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I too have a Tarlov Cyst

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Old 03-02-2012, 12:23 AM #1
trista trista is offline
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Originally Posted by AcheyBreakyNecky View Post
This is so exciting to find others with the same,,,,,,,,Among other spine issues, I have a Tarlov Cyst at the S2, Three surgeons I have been to say this is NOT the cause of pain, and that Tarlov Cyst do not cause problems, they are just incidental findings. I had one neorologist say yes they can cause issues, and wrote me scripts for nerve pain meds, which help somewhat. I look forward to reading many post here, and please forgive me if I ask too many questions, or if I ask questions that have been asnwered as I am new here, and still finding my way about, and how to use this site.
Yep... Can you believe it? I had a well-respected neurosurgeon tell me that these cysts were "hogwash"! Many of them have never been educated or refuse to become involved with Tarlov cysts because they are a little difficult to treat. Check in with Dr. Feigenbaum in Kansas City. His specialty is Tarlov cysts! I am one week post-op from him treating two of mine.
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Old 03-21-2012, 09:20 PM #2
kimreynolds00 kimreynolds00 is offline
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Default Did you try anything before surgery
I too have a Tarlov Cyst and had the fibrin glue injection done at John Hopkins on March 8th. The pain subsided for about 5 days and now is back and gradually increasing. I was told was a 65-70% success rate, and live only 3 ours from KC where Dr. Fiegenbaum. I was told had to be three months before reconsider the fibrin glue procedure again if still in pan. I really don't want to go 3 months with the pain and narcotics make me sick. Can you share your experiences and what all you tried! Thanks so much!
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Old 03-22-2012, 09:54 PM #3
linda elliott linda elliott is offline
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Originally Posted by trista View Post
Yep... Can you believe it? I had a well-respected neurosurgeon tell me that these cysts were "hogwash"! Many of them have never been educated or refuse to become involved with Tarlov cysts because they are a little difficult to treat. Check in with Dr. Feigenbaum in Kansas City. His specialty is Tarlov cysts! I am one week post-op from him treating two of mine.
it seems a common thing for doctors to declare tarlov cysts not what's causing the pain. in 2003 when i was at my wits end with pain that's what i kept hearing. i do believe many dr.s don't have a clue about them. i was in the er many times crying my eyes out and noone seemed to understand.
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Old 03-25-2012, 12:03 AM #4
linda elliott linda elliott is offline
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it seems a common thing for doctors to declare tarlov cysts not what's causing the pain. in 2003 when i was at my wits end with pain that's what i kept hearing. i do believe many dr.s don't have a clue about them. i was in the er many times crying my eyes out and noone seemed to understand.
i just obtained a copy of my mri report from 2003.it says11mm tarlov cyst posterior s2 and 7mm cyst posterior to the right aspect of s2 vertebreal body.i was in excrutchiating pain with these. does anyone know if these would be considered big cyst.
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Old 04-14-2012, 12:04 AM #5
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I had surgery Dec 5th 2011 with Dr. Feigenbaum. How r u doing??? I still have pain not as bad.
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Old 12-12-2012, 08:17 AM #6
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Default Surgery with Feigenbaum
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Originally Posted by amy93stang View Post
I had surgery Dec 5th 2011 with Dr. Feigenbaum. How r u doing??? I still have pain not as bad.
Amy how are you now a year later? I just saw him last week and am at the point of scheduling.
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Old 10-06-2013, 07:28 PM #7
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Question I'm contemplating tarlov surgery with Dr. F
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Originally Posted by amy93stang View Post
I had surgery Dec 5th 2011 with Dr. Feigenbaum. How r u doing??? I still have pain not as bad.
I'm contemplating surgery with Dr. F. I have 8 mm cyst to the right of s2. It is getting worse. Now having tingling down both legs into feet and pain is going up the back as well. I'm wondering about scar tissue returning post op after two or three years. Does anyone know if it returns to as bad as before surgery?
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Old 10-21-2012, 11:30 PM #8
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I can believe it! Congratulations on connecting with the most experienced specialist in the WORLD when it come to Tarlov Cysts. Dr. Feigenbaum (and Debbie West and team) restored my life on November 30, 2010. And for those others who are being told that Tarlov cysts are "incidental", "benign", or "asymptomatic", remember that it was not long ago that most folks thought the earth was flat! (some still do...)
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Old 11-10-2013, 12:37 PM #9
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I can believe it! Congratulations on connecting with the most experienced specialist in the WORLD when it come to Tarlov Cysts. Dr. Feigenbaum (and Debbie West and team) restored my life on November 30, 2010. And for those others who are being told that Tarlov cysts are "incidental", "benign", or "asymptomatic", remember that it was not long ago that most folks thought the earth was flat! (some still do...)
Do you have any problems with scar tissue. How difficult was your recovery. Can you do most activities. So many questions and fears. I have surgery scheduled for dec 18 2013
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