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01-17-2014, 06:20 PM | #1 | ||
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Junior Member
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I guess everyone who had the surgery is better and not on here. I did get one woman tell me to check out Dr. William Welch in Pennsylvania. She said 2 people she knows both had good results including herself. I called today and was told he won't remove the cysts unless you have tried aspiration or fibrin glue without success first and referred me to Dr. Long in Maryland. |
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01-21-2014, 08:29 AM | #2 | ||
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I am the one who had the successful surgery with him in 2011. I was back to work in 3 months. I had FGI because I wanted to try that first. Not because I had to do it. |
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02-26-2014, 04:09 PM | #3 | ||
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The question is to have surgery or not? As you can see, not many replies after 2 years or more results from patients after having surgery: good or bad. There is limited information to find first hand experience from patients. THe other question: How much pain are you in? Can you still function doing normal routine activities? My opinion, as long as I am able to function with daily living activities without outside help than surgery right now is not the answer. Having surgery is very risky on the spine and doctors cannot guarantee results. There is always the possibility that you could be worse after surgery. If one is desperate, than go ahead and have surgery. If not, look into other ways to combat pain and to live a relatively normal life as much as possible. I live with nerve pain in the legs, feet, and muscle spasms in back daily, limited to walking 15 minutes and best in recline position when sitting but I can still enjoy life otherwise. I am on disability. Your brain is controlling the pain, program the brain differently and see what happens. Try yoga and meditation and massage. Best of luck to you. Kathryn1 |
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04-23-2014, 05:30 PM | #4 | ||
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Did you meet with him in person? I am going through this now and I cannot deal with the 24/7 pain and am considering surgery.
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04-24-2014, 05:05 AM | #5 | ||
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Hi Katrina, where are your cysts and what are your symptoms? I am also trying to decide whether to contact Dr. F in Texas or Dr. Henderson in Maryland. I think Dr. F is supposed to be the best, but I live in the DC area so may see Dr. Henderson. Do you have other issues with your back that can complicate this?
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06-27-2014, 07:18 PM | #6 | ||
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I did not meet with Dr. F in person. It was a phone consultation. This made me leery also. He had all my files, MRI's, etc. but to recommend surgery without seeing me made me uncomfortable. Also he asked if sex relations were painful. I stated I was not sexually active. He writes on his report that sex relations are painful. This also made me leery. Dr. F. is considered an expert in the field regarding Tarlov cysts, but, as I stated before, I am not desperate at this time to relieve the off and on symptoms that are severe with surgery. If I was you, I would look into Dr. F's history of success with patients and see him in person. Do not do a phone consultation! Also, ask yourself if you will be better off having the surgery? How many cysts do you have and where are they? Have you been to a neurologist, pain education doctor, tried yoga and meditation, physical therapy. biofeedback? Operating on the spine is very invasive in which you could result with incontinence, bowel problems, nerve problems that could be worse than you have now. Try all options before considering surgery. If you are one of the lucky ones with good results after surgery, good for you! Best of luck and I hope you find the right answer. Kathryn1 |
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07-05-2014, 09:51 PM | #7 | ||
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Kathryn1 |
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02-26-2014, 04:21 PM | #8 | ||
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Did you try to contact Dr. Frank Feigenbaum in Dallas, TX? He is a renowned neurosurgeon that has had success with patients. He recommended me to have surgery due to the 5 Tarlov cysts. I opted out for now due to him saying to me there is no guarantees. I know doctors cannot guarantee the results due to prior nerve damage to surgery but, for now, my symptoms are not severe daily but off and on. WHen the symptoms do become severe daily, than I would reconsider surgery again. In the meantime, doing more research and trying to relieve the symptoms holistically. I hope this helps. Also contact the Tarlov Cyst Association for more information. Kathryn1 |
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