Originally Posted by hevnw8s

Hi Dizzy82.

I am 3 months post-op from Tarlov Cyst surgery. Dr. Feigenbaum in Dallas performed my surgery and I am thankful for him. I can tell you the I had lower back pain for years. I then started to get a tingling sensation in my hands and face. My legs started to ache and had a heavy feeling. It felt like I had cement blocks attached to them when I walked. Then came the pain in my tailbone when I sat down...not to mention trying to stand up. That's when the shooting pain would happen.

It sounds like you have a lot of damage happening to your sacrum area and nerves. I would call Dr. Feigenbaum's office and talk to them about a consultation. In the meantime, you need to be your own best advocate with the doctors!!! They will continue to dismiss you until you talk with a Tarlov Cyst Specialist.

Also, do not do physical therapy or go to a chiropractor!!! That will only agitate the cysts and cause them to flare-up. We all know how bad the pain can get when they flare-up.

The information I gave you is from experience, research and instructions from Dr. F after my consultation and surgery.

Hope that helps
Kim

Originally Posted by dizzy82

Thanks for your reply, Kim If I was in the states, I'd contact Dr. F right away –but I am in Europe. And anxiously awaiting judgement from the doctors at the hospital.