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Old 02-22-2010, 01:42 PM #1
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legzzalot legzzalot is offline
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Join Date: Nov 2008
Location: Fredericksburg, VA
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legzzalot legzzalot is offline
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Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default havin ms IS a full time job!

Today, it's monday. I get a call from disability people wanting to know why I have not sent back the 30 page packet outlining my life yet, oh you mean the one that I got in the mail on FRIDAY?? Maybe because I just received it and I am kind of dealing with this broken back thing and hopped up on pain killers 24/7 because medicaid is still dragging their feet about approving the brace my doctor ordered back on the 12th?

Oh yeah, i need to call them and see where we stand on that. Before I can do that, I get a call from the MRI place to remind me of my appts on the 24 and 25th. They claim to not have the orders from the neuro...the ones that were faxed in on the 12th when they made their appointments to go with the ortho appt already scheduled on the 24th. So yay! I get to call the neuro again!

My ortho follow up to see how my back is healing and determine if I need surgery is on the 1st. My next Ty infusion is on the 9th. The MRIs for the neuro is to see if the TY is doing more harm than good, so I guess I need to get in there before the 9th... but they want to wait until after the follow up with ortho on the 1st.

But wait, she doesn't have another appointment to see me available until april 5th. In the mean time, the combo of pain killers, lesions, and broken back have left me completly dependent on that self cath thing, which of course has caused a uti... so i have to call the urologist to get in there so I can get an antibiotic....

And some time between now and when I go to bed tonight while in a drugged stupor, I need to fill out this 30 page packet explaining how I spend my days.

Can i just send them a copy of my cell phone bill with all of the doctors offices highlighted?

let's not forget I also have MS, so between phone calls I get to try to deal with all of the MS related issues, while trying to raise a 5 yr old, take care of the house, cook dinner, take care of the animals....

GRRRRRRRRRRRRRRRRRRRRR! I wish I could go back to work just so I could get an 8 hour break in the day!
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