Originally Posted by Oregonsand

After trying to convince my primary care doc that the pain is not in my head, the MRI results show large Tarlov cysts. I'm getting ready to go back to see my doc (who graduated med school about 20yrs ago) and am ready to hear from him the standard reply about Tarlov cysts being asymptomatic and how they couldn't possibly be the cause of my pain.
I've already printed out lots of updated info & studies that will hopefully point out the fact that Tarlov cysts can cause a lot of pain. Even if I can convince him to refer me to a neurosurgeon, I can't seem to find a single reference online to any neurosurgeons in Oregon that has any expertise in this field.
I don't have the resources to fly to Kansas or Dallas to see the doctors who operate on Tarlov cysts, and the original injury that may have caused them to form was a fall at home-so I cannot go the workers comp route.
I'm guessing there may be other people who were once in my shoes and perhaps they can guide me on where I go from here.
While it's great to finally know what is causing my back pain as I read story after story from people sharing that same pain/problems, it's also a double edged sword if I can't get treatment to correct the problem.
Any help would be greatly appreciated, especially before I return to my primary doctor.
Thanks
Cathy

Originally Posted by J for Timy

Our neurosurgeon says it CAN and does cause pain. My DAUGHTER HAS BEEN IN PAIN FOR 5 YEARS AND NO ONE COULD FIND OUT WHY. Now we know and she is scheduled for her operation in Dec. There are risks and we are worried. There must be a Dr there who does this. Call the hospitals and ask for a for their neurosurgeon and start there. Get a new primary Dr. and also be more forceful...we had to be.
J for Timy