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03-23-2011, 08:22 PM | #11 | ||
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Hi, I am new so not sure if this will get to you but I need a Dr. in Seattle who knows anything about Tarlov cysts AND DDD/disc herneation. Who did you see? Thanks |
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09-01-2011, 06:36 PM | #12 | ||
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You've probably already had someone contact you about sacral tarlov cysts. Contact the tarlove cyst Foundation. I have one s2-s3. Causes bowel, buttocks, sciatica, leg, thigh and foot pain. On morphine. Would love to know if the surgeries are successful. Tarlovpain
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09-07-2011, 10:17 PM | #13 | |||
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hi there.... just found this group
I have sciatica ongoing ...quiets sometimes ... diagnosed 4/11 with TC at S2 ..left side... sciatica usually left side (leg, buttock, down leg to foot); numbness ... started out feeling like I had socks on .. inviible ones ! I am getting my MRI and sending report to Dr Frank Fiegenbaum, KC; *edit* Bestof luck, Jean K, NC Quote:
Last edited by Koala77; 09-08-2011 at 04:00 AM. Reason: NT guidelines |
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09-16-2011, 02:40 PM | #14 | ||
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03-02-2012, 12:14 AM | #15 | ||
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It is unfortunate but true that many well respected surgeons do not "believe" in Tarlov cysts. I had one tell me that it was "hogwash". Wow. Well I am one week post-op from having the surgery to treat my cysts performed by Dr. Feigenbaum. The post-op pain is not nearly as severe as I had imagined. The recovery process is slow and and improvements in my symptoms are still pending but supposedly that is normal. Nerves need time to regenerate...much longer than muscle tissue.
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03-25-2012, 11:54 AM | #16 | ||
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04-12-2012, 09:46 PM | #17 | ||
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04-12-2012, 11:42 PM | #18 | ||
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I had surgery for Tarlov Cyst 12-5-2011. I had 5 giant sacral cyst. They removed 1 and drained 4. My pain was unbearable the last 6 months before surgery. Dr. Feigenbaum in Kansas City did my surgery. They told me I was one of the cases he has had.
I'm still in pain but not 24/7. I'm glad I had surgery to get rid of some of pain. I'm 40 if I don't get better than what I am now. I will try more sugery later. People just don't know what kinda of pain we go through. If you have any questions please email me. Amy Quote:
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04-13-2012, 06:48 PM | #19 | ||
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I had laminectomy for S1-S3 area on the 5 giant cyst. I nerve had sciatic pain before surgery but I did after for a month. It was a horrible pain it got less and less over a month period. My doctor said probably because that nerve was compressed by cyst. When cyst drained it started functioning more. I was a sever case. Hopefuly yours wont affect you.
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04-13-2012, 06:51 PM | #20 | ||
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I sent my MRI"s to John Hopkins they wouldn't help me. I had surgery Decmeber for my cysts. I had same symptoms as you. Mine just kept getting worse. I hope they help you . Amy
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