Go Back   NeuroTalk Support Groups > > >

Tarlov Symptoms

Reply
 
Thread Tools Display Modes
Old 08-26-2015, 04:17 AM   #1
Lemon
New Member
 
Join Date: Aug 2015
Posts: 2
Default Tarlov Symptoms

Hello - I am a newbie!

I am really suffering at the moment and am trying to connect the dots with my symptoms, so thought I would ask if anyone is experiencing or has experienced similar symptoms with Tarlov cysts...

I have spent about 7 months trying to work out what is wrong with me, but in short it appears I have five tarlov cysts in my lumbar spine all between 2 and 5 cms. I suspect I have more in my thoracic and cervical spine. Fun fun.

Symptoms in rough order from Jan this year to present:
First symptom was abdominal bloating and distention
Weird twinge in vulva region
Then reflux commenced
Neck pain
Pain between shoulder blades
Digestive system slowed
Weight started to creep up, would not fall with diet
Acne!?
Transit time slowed
Strong pain in lower left pelvic region
Moved to full blown chronic constipation
All my nails broke! (I am trying to make light of a very hideous year! Although, they genuinely did break and have not grown back!)
Headaches
Blurred vision
Ache in upper abdomen
Face started to puff up
Urination felt poor
Weight got worse, no change in diet
Twinge in vulva turned to pain in vulva
Wet the bed - WTF?
Legs and feet became all tingly and numb
Legs started to ache - now continual
Knees feel like they are dead weights
Feel constantly hot in temperature

SO, are there any red herrings in here? Has anyone else experienced dramatic weight gain and if so, is this water retention? I have put on 7 kgs and it is worrying me. I look in the mirror and do not recognise myself. I have an appointment on Friday with a neurosurgeon. I hope it is positive....

Appreciate your thoughts and experiences....

Lemon
Lemon is offline   Reply With Quote
Old 09-04-2015, 08:10 PM   #2
Lemon
New Member
 
Join Date: Aug 2015
Posts: 2
Default

A quick update -

The first neurosurgeon didn't want to know and basically told me to get lost. Luckily his saving grace was that he offered for me to see one of his colleagues. A week later, the second neurosurgeon, who was much more thorough, actually agreed that my cysts were the cause of my symptoms. I could not stop smiling!

The happiness was short lived because the following day I felt my urine output slowed down completely. It is really low. And weight gain is considerable.

Not one health care provider seems to be in a hurry to do ANYTHING. Neurosurgeon is sending me for a urodynamics test and an electrical stimulating test on my legs... but these are weeks away. Meanwhile, I can barely function as a human being.

What am I meant to do in the meantime?

I really can't function at work. Worried I need to have time off / resign / might get given the sack.

Right now, there is no clear end in sight....

Neurosurgeon has not given a plan of action for once the next tests are done and he won't be operating because he is in his 70s.

I have sent off MRIs to Dr F. Does anyone know how long it takes for them to get back to you? It has been a couple of weeks now.
Lemon is offline   Reply With Quote
Old 09-07-2015, 04:50 PM   #3
Bridges
Junior Member
 
Join Date: Oct 2012
Location: Eastern Oregon
Posts: 48
Default

I can only advise you to be patient......In my experience many of your symptoms could be related to TC's, but only a trained professional can make that determination. Dr. Feigenbaum has a busy schedule, so you should expect it to take six to eight weeks to hear back from him. I would suggest that when three weeks have passed after you sent your films, that you contact his office and confirm that they have received them.
In the meantime, do whatever you can to reduce stress in your life, and seek out support. Life will get better!
Bridges is offline   Reply With Quote
Old 02-09-2017, 10:00 PM   #4
KatherineLB
Junior Member
 
Join Date: Jan 2017
Location: Australia
Posts: 12
My Mood: Tarlov Symptoms
Default how are you?

Quote:
Originally Posted by Lemon View Post
A quick update -

The first neurosurgeon didn't want to know and basically told me to get lost. Luckily his saving grace was that he offered for me to see one of his colleagues. A week later, the second neurosurgeon, who was much more thorough, actually agreed that my cysts were the cause of my symptoms. I could not stop smiling!

The happiness was short lived because the following day I felt my urine output slowed down completely. It is really low. And weight gain is considerable.

Not one health care provider seems to be in a hurry to do ANYTHING. Neurosurgeon is sending me for a urodynamics test and an electrical stimulating test on my legs... but these are weeks away. Meanwhile, I can barely function as a human being.

What am I meant to do in the meantime?

I really can't function at work. Worried I need to have time off / resign / might get given the sack.

Right now, there is no clear end in sight....

Neurosurgeon has not given a plan of action for once the next tests are done and he won't be operating because he is in his 70s.

I have sent off MRIs to Dr F. Does anyone know how long it takes for them to get back to you? It has been a couple of weeks now.

Hi - I know it's been a long time since your post, but did you ever hear back? Ever get satisfactory treatment?

I have only just had Tarlov Cysts idenified in my cervical spine (C7/T1 T1/T2 T2/T3 and T5/T6 - they were only looking at my cervical and thoracic area in MRI)

I also have some other things going on (reverse lowest cervical spine curve, osteophyte complex at C6/7 irritating C6 nerve, requiring an injection.

plus some other stuff....

That's how I found your post and got to hoping you were able to get some relief after a horrible year!

Katherine in Australia x
KatherineLB is offline   Reply With Quote
Reply

Tags
perineural cysts, tarlov cyst

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Tarlov cysts Telvaker Tarlov Cyst 26 07-26-2015 09:51 AM
Tarlov cyst symptoms dizzy82 Tarlov Cyst 4 07-13-2014 04:52 PM
tarlov cyst hmetrisha1973 New Member Introductions 6 01-08-2012 09:57 AM
Is it Tarlov? mhollingsworth Tarlov Cyst 22 07-22-2011 07:11 AM
tarlov cyst rg57 New Member Introductions 3 11-01-2009 12:16 PM


All times are GMT -5. The time now is 03:44 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2017 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy