I'm brand new to this and seeking some answers. Although the diagnosis is not yet complete (I've had all the radiological stuff done but not been to the back specialist yet), after reading through all the Tarlov info, I can certainly see that as a very real posibility for me. MRI and CT indicate that is a likely diagnosis.

And you're all saying that doctors don't believe these things cause pain?!? Are you kidding?

I've got strong, burning pain in my back just below the waist (officially cysts located at L3). Some sciatic pain in left butt cheek, but not consistent. I'm 53 years old, female. 40-50 pounds overweight (and didn't every practitioner love to tell me I just needed to lose weight!). If losing 50 pounds meant that my pain would go away, I'd do it in a heartbeat!

I, too, feel better when moving. I walk three days/week with friends - I know I'm not moving the way I used to and can feel that, but at least moving helps. Can't sit for long. Standing still is a serious problem. Nights are miserable. I don't sleep for more than 3-4 hours at a time, as I wake every time I turn over. Mornings are worst for me - I need to take some Motrin and get the body moving, although how much Motrin helps is questionable. I am not currently on other pain meds - how can one work on meds strong enough to quell the pain? Perhaps I just need to learn about possible options.

I am a bit frustrated by reading the postings. It is my hope to be able to get down on the floor and play with the grandchildren I expect to have in the next few years. I cried when my family physician originally told me the pain was most likely arthritis - I cannot imagine living with this intensity of pain for the next 30 years! Luckily the MRI indicated something other than arthritis. But I still can't imagine this much pain for more than the 15 months I've been dealing with it. I really feel for those of you who have gone on so much longer already!

You have given me hope and provided some other avenues. I look forward to learning more about you and hoping for your well-being.