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Old 07-23-2014, 10:54 PM #1
DonnaC42 DonnaC42 is offline
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Default Question!!!

Do any of you know of a doctor who treats tarlov cyst in Maine??
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Old 12-07-2014, 10:50 PM #2
Danni B Danni B is offline
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Default Tarlov Cyst

I just had an MRI done. I got the results and found out that I have a 1.2 cm Tarlov Cyst located in the S2 portion of my back. I have been to a specialist that did radiofrequency procedure and cortozone inj. The radio procedure worked a lot but the corotzone did nothing. When I went back telling her I still had pain she wanted me to up my Lyrica which I refused to do. At that point she was done with me. So, I got a second opinion and that is how he found the cyst. Anyways, I have brutal pain in my right buttox that wraps around to my hip and down my leg. It feels like someone is putting my leg and foot in a vice and squeezing. I started doing research and it looks like the only "good" possibility is surgery. Seems like it will only get worse with time and I dont like that option. I am working full time and am still very active but I just push myself through the excruciating pain. It causes me to be overly exhausted at the end of the day and I get very grumpy at work when the pain kicks in. I sit for the majority of the day so you can imagine how my pain level is. After my radiofrequency procedure to kill the nerves I was on Tramadol and it helped a lot. But she would not give me more saying it was for muscle pain and I didn't need it. I am only on Lyrica 50mg 2x daily. I hate pills and pain meds and don't want to have to take them all the time. What can I do? P.s. I'm only 34.
Dannielle
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Old 12-08-2014, 01:25 AM #3
Bridges Bridges is offline
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Default

Danni,
Research, research, and research. Review the website of the Tarlov Cyst Disease Foundation, and ask more questions. There is hope, and now fortunately relief for many Tarlov Cysts patients.
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