With regards to PT, I didn't get any permanent relief of symptoms related to the cysts with PT. I'd avoid internal manipulation of the sacrum. Although it felt good to get my sacrum straightened, it would quickly fall out of alignment and it would aggravate the are in general. My pelvic floor specialist PT eventually stopped messing with sacral alignment because it was painful. She was also the first to clue in I was tender along the sacrum. What did help me some was myofascial release and massage of pelvic floor muscles and tissue but I also have residual tissue damage from a massive hematoma in the area.

Personally, I would stay away from a chiropractor. You do not want to do anything to accidentally damage any of the vertebrae and depending on how severely your cysts impinge on the vertebrae, it could be easy to inadvertently damage degenerated vertebrae further. Many people with the cysts have sacral degeneration that doctors may try to tell you is normal with age, but may be due to the cysts. Dr F is clear about being protective the sacrum and is why he puts a dorsal plate in addition to treating the cysts with sacral laminectomy.

Before surgery and while I was still able, I did aqua therapy to stay in shape. As I worsened, I focused on more gentle activities like floating and stretching in the water to relieve pressure and weight. It's also easier to gently exercise core muscles without stressing the sacrum in the water.

I was told after surgery that Dr F likes the pool for exercise too following return to activity. However, that is a ways down the road for me - post op instructions include no immersion for a month following surgery, no twisting, and they recommend a slow and gradual return to activity as tolerated among other things.

I cancelled my chiropractor who was going to internally manipulate my tailbone. How are you doing tomato Girl? Are you feeling good? When you saw dr. F did you take a current MRI of your sacrum? My MRI is 16 months old and he doesn't like using an MRN which I had done 6 months ago. It stinks cuz now I have to pay for another MRI. I don't understand why the MRN couldn't be used. My doctor and the doctors at Johns Hopkins said this imaging gave a far clearer picture of my cysts. I'm so frustrated. He's the expert in this field but this part doesn't make sense to me.
I made an appointment for June 3rd in Dallas. I just don't want to wait the 5 months it will take for him to review my imaging. Do you recall what he looks at on the imaging what makes you a candidate for surgery? How long did you have to stay in Dallas? I don't know what I'll do if I am not a candidate for surgery. I'm so beat, it's hard to stay positive when I see everyone going about life and they're happy. It's been so long since I've felt genuine happiness. Sorry to be so negative just in a bad place tonight.
Any advice dealing with dr. F or dealing with these cysts is appreciated.

I fully understand your frustration, having been there, so let me assure you that whatever it takes to get your current MRI in front of the eyes of Dr. Feigenbaum, do it! I "lost" five years of my life before he restored my health, so as you may expect I am somewhat biased. However, he has a proven track record, and you must put forth the effort to not only obtain a proper diagnosis but to follow through with the suggestions he makes for recovery.
"Bridges"

I emailed my doctor today requesting an order for a new MRI. I know she doesn't agree with his request as she feels the ones I have should be more than sufficient. I told her I already booked my flight and need to have it done. It's my life and I have a right to get help from whomever I feel I need to. I certainly can't get them to admit my cysts might be my problem. Why is that, does anyone know? What would be the point of doctors not acknowledging these cysts could affect a certain percentage of people?
I am super nervous about my appointment. But, I'm going cuz I can't quit trying to get better

Hi Tomatogirl, Happy to hear you had your surgery. Hope your recovery continues and that you are pain free. When did you had the TC surgery? Did your insurance paid for it? I am asking because I am in the process of putting together the paperwork for a phone consultation with Dr. F. God Bless You!