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Old 02-23-2016, 07:55 PM #21
bobiJ bobiJ is offline
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Location: texas
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bobiJ bobiJ is offline
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Originally Posted by Toma View Post
Dear David. Sorry to bother you, but this is my story. Two and a half years ago I saw Dr. FF. He suggested the surgery, but I was scared to death. Now, I hardly tolerate pain and ready to take the risk.
I am 61 work in the office sitting all day long and taken at leas 6 pills to survive until the end of the working day.
To make a living, I need to work at least for four more years before I can retire.
I have an insurance through my work. Not the best, but it's better than nothing.
I live is St. Louis. I have to start the whole process with tests again according to Dr. F's assistant.
How long did you wait before they took you for the surgery?
How it could work to fly to Dallas? Where to stay after the surgery? How long will it take before I can take the plane to go back home? Should somebody stay with me? What the average price for the surgery, of course it varies.. I understand.
So many other questions, but do not want to overwhelm you.

Thank you!
Toma.
Hi Toma, assistant in Dr. F's office should give you all the info you need. Surgery is done in Pine Creek Medical center in Dallas, one of the best. In surgery info I got was everything you need to stay in Dallas, names of hotels, restaurants etc. They will help you with all that. And yes, somebody should stay with you. There is a lot o restrictions after your surgery, you will need somebody around. My husband stayed home with me for 2 weeks. And I had to stay home for 90 days before returning to work.
How long wait before surgery is scheduled depends also on your insurance.
Price is also on your insurance, deductibles and your out of packet. Pine Creek Medical will work with you on payments. I can tell you this much, this surgery is not cheap, in my case it was worth every penny.
I hope everything is going to work out for you. Take care.
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Old 12-05-2016, 08:25 PM #22
jpdalton378 jpdalton378 is offline
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Location: Arizona
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jpdalton378 jpdalton378 is offline
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Originally Posted by Bridges View Post
Nonna, and Kathryn,
I will at respond to the concerns that you both have. My surgery was on Nov. 30, 2010. I understand that not all patients have the perfect outcome that I experienced, but some of that could be explained by how severe the damage has been to the nerves and surrounding tissue. I am now nearly three years post-op, and I am able to do nearly everything I did prior to my accident. The damaged nerve(s) bothered me for some time after surgery, but I continued with my physical therapy and worked through that. I am 61 years old, and was disabled for nearly five years. I am willing to speak with anyone who has concerns or questions about Tarlov cysts, the surgery, or the recovery process. You can private message me with your phone # or I will give you mine if you want to speak by phone. Full disclosure: I will be serving on the board of directors for the Tarlov Cyst Disease Foundation beginning in 2014. It is one way that I can give back to those who restored my life.
David
Hello David.. I am scheduled for surgery on December 20. I would love to talk with you, as I am getting a little nervous and I have questions... thank you!
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Old 12-05-2016, 08:27 PM #23
jpdalton378 jpdalton378 is offline
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Originally Posted by Nonna View Post
I am 68 and in the same position. My surgery is scheduled for the 18th of Dec. Besides pain I have terrible internal itching. I would like to hear from anyone who has had success and has had this terrible knawing itch also.
Nonna

Sometimes I have that internal rectal/vaginal "itch" too. My symptoms come and go and are almost always different when they return. I wonder if that is normal? But yes... internal itching... I can relate to that!
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Old 12-05-2016, 08:36 PM #24
jpdalton378 jpdalton378 is offline
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jpdalton378 jpdalton378 is offline
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Originally Posted by Bridges View Post
Toma,
I understand your initial fear....having someone expose your spinal nerves is not
easy to accept. In my case, I was willing to accept the risks, as I could no longer bear the near constant muscle spasms, combined with existing in a "drugged-out state" every day.
It was nearly one year from my first contact with Dr. Feigenbaum until the day of my surgery. During that time I underwent a series of tests at Oregon Health and Sciences University in Portland, Oregon. The final test was a temporary nerve block, which confirmed the source of the muscle spasms.
As for travel and lodging in Dallas, I know nothing about that, as my surgery was performed in Kansas City when Dr. Feigenbaum practiced at the Research Medical Center there. I would suggest you contact the staff at Dr. Feigenbaum's office and request information from them regarding hosing recommendations while in Dallas.
If you would like to speak directly with me, Private Message me and we can exchange phone numbers. I'm here to help.
David

David... I hope this is how I contact you.. I am new to this site. I am having surgery with Dr. F on December 20... and I am nervous. I am one of those people whose symptoms come and go.. and are not as severe as some I have seen on here. I wonder if I am doing the right thing to have surgery when I am not as bad as some people.. and nervous that if I don't do it now insurance will not pay for it later, as I am only approved through the end of the year. I would really love to talk to you... but I don't know how the site works and I am not sure how I can reach you. I can give you my phone number if you get this... thanks
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