advertisement
Reply
 
Thread Tools Display Modes
Old 11-19-2013, 08:45 PM #11
SunflowerGarden SunflowerGarden is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 2
10 yr Member
SunflowerGarden SunflowerGarden is offline
Newly Joined
 
Join Date: Nov 2013
Posts: 2
10 yr Member
Default Size Does Not Dictate

Quote:
Originally Posted by dbutton View Post
Hi......I have chronic pain in my neck. Finally had mri and the report showed 5 perineural cysts 2 between c6-c7 one at c7-t1 and 2 at t1-t2. I work at the hospital where I had the mri and he told me thst the largest is 1 cm. Today I went to see a neurosurgeon at a major chicago hospital. I was told that they are incidental and could not be causing my symptoms. My biggest complaint besides the constant pain is severe burning and radiating pain across my neck with arm movement. I guess my question is, does anyone know how big these cysts have to be to cause pain? I was very disappointed and frustrated with my appoinent today. He says uts just arthritis and suggested physical therapy and wants to do an emg for carpal tunnel?
I saw a chiropractor for waking up wrong on my neck. Everything was alright until she adjusted me. Within 24 hours, my neck locked and the left side of my face swelled and I was in pain. The weird part of it was that I began having pain down my arms and legs. I called them and they took me back in a couple days later. I was told that a bone was out of place and that it had to be readjusted to get it back in. I was concerned, but complied because I looked like the hunchback of Notre Dame. I wish now, that I had gone to the emergency room. After and MRI of both the top and full back, I have 3 Tarlov cysts. One in the neck, back and one on s2. The first neurologist I saw did not want to touch me when he saw the MRI. He told me not to let anyone touch the cysts. Then, he sent me on my way.

I have been going to another doctor and he felt I needed to have surgery. I am getting a third opinion soon. After doing the research I believe the chiropractor caused these. When there is trauma to the spine and spinal fluid is interrupted, they form. They are on the nerve roots which means that they do not have to be large to be symptomatic. I also have one at 1 CM on s2 and it is very symptomatic. I have most all of the symptoms on the list including bowel issues. The day before this incident happened, I had none of this. I wonder if this has happened to anyone else?
SunflowerGarden is offline   Reply With QuoteReply With Quote

advertisement
Old 07-04-2014, 07:22 PM #12
Lazareth Lazareth is offline
Newly Joined
 
Join Date: Jul 2014
Location: Monticello Iowa
Posts: 1
8 yr Member
Lazareth Lazareth is offline
Newly Joined
 
Join Date: Jul 2014
Location: Monticello Iowa
Posts: 1
8 yr Member
Default

I was just diagnosed with Bilateral perineural cysts on C-7 and T-1 and Left perineural cysts on T-1 and T-2, also facet arthropathy at C-2 through C-4 , spurs, and disc disease in my neck. And a bulged disc @ C5-6 and disc space narrowing. I suffer from burning between the shoulder blades, pins and needles sensation all over my body. Sometimes so severe that even a strong breeze across my skin is painful. My neurosurgeon made the comment " You shouldn't be in so much pain with your condition" and promptly dismissed me after spending a whole 5 minutes with me. My family physician now has me on Gabapentin (Neurontin) and Hydrocodone. I'm supposed to take 4 of the hydrocodone daily but currently only taking 1/2 in the Am and half in the PM.. I was told I wasn't a candidate for surgery or epidural shot (already had two). My question is this.. will this condition go away, am I stuck with it for the rest of my life doomed to a daily routine of drugs?
Lazareth is offline   Reply With QuoteReply With Quote
Old 07-11-2014, 09:24 AM #13
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Bridges Bridges is offline
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
10 yr Member
Default

You are "stuck with it" only if you choose to be stuck with it. Do some research, and get another consult with a neurologist who has an open mind and accepts new procedures for addressing disabling conditions. It will require perseverance on your part, but a life of Neurontin and hydrocodone is no life at all. I've been there.
I continually praise the work of Dr. Feigenbaum as he was the one neurologist who actually took the time to consider my symptoms and offer a solution. Then he restored my life.
Bridges is offline   Reply With QuoteReply With Quote
Old 08-09-2014, 11:46 PM #14
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Post

Quote:
Originally Posted by jlco View Post
I have a question about these cysts,are the the same,perineural and tarlov?I recently had a mri and a 3mm perineural cyst was found in c6-and c7,on the right.The doctor said results were normal,are these cysts "NORMAL" cuz 90% of my pain,which is burning and radiating,is on my right side,The neuro doctor said pain was not from cyst,but i think it is,does anyone have a perineural cyst in the neck that caused pain?any info would help,my life is ruined from my neck pain.thank you
Ive been suffering w neck, upper back, shoulder, arm hand pain, numbness & burning for 11 yrs now. Have had 8 surgeries in the last ten yrs, including a C5/6 Fushion Diskectomy.
more recent Thoracic Outlet decompression. I had a recent MRI due to having increased shoulder & arm pain & cramping. Of all the MRI 's ive had over the yrs, this last one in May, shows perineural cysts in 4 levels on both sides. My neurologists says hes not concerned with this, cuz there in 4 levels, if it was just one level its more concerning. I had one at T2 level bf my neck surgery, but my neurosurgeon didn't think anything of it, maybe cuz I had other issues with C -spine going on. The Radiologist didn't comment on the size of my cysts. Yes, Tarlov & Perineural are the same. Tarlov is the Dr 's last name who discovered these cysts I think in the 1930 's.
Hope this helps, Good Luck!
16rhonda is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
perineural cyst in cervical spine (Neck) Maylee Tarlov Cyst 6 01-24-2017 02:22 AM
Cervical Spine BradSmith General Health Conditions & Rare Disorders 2 12-11-2011 07:12 PM
cervical spine alzo25 Spinal Disorders & Back Pain 2 11-06-2011 07:49 PM
Cervical Spine MRI Mr Bean New Member Introductions 3 03-23-2007 03:09 AM
RSD OF THE Cervical Spine!!! Bob134 Reflex Sympathetic Dystrophy (RSD and CRPS) 11 01-15-2007 06:40 PM


All times are GMT -5. The time now is 06:53 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.