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Old 03-13-2014, 06:46 PM #1
bobiJ bobiJ is offline
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Hi, I am new too. I am miserable and depressed too. I was wondering if you would share your symptoms so we can compare? I don't really have pain either except in my groin. I just have weird neurological creepy stuff in my legs. I just had an MRI and a tarlov cyst was found at S1. I have had pelvic/groin pain for the last year. I had multiple studies...Abdominal CT, colonoscopy, sonograms, etc. .... Nothing showed up. The pain got so bad that I went to the ER in April and was told I had diverticulitis. That happened 3 times over last summer. They told me that I needed a colon resection. I had a colon resection in August and guess what...still had the groin/abdominal pain. I just had the MRI that showed the cyst. I think I had my sigmoid colon removed unnecessarily... Then I started having the parenthesis in my legs. That is why I had the MRI. Have you had groin/abdominal pain?
Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
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"Thanks for this!" says:
ylrhylrh (04-24-2014)
Old 03-31-2014, 10:13 AM #2
ylrhylrh ylrhylrh is offline
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Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
Thank you so much for replying. I am new here and don't know how to maneuver around the site. Would you mind talking to me about your experience? If not, could you tell me how to email or call you? Thank you!!
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Old 04-12-2014, 05:12 PM #3
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Thank you so much for replying. I am new here and don't know how to maneuver around the site. Would you mind talking to me about your experience? If not, could you tell me how to email or call you? Thank you!!
I have many neuro 'creepy' leg effects. I swear it effects my vision at times
Too.

Jean in Florida
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Old 04-24-2014, 10:15 PM #4
ylrhylrh ylrhylrh is offline
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Yes, I had lower abdominal pain and groin pain too. Don't have after surgery. I had 2 large cysts, had surgery on 5. I am about 17 months after surgery.
Do you know the location and the size of the symptomatic ones? So good you don't have the pain any more . Did you have other symptoms besides the groin and abdominal pain? My cyst is on S2 and is 1.3 cm. thanks
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Old 04-25-2014, 06:08 PM #5
bobiJ bobiJ is offline
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Do you know the location and the size of the symptomatic ones? So good you don't have the pain any more . Did you have other symptoms besides the groin and abdominal pain? My cyst is on S2 and is 1.3 cm. thanks
From my first MRI, on S3, about 11mm, this was 2011. I had surgery on 5 cysts, S3 L+R, S4 L+R, and S2 R. I was treated for bulging disk for all that time before . I had pain in my lower back, that was reason to see Dr. When they said is disk causing the pain, I got all these treatments they could give me.no help. I had surgery for TC pretty quick after I found out it got bigger.
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Old 04-26-2014, 06:24 AM #6
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From my first MRI, on S3, about 11mm, this was 2011. I had surgery on 5 cysts, S3 L+R, S4 L+R, and S2 R. I was treated for bulging disk for all that time before . I had pain in my lower back, that was reason to see Dr. When they said is disk causing the pain, I got all these treatments they could give me.no help. I had surgery for TC pretty quick after I found out it got bigger.
Thanks for responding . Just curious. What area of your thigh hurt? Front, inner, back, or outer? Also, was 11 mm the size your cyst was when you had the surgery? I read that the best outcomes are with cysts over 15 mm. Are you totally pain free now? I hope so
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Old 04-26-2014, 07:59 PM #7
ylrhylrh ylrhylrh is offline
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Default Can symptoms come and go?

Do any of you know if the symptoms from the cysts come and go for days, weeks, months, or years? Or has you experience been that once you get the symptoms they don't go away? Thanks
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