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07-10-2015, 11:42 PM | #81 | ||
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Junior Member
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Sorry for the delay in responding to requests: Due to "technical issues", as in my computer crashing, I am somewhat behind.
Anybody wishing to contact me please send a "Private Message" through this forum. I can also be reached through the Tarlov Cyst Disease Foundation site. (I hope our moderator will allow this..?) Trust me, there is hope, and for many a cure. David |
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07-10-2015, 11:56 PM | #82 | ||
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Junior Member
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Jo*mar,
Thanks for the intervention! Yes, as a farmer, this is the busiest time of the year. And for me, it has been the most productive since coming on to this place twenty years ago. I will take this opportunity to thank you for providing this forum for those seeking information regarding Tarlov/Perineural Cysts, their symptoms, and possible treatments. This "journey" has taken me to places I never imagined.....I now have the opportunity to put to use skills I learned over the last 45 years. Or is it 50? The Tarlov Cyst Disease Foundation has made great progress in the past few years, and recent contributions to fund research will greatly enhance our ability to determine what factors lead to some individuals being susceptible to this disease. "Bridges" |
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07-11-2015, 12:00 AM | #83 | ||
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Junior Member
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Private message me at this forum. I am available by phone, text, or e-mail.
"Bridges" |
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07-18-2015, 11:24 PM | #84 | ||
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New Member
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I was just curious because I have tarlov cyst and have been suffering with severe pain for almost 3 years and just been getting jumped around I was wondering how the surgery when and how long you have until it comes back or does it?
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07-19-2015, 11:13 PM | #85 | ||
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Junior Member
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Larry,
I had my surgery November 30, 2010, and I do not expect to have a reoccurrence of my symptoms. It is unknown if my cyst was "pre-existing", but it became symptomatic as a result of trauma to the spine, an impact injury. My accident occurred on March 10, 2006, and I spent the next several years searching for a "cure". I had been told to "just accept that (you) will never recover from this ...." No, I wouldn't accept that. Slowly, radiologists, neurologists, urologists, and others in the medical community are beginning to accept that Tarlov/perineural cysts are not just an "incidental finding". |
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07-31-2015, 11:49 AM | #86 | ||
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Junior Member
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Hi Tomatogirl,
I hope you continue to recover from the surgery. Can you send us a few words about your progress? That is much appreciated. Have a peaceful and painless weekend! Quote:
Quote:
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08-04-2015, 07:09 PM | #87 | ||
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Junior Member
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Hi tomato girl. Can you please update us with your progress? How are things going?
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08-12-2015, 06:43 AM | #88 | ||
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Junior Member
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Hi Telvaker. Hope you are doing well. Three weeks ago I had a caudal epidural injection. It reduced the pain, but now I am dealing with some rectal pressure that only alleviates SOME when I lay down on my stomach. I have an appointment with dr. Feigenbaum September 24. Will be flying from Boston, just for the appointment. I have decided that If I am a candidate for the surgery, I will go ahead. I have received an incredible amount of support from Reta Honey-Hiers at the Tarlov Cyst Foundation. I will keep you posted. I would like to hear from you and other people as well. Be well!
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10-29-2015, 07:21 PM | #89 | ||
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Junior Member
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Hi tomato girl
Just checking in. How are things going for you? My surgery date is November 11 so am anxious to know how you are Any suggestions / recommendations?? I hope you are well |
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10-29-2015, 07:37 PM | #90 | |||
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Legendary
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Telvaker,
all the very best to you for your surgery. I remember how you were having such a difficult time with your doctors when you first came here to post. Take care there! |
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