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Old 10-28-2013, 07:40 PM #1
ccmcguire ccmcguire is offline
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Default pain could be from cyst

Quote:
Originally Posted by jlco View Post
I have a question about these cysts,are the the same,perineural and tarlov?I recently had a mri and a 3mm perineural cyst was found in c6-and c7,on the right.The doctor said results were normal,are these cysts "NORMAL" cuz 90% of my pain,which is burning and radiating,is on my right side,The neuro doctor said pain was not from cyst,but i think it is,does anyone have a perineural cyst in the neck that caused pain?any info would help,my life is ruined from my neck pain.thank you
Pain could be from the cyst. Most doctors think they are benign, however approximately 20% or more are not benign. Check into the "Tarlov Cyst Foundation" for information, they have a website. Also, most recognized surgeon on the subject is Frank Feigenbaum at Tarlov Cyst Institute who also has web page. Educate your yourself. I'm not necessarily recommending surgery. I've been living with the pain for four years. My cyst is 8 mm and is at the right of my S2. I guess most of these are in the sacral region but it is my understanding they also occur in the C and T areas. Sorry you have it, it is a thankfully small club but very painful.
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Old 07-04-2014, 07:22 PM #2
Lazareth Lazareth is offline
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I was just diagnosed with Bilateral perineural cysts on C-7 and T-1 and Left perineural cysts on T-1 and T-2, also facet arthropathy at C-2 through C-4 , spurs, and disc disease in my neck. And a bulged disc @ C5-6 and disc space narrowing. I suffer from burning between the shoulder blades, pins and needles sensation all over my body. Sometimes so severe that even a strong breeze across my skin is painful. My neurosurgeon made the comment " You shouldn't be in so much pain with your condition" and promptly dismissed me after spending a whole 5 minutes with me. My family physician now has me on Gabapentin (Neurontin) and Hydrocodone. I'm supposed to take 4 of the hydrocodone daily but currently only taking 1/2 in the Am and half in the PM.. I was told I wasn't a candidate for surgery or epidural shot (already had two). My question is this.. will this condition go away, am I stuck with it for the rest of my life doomed to a daily routine of drugs?
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Old 07-11-2014, 09:24 AM #3
Bridges Bridges is offline
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You are "stuck with it" only if you choose to be stuck with it. Do some research, and get another consult with a neurologist who has an open mind and accepts new procedures for addressing disabling conditions. It will require perseverance on your part, but a life of Neurontin and hydrocodone is no life at all. I've been there.
I continually praise the work of Dr. Feigenbaum as he was the one neurologist who actually took the time to consider my symptoms and offer a solution. Then he restored my life.
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Old 08-09-2014, 11:46 PM #4
16rhonda 16rhonda is offline
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Quote:
Originally Posted by jlco View Post
I have a question about these cysts,are the the same,perineural and tarlov?I recently had a mri and a 3mm perineural cyst was found in c6-and c7,on the right.The doctor said results were normal,are these cysts "NORMAL" cuz 90% of my pain,which is burning and radiating,is on my right side,The neuro doctor said pain was not from cyst,but i think it is,does anyone have a perineural cyst in the neck that caused pain?any info would help,my life is ruined from my neck pain.thank you
Ive been suffering w neck, upper back, shoulder, arm hand pain, numbness & burning for 11 yrs now. Have had 8 surgeries in the last ten yrs, including a C5/6 Fushion Diskectomy.
more recent Thoracic Outlet decompression. I had a recent MRI due to having increased shoulder & arm pain & cramping. Of all the MRI 's ive had over the yrs, this last one in May, shows perineural cysts in 4 levels on both sides. My neurologists says hes not concerned with this, cuz there in 4 levels, if it was just one level its more concerning. I had one at T2 level bf my neck surgery, but my neurosurgeon didn't think anything of it, maybe cuz I had other issues with C -spine going on. The Radiologist didn't comment on the size of my cysts. Yes, Tarlov & Perineural are the same. Tarlov is the Dr 's last name who discovered these cysts I think in the 1930 's.
Hope this helps, Good Luck!
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