about your progress? That is much appreciated. Have a peaceful and painless weekend!

Hi tomato girl. Can you please update us with your progress? How are things going?

Hi Telvaker. Hope you are doing well. Three weeks ago I had a caudal epidural injection. It reduced the pain, but now I am dealing with some rectal pressure that only alleviates SOME when I lay down on my stomach. I have an appointment with dr. Feigenbaum September 24. Will be flying from Boston, just for the appointment. I have decided that If I am a candidate for the surgery, I will go ahead. I have received an incredible amount of support from Reta Honey-Hiers at the Tarlov Cyst Foundation. I will keep you posted. I would like to hear from you and other people as well. Be well!

Hi tomato girl
Just checking in. How are things going for you? My surgery date is November 11 so am anxious to know how you are
Any suggestions / recommendations??
I hope you are well

Telvaker,
all the very best to you for your surgery.

I remember how you were having such a difficult time with your doctors when you first came here to post.
Take care there!

Hi Amy, I just found out I have 5 Tarlov cyst in my neck and I'm having some pain especially when I sleep. I feel like I put my hand in an outlet and it seems to be affecting my right shoulder too. I have read a lot about it but it seems like there is not much that can be done as most of it be temporary. I heard about this Dr. You went to and I was wondering how things are after the few years. Has it worked? Or are you still having some problems? Please let me know. I an so down about this. I hope it's worked out for you.
Thanks. I appreciate it.