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Old 03-17-2014, 07:55 AM #4
jcyster jcyster is offline
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Join Date: Feb 2014
Location: Pittsburgh
Posts: 3
10 yr Member
jcyster jcyster is offline
New Member
 
Join Date: Feb 2014
Location: Pittsburgh
Posts: 3
10 yr Member
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Quote:
Originally Posted by JeanKNC View Post
--------------

Wonder who you consulted with at Hopkins?

How's are you handling pain? I am 3 yrs since dx. Taking GABA and OTC.
Sometimes Flexeril at nite.

Considering surgery. Dr F Dallas. Had phone consult last yr. leg numbness n
Weakness comes n goes. But who needs that.

Good luck with low to NO PAIN.

JeanKNC
First, I had a consultation with Dr. Donlin Long, retired Johns Hopkins Neurosugeon who preformed tarlov cyst surgery prior to retirement. I decided to try the aspiration fibrin glue injection. I had excellent relief for 8 mos. Just had a second procedure Feb 6. Dr. Sudhir Kathuria at JH is an interventional neuroradiologist who preforms this.
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