advertisement
Reply
 
Thread Tools Display Modes
Old 04-12-2012, 11:46 PM #1
amy93stang amy93stang is offline
Junior Member
 
Join Date: Apr 2012
Posts: 10
10 yr Member
amy93stang amy93stang is offline
Junior Member
 
Join Date: Apr 2012
Posts: 10
10 yr Member
Default Tarlov Cyst Surgery

I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
amy93stang is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ademasters (04-24-2013), bubblewrapped (03-21-2019), gwen0725 (07-13-2012), Nonna (11-10-2013), Pakerbs (11-14-2019), SunnySunny (06-13-2022), thesuz (12-12-2012)

advertisement
Old 06-08-2012, 06:54 PM #2
samsonjake samsonjake is offline
New Member
 
Join Date: Jun 2012
Location: jupiter florida
Posts: 2
10 yr Member
samsonjake samsonjake is offline
New Member
 
Join Date: Jun 2012
Location: jupiter florida
Posts: 2
10 yr Member
Default help

I too, have just been diagnosed with 5 cysts. I am in the process of hearing that there's basically nothing that I can do except to learn psychological coping methods. I'm currently on celebrex, requip and tramadol. I took Lysine today as well. My husband, bless is heart, has been a crusader in this in the last 72 hours and came across your surgeon. What advice can you give me? I have 3 little ones and i'm only 37. I'm frustrated, mad, feel defeated, while at the same time ...I feel elated that I"M NOT CRAZY!!! These took 5 years to finally diagnose. It's been decided that I've had these for around 20 years. I would love to hear about your surgery and any advice you can give me! thanks so much! Shelly
samsonjake is offline   Reply With QuoteReply With Quote
Old 07-06-2012, 12:06 PM #3
Angela King Angela King is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
Angela King Angela King is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
Question Tarlov cyst

I have been diagnosed with a large Tarlov cyst in my sacral area which is causing severe pain and discomfort in my lower legs - particularly bad in my right leg, with numbness from the knee to the toes. I would like to have surgery. Amy, was this surgery expensive? I live in UK.
Angela King is offline   Reply With QuoteReply With Quote
Old 07-13-2012, 10:42 AM #4
gwen0725 gwen0725 is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
gwen0725 gwen0725 is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
Default hey there

Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
Thank you for posting. I live in NC, May I ask where you live? And the process for Dr. Feigenbaum?
gwen0725 is offline   Reply With QuoteReply With Quote
Old 07-13-2012, 03:47 PM #5
yoganana yoganana is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
yoganana yoganana is offline
New Member
 
Join Date: Jul 2012
Posts: 1
10 yr Member
Default doc in this area?

Quote:
Originally Posted by gwen0725 View Post
Thank you for posting. I live in NC, May I ask where you live? And the process for Dr. Feigenbaum?
I am in NC too - do you know Docs in our state; I am at beginning of Tarlov journey, so not even thinking surgery, just want someone knowledgable to manage pain while I pursue alternative therapies.
yoganana is offline   Reply With QuoteReply With Quote
Old 08-18-2012, 07:18 PM #6
Silver Silver is offline
Junior Member
 
Join Date: Aug 2012
Posts: 25
10 yr Member
Silver Silver is offline
Junior Member
 
Join Date: Aug 2012
Posts: 25
10 yr Member
Default Cysts, different kinds?

I also have Tarlov cysts, but others named and not named inside my spinial cord. Two days agao they found cycts in my kidneys also, not named just kidney cycts. Any idea why people get these or have multiples of different cycts and in different places? After reading they can come back and cause more to develope I decided not to do surgery, plus I have alot of other issues - tumors - any advise
Silver is offline   Reply With QuoteReply With Quote
Old 09-15-2012, 05:36 PM #7
vibewise vibewise is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
vibewise vibewise is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
Default Tarlov Cyst surgery

Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
Hi Amy,

My sister has been diagnosed with a tarlov cyst, which is causing her debilitating pain and I'm wondering how your surgery went and if all is well with you post operation. I had read that draining/aspirating these cysts is often ineffective in that they fill up again shortly thereafter, so I'm wondering if yours have stayed drained.

Thanks for posting and inviting others to reach out to you.

Regards,
Lisa
vibewise is offline   Reply With QuoteReply With Quote
Old 09-15-2012, 07:48 PM #8
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
Default tarlov cyst

Quote:
Originally Posted by amy93stang View Post
I had surgery 12-5-2012 for Tarlov Cyst with Dr. Feigenbaum in Kansas City. I had 5 giant cyst in my sacral area. One was removed and 4 drained and wrapped with a bovine heart. If anyone has question email me.
I have 2 Tarlov cysts, and waiting to be scheduled for surgery with Dr. Feigenbaum in Dallas. Long wait, about one month and did not get scheduled yet. Did surgery helped you? and how long was recovery time.
bobiJ is offline   Reply With QuoteReply With Quote
Old 10-08-2012, 07:55 AM #9
Rob64 Rob64 is offline
New Member
 
Join Date: Oct 2012
Posts: 3
10 yr Member
Rob64 Rob64 is offline
New Member
 
Join Date: Oct 2012
Posts: 3
10 yr Member
Exclamation I have them

Just got news I have these cyst i am so angery not sure what to do i want to go back to being myself active could some one tell me how does the surgery work I have read mixed things bad or goodi did it work
Thank you
Rob
Rob64 is offline   Reply With QuoteReply With Quote
Old 10-14-2012, 06:22 AM #10
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
bobiJ bobiJ is offline
Junior Member
 
Join Date: Sep 2012
Location: texas
Posts: 14
10 yr Member
Default surgery

Quote:
Originally Posted by Rob64 View Post
Just got news I have these cyst i am so angery not sure what to do i want to go back to being myself active could some one tell me how does the surgery work I have read mixed things bad or goodi did it work
Thank you
Rob
Rob, will have surgery next week with Dr. F. in Dallas. I hope it will go well and I will be without pain. bobiJ
bobiJ is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I too have a Tarlov Cyst AcheyBreakyNecky Tarlov Cyst 13 11-10-2013 12:37 PM
tarlov cyst hmetrisha1973 New Member Introductions 6 01-08-2012 10:57 AM
tarlov cyst SUE, ENGLAND New Member Introductions 2 10-22-2010 12:56 AM
Tarlov Cyst Back spasms & cost of surgery concernedwife New Member Introductions 12 02-06-2009 03:16 PM
Arachnoiditis Related to Surgery on Tarlov cyst GJZH Tarlov Cyst 1 12-02-2008 12:06 AM


All times are GMT -5. The time now is 05:32 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.