can you tell me what success you have had with the surgery. Ruth A

I had surgery on the Tarlov Cysts, but also have very extensive spinal problems as you can tell by my signature. I do not think the Tarlov cyst was my problem and have since been told that by other surgeons. I have had a fusion of L1 to S1 since the surgery on the Tarlov cyst and feel that surgery has done more to help me. Some people are helped by surgery on the Tarlov cyst, while others do not get any relief. I feel it really depends on whether or not you have a communicating cyst. Mine was not and probably should not have been operated on to begin with...hence the surgery probably did not do much in helping me.

Hi, could you tell me more about treatements at HJ in Baltimore ?
What about treatements of Dr. Long ?
Thanks in advance for your reply.

Renny

helo louise,

i'm ethan from malaysia. i have a 33 year old girlfriend who just recently diagnosed with Tarlov Cysts. she has 2 of them at the S1 and S4 part of her back bone with the size of 0.8 and 1.3 respectively.

she also suffer from autoimmune disease and pain on some part of her joints and body. she always tired and not in the mood sometimes and abit of libido. yes i expected the doctor didnt have any solution for this medical issue.

please help me to help her recover. i really in need of your advice so much.
i love her very much and its killing me to see her like that. she a lovely young lady. she is a brilliant baker & sugar artist.

please help me,

thank you for lending me your ears.

Hi,
I really appreciate your help.
Please tell me how was you surgery. The size of the cyst(s)?
How are you right know?
Where were your cyst(s): s1, s2, ????

What is the name of the doctor in France, where is he located, and how can I find out more ? Thanks.

http://www.tarlovcyst.org/index.php?...id=33&Itemid=1

Dr. Maitrot's new operation
Doctor Daniel Maitrot, who heads the neurosurgery department at The University Louis Pasteur in Strasbourg, is testing a highly innovative surgical operation for the treatment of Tarlov cysts. The first patient is a French physician.



Doctor Christine Lauffenburger’s Story



Christine Lauffenburger, MD was born in France on February 22, 1950. She obtained her medical license and became a general practitioner with the national health service of the French government.

Christine was 55 years old when galloping on her horse she felt something wrong in her lower back. She began to have pudendal nerve, thigh (internal side) whole pelvis area and then sciatic pain. She was also suffering from cramps, tendonitis, erratic pains in the hip and buttocks, bladder and bowel problems, and osseous (bone) pain.

One year later, she saw a general practitioner who prescribed a CT scan. The exam showed a strange mass and he prescribed an MRI on which several bilateral Tarlov cysts were discovered.

She had an appointment with Doctor MAITROT who asked for several other exams that showed neurological disorders: urodynamics, EMG, and myelography.

She waited several more months and had FGI at Strasbourg CHU, which gave relief for six weeks only. Doctor MAITROT proposed another procedure and after having waited a little, in June 2006, she became the first patient to have the new Tarlov cyst operation invented by Dr. MAITROT.

Christine reports “50% relief after 1 month and was okay after 3 months. 6 months later, she had recovered to 90% (10% of the remaining pain is due to some other spine problem)”. After 8 months she does 1 hour of sports each day and is generally intensely active,

I think is Dr. Daniel Maitrot in Strasbourg at CHU (Centre Hospitalier Universitaire).

Why not investigate with Dr. Feigenbaum in Kansas City? He treated two of my cysts one week ago with surgical approach. He is best in nation and specializes in this area. The number: 1-816-363-2500

sorry to hear of your misery. i too suffered 24/7 for i yr. before having mri that showed a 7 and 11 cm. tarlov cyst. neuroligist said they weren't causing my pain but it was coming from sacrum area. it was total misery. when my second grandchild was born i could have never carried her across the room. i ended up getting disability for the tarlov cyst and the emotional mess i was from my life falling apart. time not working finally got my pain under control. i know take neurontin twice a day and 8 yrs. later it i am still functioning and working minimal. best of luck to you.