I too was diagnosed back in early April with a large tarlov cyst and/or cysts. I have been to several neurosurgeons in my area and none can help but have been instructed to find a surgeon because of it's size (ya...that's all the help they could give me). After going to a pain management specialist, they put me on extended release Tramadol (Ultram) for the day to day pain and overall, it's working alright. I do have an appointment with a surgeon in Seattle tomorrow who has perfomed quite a few surgery's and am hopeful.

The pain management has been very helpful in getting through these last few months but I don't want to live with this pain for the rest of my life.

If anyone out there has had this surgery, I would love to hear your story.

Thanks!

Hi,
I have just joined and I did have the surgery. If you are interested in any info would you please let me know. thanks...kittycatdoglover

Hi, I am new so not sure if this will get to you but I need a Dr. in Seattle who knows anything about Tarlov cysts AND DDD/disc herneation. Who did you see? Thanks

I'm looking for a neurosurgeon in the Seattle area who has performed these surgeries. Could you share the name of your surgeon? Thanks, and I do hope you feel better soon.

I had surgery for Tarlov Cyst 12-5-2011. I had 5 giant sacral cyst. They removed 1 and drained 4. My pain was unbearable the last 6 months before surgery. Dr. Feigenbaum in Kansas City did my surgery. They told me I was one of the cases he has had.
I'm still in pain but not 24/7. I'm glad I had surgery to get rid of some of pain. I'm 40 if I don't get better than what I am now. I will try more sugery later.
People just don't know what kinda of pain we go through. If you have any questions please email me. Amy

I had tarlov cyst surgery in April of this year in KC with Dr. Feigenbaum. I would recommend his team to anyone with this terrible disease. To contact his office immediately. *edit*
He is strait foreword and will help you.