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Old 06-01-2010, 08:34 PM #1
Carla Hurst Carla Hurst is offline
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Just wanted to say hello, all. Diagnosed with inoperable brain tumor (now tumors...FRED and BOB) in January of 2008...Cerebellar Ataxia secondary to Paraneoplastic disorder. Adjusting (...possibly a fancy way of saying not falling down...lol)

love,
Carla
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Old 06-01-2010, 10:36 PM #2
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Welcome to our group! I also live in Indiana, extreme southwest. Your profile picture looks like you went to the Grand Canyon.
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Old 06-01-2010, 10:44 PM #3
Carla Hurst Carla Hurst is offline
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Hi!

I live in the Western Edge...and yes...the photo was one taken by my husband-person during a trip to California...

Nice to meet you. Still adapting to the day to day nuts and bolts of Cerebellar Ataxia...want to get a tee-shirt that says:


"No...I haven't BEEN drinking!" LOL

ttyl,
C
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Old 06-01-2010, 10:51 PM #4
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Fred and Bob, lol! You need to change those names to GO & AWAY!!!

Carla, glad to know you are "adjusting." Good that you aren't falling down, anyway. Nice that you found us here at NT. WELCOME!!!
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Old 06-02-2010, 02:12 AM #5
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Hi Carla! Welcome to the group!! Sorry you have to be here, but it's a great place under the circumstances. See you around!!
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Old 06-02-2010, 02:21 AM #6
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So sorry to read about the problems you've been having Carla. Cerebellar Ataxia is not nice and I can imagine would not be easy to adapt to. A number of us with MS deal with ataxia at times, but I assure you I would not want to have to put up with it on a daily basis, like you probably do.

Obviously Fred & Bob have been rather unsociable lately so if you could do with some help to forget about their antics or even just a bit of emotional support to help you bear with them, then you've definitely come to the right place.

Please let us know if we can help you in any way, but in the meantime.... welcome to NeuroTalk.
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Old 06-02-2010, 07:46 AM #7
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welcome to the group.
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"Thanks for this!" says:
Carla Hurst (06-03-2010)
Old 06-03-2010, 04:00 PM #8
Carla Hurst Carla Hurst is offline
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Quote:
Originally Posted by Koala77 View Post
So sorry to read about the problems you've been having Carla. Cerebellar Ataxia is not nice and I can imagine would not be easy to adapt to. A number of us with MS deal with ataxia at times, but I assure you I would not want to have to put up with it on a daily basis, like you probably do.

Obviously Fred & Bob have been rather unsociable lately so if you could do with some help to forget about their antics or even just a bit of emotional support to help you bear with them, then you've definitely come to the right place.

Please let us know if we can help you in any way, but in the meantime.... welcome to NeuroTalk.

Hi back

When they were screening (CAG et al) they also screened for MS with the MRI...that is when they found Fred. (Bob came later) It is nice to talk with others who understand the whole "...no REALLY I am not DRUNK..." thing...
Thanks for the warm welcome here!

Later,
C
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Old 06-03-2010, 03:56 PM #9
Carla Hurst Carla Hurst is offline
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Quote:
Originally Posted by Twinkletoes View Post
Fred and Bob, lol! You need to change those names to GO & AWAY!!!

Carla, glad to know you are "adjusting." Good that you aren't falling down, anyway. Nice that you found us here at NT. WELCOME!!!
Lol...

I'm just hoping that on my next MRI they haven't spawned any new "friends".
The Ataxia is sometimes funny/frustrating/scary...and limiting. I used to be very active outdoors. Hiking/climbing and such. Now the back porch step is sometimes an adventure. ~sigh~ Talked to the neurologist about IV ABT Therapy to slow the Paraneoplastic disorder...and it is feasible...but the immune response (they believe) is what has kept the tumors growth in check...so...scratch that...

Thanks for the Welcome



C
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