FAQ/Help |
Calendar |
Search |
Today's Posts |
|
05-30-2009, 09:21 AM | #1 | ||
|
|||
New Member
|
Hi
I hope someone can help me with stats about Tarlov cyst surgery. I have suffered for over 30 years with back pain. Have do many symptoms related to Tarlov cyst including other surgeries, symptoms of which are related to what I have read about Tarlov's (including mention of possible connective tissue disease, Renaud's disease, ad infinitum). After many questionnable diagnoses (no doctor could give me reasons, although I do have a herniated disk, which is considered minor and various other symptoms such as paresthesis in leg and foot, odd sensations in legs, etc.) at my suggestion, because of pain in sacrum, they finally took an MRI of spine and found that I have a Tarlov cyst on S2. I have had all the symptoms all of these years, with increasing numbness, odd sensation in leg, pain in foot and knee, etc. and I match the "profile". It is becoming increasing more debilitating, I can do less and less physically and I am looking for relief from the constant pain. Have been through treatment such as TENS, physical therapy, elec. stim, etc. ad infinitum. I would like to seek surgical intervention, the latest if possible - I am at my wit's end with the pain and progression of this "disease". Is there any help? Has anyone become pain free from surgery? Who do you recommend? Help! Many thanks |
||
Reply With Quote |
08-26-2009, 07:49 PM | #2 | ||
|
|||
New Member
|
Quote:
Last month I had my Tarlov Cyst aspirated and filled with fibrin glue. I am now disabled by my pain. It got much worse. I've been told by my doctors to wait 3 months. It can get better. I find it depressing and I am losing hope with this procedure working. |
||
Reply With Quote |
08-30-2009, 01:47 PM | #3 | ||
|
|||
Junior Member
|
Quote:
They are going to aspirate the large, closed cyst. What kind of pain are you experiencing? Did you have pain prior to the aspiration? Do they know what is causing the pain?? I havent got a date for the aspiration yet but am hoping it will be soon. Looking forward to your reply. Cheers Rachel |
||
Reply With Quote |
10-17-2009, 08:22 AM | #4 | ||
|
|||
Junior Member
|
Hi all
Just to let you know I had my cyst aspirated 2 days ago and so far all seems ok. They drained 1200ml of fluid from the cyst! Ive a bit of a headache but not as bad as Ive had before from leaks. It appears that quite a few symptoms have improved, primarily my ability to pass water, and back pain. I wont be able to appreciate full benefits until Im back moving properly but so far all looks good |
||
Reply With Quote |
11-02-2009, 03:24 PM | #5 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
01-11-2010, 03:11 PM | #6 | ||
|
|||
Junior Member
|
Hi all,
Unfortunately my aspiration didnt last. I had about 24hrs of noticable relief before feeling awful for a number of weeks, then having bladder issues again and following a CT scan discovered that the cyst had grown again but this time is bigger than before. I am now awaiting a second aspiration and the neurosurgeon has instructed that an extra amount of fibrin is injected to try and help the cyst seal. If it is unsuccessful again Im in trouble as the surgeon has expressed his reservations to doing the surgery. If anyone knows any surgeons confident and with a reasonable success rate in operating on TCs I would be very grateful to have their names. I need to be prepared in case this aspiration isnt successful. Locality of the surgeon is not an issue, we will deal with that once we know that someone would be willing to operate. Thanks in advance. |
||
Reply With Quote |
02-24-2010, 04:18 AM | #7 | ||
|
|||
New Member
|
Hi, I am from NewYork. My mother is suffering from severe back, arm and neck pain for a 4 cm tarlov cyst. I want to know how the CT thing work? it's not a surgery right? Can you please tell me a little about it? thanks a lot
|
||
Reply With Quote |
02-24-2010, 07:44 AM | #8 | ||
|
|||
Junior Member
|
Hi Khan
The CT mylegogram is not surgery. Its basically where under CT guidance they insert a kneedle into the spine, draw out some CSF and insert in its place some dye. This dye then moves through the CSF and should show if there is any leaks and also the flow of fluid into the cyst, whether the cyst is wide necked or narrow necked. From my research it isnt highly advisable to have the Fibrin Glue injection, as firstly it only provides temporary relief (6 months - 5 years) if any, and secondly, should in the future surgery be required it makes the surgery difficult. I have also read that the glue can stick to nerves in the cyst and cause damage to the nerves. Keep me posted please on how things progress with her and if you have found a neurosurgeon who is aware of the issues TCs cause and would be willing to operate if necessary. Good luck |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
I too have a Tarlov Cyst | Tarlov Cyst | |||
new Tarlov Cyst diagnosis | New Member Introductions | |||
Tarlov Cyst | New Member Introductions | |||
tarlov cyst | New Member Introductions | |||
new Tarlov Cyst diagnosis | Tarlov Cyst |