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03-31-2010, 11:40 PM | #11 | |||
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Wisest Elder Ever
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Good grief, Legzz...... Sorry about all the carp.
Make sure DH2B renews the AAA. I've had it less than a year (all three of us have it) and we've already used it a couple of times. It's invaluable and pays for itself with just one use! Hoping things settle down and they come to their senses and approve your SSDI. It's just not right the way they're handling this.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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03-31-2010, 11:57 PM | #12 | |||
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Elder
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I'm so sorry. It shouldn't be this difficult for someone like you with such extreme health issues. My late SIL applied before she died from cancer and she was denied of course. Too sick to appeal though.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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04-01-2010, 06:24 AM | #13 | |||
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Magnate
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Well, a new day. let's see, my hands are still numb. My ON is still acting up in my left eye, and my back is killing me! I called to try to reschedule my PT appt and was told that I would be charged $40 if I don't go because I didn't give then a 24 hour notice. So it looks like I will be going to PT and explaining all the issues with Satan's Little Helper and deciding what if anything he plans on doing with me today.
Then I get to leave there and go meet with the lawyers. Neuro follow up is Monday. She and I need to have a word or two about this disablilty thing.
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. I am not spoiled! |
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"Thanks for this!" says: | SandyC (04-01-2010) |
04-01-2010, 08:17 AM | #14 | |||
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Elder
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gentle hugs for you (((hugs)))
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | legzzalot (04-01-2010) |
04-02-2010, 06:07 AM | #15 | |||
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Member
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Sorry to hear... It's tough and it sounds like you're struggling too.
At my worst I was unable to claim a cent 'cos Himself earns too much. We just had to cut back. Hope something nice comes your way. |
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04-02-2010, 07:12 AM | #16 | |||
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Magnate
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Well I did have a mental meltdown yesterday. And then I went to Phys Therapy. even Satan's Little Helper was nice to me. I showed up told him we needed to talk before I did anything. I explained to him the MS acting up (numb hands and feet, ON, numb arm, anxiety, etc.) he decided that we would not be doing any physical activities for the day. Which turned out to be fine, as he was able to do the neck exam for the new orders the doctor wrote. Did some weird tape thing on my neck (which is still there) and agreed with me that I need more than one day recovery between appointments, even though he is only there 2 days a week.
I talked to the lawyers who tell me that I have to file an appeal with SSDI and have that denied before they can take the case. Or, I can convince the lady from Health and Human Services to get on them about going for a judicial review since I was denied my first app and then denied the appeal because they lost the paperwork and now denied the second app. I emailed her and I am waiting to hear back. Neuro appt is scheduled for Monday. I also now have a copy of both PT exams that show muscle loss and loss of range of motion... two things that were sited as reasons I was denied for SSDI. Nothing else I can do until Monday so I will try not to dwell on it this weekend but instead rejoice in the fact that DH2B is at work right now signing out for his leave and he is not going back until he is officially out at the end of May. DD lost another tooth last night, and the future in laws will be here either tonight or tomorrow and I am expected to create an Easter Feast.
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. I am not spoiled! |
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04-02-2010, 09:09 AM | #17 | |||
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Elder
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excuse me? did you say you have a broken back, are chasing a child who is losing teeth, suffering with MS, doing PT, and chasing lawyers and SSDI and you are stressed to the max, and the Inlaws are coming expecting to be given a feast??? You are a brave girl! I would be ordering pizza and saying "come and get it!"
I hope they are at least going to help.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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04-02-2010, 09:28 AM | #18 | |||
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Magnate
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honestly, I don't know if the in laws are coming for the feast. I'm not doing it for them. This is one of the few times throughout the year that DH2B gets to see his daughter and I figured we would have a nice Easter Dinner since DD is at her dads and won't be home until Sunday evening. And I decided to invite my mom, and I have invited the in laws. If they come or not it uo to them.
Yes I am wonder woman. I wonder what the he.. I was thinking when I decided to do this or that all day long!
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. I am not spoiled! |
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04-02-2010, 02:44 PM | #19 | |||
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Member
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I would give my left eye* for a "feel what I'm feeling just for a second" button. Of course I'd never wish it upon anyone for keeps. Situations like your, leggz, come along and you feel like people really do think we're making things up. Just messed up, I'm really sorry for you.
*it doesn't work all that well anyway
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Keith - dx'd 2/07 "Where's my Uranium PU36 Explosive Space Immune System Modulator?" rebif 3/07 - 12/07 relapse 2/08 copaxone 3/08 - 11/08 relapse 5/08 relapse 10/08 rebif 2/09 Minocycline 6/09 Not a damn thing 7/09 . |
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