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Old 02-07-2015, 07:13 PM #71
bobiJ bobiJ is offline
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Quote:
Originally Posted by Zoulaikha View Post
Hello, I am going to have surgery with DR Feigenbaum. I have 3 cysts. I heard good result about his surgery and bad noes too. some got more pain, some had leak and the cyst refilled with in a year and two. Some developed new pain. Has anybody had surgery with Dr. Feigenbaum 3 or 2 years ago to tell us about the outcome. Thank you.
I had 5 cysts. Surgery was on October 2012. Two years later, report from my MRI is no cysts or leaks. I would recommend Dr. Feigenbaum to everybody who is considering surgery.
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Old 02-16-2015, 02:30 PM #72
rnl50000 rnl50000 is offline
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Default A big Thanks!!

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Originally Posted by bobiJ View Post
I had 5 cysts. Surgery was on October 2012. Two years later, report from my MRI is no cysts or leaks. I would recommend Dr. Feigenbaum to everybody who is considering surgery.
I thank you and Bridges for hanging in and giving hope to so many.

rnl50000
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Old 03-30-2015, 12:07 PM #73
deepumakaraju deepumakaraju is offline
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Default tarlove cyst

I am from india Today i have been diagnosed with tarlove cyst in sacral spinal canal with 12*8 mm size on right side
can i go for a surgery? what will be the expences for surgery?
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Old 04-09-2015, 11:37 AM #74
Tomatogirl Tomatogirl is offline
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Hi Folks-

Just had surgery with Dr. Feigenbaum in Dallas yesterday for small but multiple Tarlov cysts. (He also sees patients in Cypress.) Am now resting at the hospital. He found 8 cysts and definitely confirmed nerve compression. At least 5 were seen on imaging, but some turned out to be two cysts instead of one. He did laminectomy to treat the cysts and placed a dorsal polymer plate. Surgery took about 2.5 hours plus post op recovery. On waking the numbness I had in both feet is now gone!

Only have had some nausea, and normal surgical pain that is being decently controlled. Right now they have me restricted on movement to prevent spinal fluid leaks and they have started to progressively elevate my head today. So far so good.

The nursing care at Pine Creek Medical Center is excellent, better than what I've had at most places. The patient to nurse ratio is very low. My nurse has three patients under her care at the moment. The staff here also speak unprompted and highly of Dr. Feigenbaum's care and work to help people to receive appropriate care for Tarlov cysts and the like, many who have been misdiagnosed and undergone some difficult treatments. (One patient suffered an unnecessary vulvectomy BEFORE being helped by Dr. Feigenbaum.)

How some neurologists think that Tarlov cysts are all asymptomatic is absolutely beyond me.

For me, seeing Dr. Feigenbaum and having the surgery Is moving me in the right direction.

If anyone has questions on what I'm undergoing, please feel free to post or PM me.
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Old 05-03-2015, 09:02 AM #75
Scarmandy Scarmandy is offline
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Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
Hi Amy, I just found out I have 5 Tarlov cyst in my neck and I'm having some pain especially when I sleep. I feel like I put my hand in an outlet and it seems to be affecting my right shoulder too. I have read a lot about it but it seems like there is not much that can be done as most of it be temporary. I heard about this Dr. You went to and I was wondering how things are after the few years. Has it worked? Or are you still having some problems? Please let me know. I an so down about this. I hope it's worked out for you.
Thanks. I appreciate it.
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"Thanks for this!" says:
Lara (05-06-2015)
Old 05-06-2015, 03:05 AM #76
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Hi Scarmandy,

I can't help with your questions but I just wanted to send you a "Welcome" to the NeuroTalk Support Groups.
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Old 06-25-2015, 02:51 PM #77
Lolapdg Lolapdg is offline
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Default Waiting for surgery with Dr F

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Originally Posted by Bridges View Post
Sandra,
If you are "considering surgery", perhaps you do not need it? I can speak only for myself, but once I made the connection with Dr. Feigenbaum, my primary concern was "when can we proceed with the procedure?". When it is determined that surgery is the most appropriate course of action, then it is your responsibility to prepare yourself for the procedure. By that I mean you must watch your diet, arrange for post-op assistance for your in-home care, and address a range of issues that your surgeon will discuss with you once you have been selected. This procedure is not comparable to going to the dentist.....it can literally restore your life, but you play a major role in the outcome.
David
Hi David.
Was wondering if I could reach out to you about your recovery now that some time has passed since your surgery with Dr. F. New to the site. Still learning it. I would appreciate any one else's input as well.

Thanks.
Lola
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Old 07-09-2015, 09:34 PM #78
Zoulaikha Zoulaikha is offline
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Default Tarlov Cyst

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Originally Posted by Bridges View Post
A few things you can do: Be kind to your body. Be aware of what you put into it...treat it like a baby, and nourish it as though you are bringing it back to life. Stay healthy: Remain active, but do NOT do ANYTHING that can cause an impact to the spine, or requires you to exert those muscles which affect your spine, as in heavy lifting. Walking, water aerobics, and gentle yoga were activities I engaged in after surgery. Avoid standing or sitting for prolonged periods. Lying flat on your back, sometimes with your knees pulled up to your chest with your hands around your ankles or knees, will help you remain flexible. When using stairs, do it slowly, one step at a time. If you smoke, stop. If you consume alcoholic beverages, use moderation. A glass of red wine helped calm me, as I wanted to get going again, since I had been "cured"! Don't expect that all will return to "normal" within a few weeks. Your body has undergone a major invasive procedure, and will require some to heal and adjust. PM me if you have further questions. And, welcome to the Club!
David
PLease I want to call you and talk to you. I have 3 tarlov cysts and I need surgety. I am frighten of taking pain killers. I cannot tolerate them. I suffer now, but I cannot take pills. How long one has to take painkillers after surgery?
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Old 07-09-2015, 09:51 PM #79
Zoulaikha Zoulaikha is offline
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Default I have terrible cause by TC

Quote:
Originally Posted by Bridges View Post
My Advice:
Don't expect a miracle. Follow the advice of Dr. Feigenbaum. You owe a great deal to Dr. Feigenbaum and his team, and to others who have been down this path. Limit your activities, take the time to "heal yourself", and do all you can to assist your body in repairing yourself.
I just put in another 10 hour day at work, building a home for a client here in Oregon. In 2006 I was told to "accept my disability", but I would not. I worked hard to find a "cure", and a solution, and Dr. Feigenbaum restored my life. You also have the opportunity to become "whole". Work at it, prepare yourself for surgery, and behave yourself for the next few months. You too could reap the rewards, as I have.
"Bridges"
Bridges, may I call you and talk about the surgery. Please could you email me your phone number? Thank you.
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Old 07-09-2015, 10:30 PM #80
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Quote:
Originally Posted by Zoulaikha View Post
PLease I want to call you and talk to you. I have 3 tarlov cysts and I need surgety. I am frighten of taking pain killers. I cannot tolerate them. I suffer now, but I cannot take pills. How long one has to take painkillers after surgery?

You can read Bridges past posts by going to his profile page /statistics , you may find out the information that way.
If he is a farmer & home builder it is his busy season right now, probably why he hasn't been online for awhile..

You can use the search tool also for specific details posted on our forums.
http://neurotalk.psychcentral.com/search.php

The pain pills & time frame after surgery would be something a surgeon could tell you, often it differs for each person, case by case.
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